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Parents expressed high healthcare satisfaction. Following discharge from neonatal care, the satisfaction with the infant's treatment, support from personnel and being respected as a parent significantly declined but remained high. The criteria for suspected developmental deviation according to the screening test early symptomatic syndromes eliciting neurodevelopmental clinical examinations\u2010questionnaire was fulfilled by 84.3%, 55.6% had suspected avoidant restrictive food intake disorder and 47.9% had visual perception problems. Parents experienced severe fatigue (48.6%) despite strong social support and family self\u2010efficacy. Economic support was provided to 30.6%, and 37.9% of children were enrolled in habilitation services.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This study highlighted the substantial challenges faced by parents of infants born before 24\u2009weeks of gestation, including decreased satisfaction post\u2010discharge, fatigue and concerns about children's well\u2010being. The findings underscore the need for comprehensive family\u2010centred support and long\u2010term multi\u2010professional follow\u2010up centres.<\/jats:p><\/jats:sec>","DOI":"10.1111\/apa.17350","type":"journal-article","created":{"date-parts":[[2024,7,10]],"date-time":"2024-07-10T11:41:55Z","timestamp":1720611715000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Challenges of parenting children born before 24\u2009weeks of gestation"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2224-3236","authenticated-orcid":false,"given":"Aldina","family":"Pivodic","sequence":"first","affiliation":[{"name":"Department of Clinical Neuroscience, Institute of Neuroscience and Physiology Sahlgrenska Academy, University of Gothenburg  Gothenburg Sweden"},{"name":"Department of Ophthalmology Sahlgrenska University Hospital, Region V\u00e4stra G\u00f6taland  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Malin","family":"Hansson","sequence":"additional","affiliation":[{"name":"Institute of Health and Care Sciences Sahlgrenska Academy, University of Gothenburg  Gothenburg Sweden"},{"name":"Region V\u00e4stra G\u00f6taland, Research and Development Primary Healthcare  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Chatarina","family":"L\u00f6fqvist","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuroscience, Institute of Neuroscience and Physiology Sahlgrenska Academy, University of Gothenburg  Gothenburg Sweden"},{"name":"Institute of Health and Care Sciences Sahlgrenska Academy, University of Gothenburg  Gothenburg Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karin","family":"S\u00e4vman","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Institute of Clinical Sciences Sahlgrenska Academy, University of 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