{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,18]],"date-time":"2026-07-18T07:09:30Z","timestamp":1784358570970,"version":"3.55.0"},"reference-count":30,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2024,12,21]],"date-time":"2024-12-21T00:00:00Z","timestamp":1734739200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2024,12,21]],"date-time":"2024-12-21T00:00:00Z","timestamp":1734739200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>This national study focused on the individualised Heart Observation (HOBS) mobile phone app, which helps the parents of infants with severe congenital heart disease (CHD) with discharge preparations and decision making at home.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We enrolled two groups of parents from 2021 to 2023, during their child's initial hospitalisation at Oslo University Hospital, Norway. Measurements were carried out at baseline and one and four\u2009months after discharge. The study examined 73 mothers, who assessed the usefulness and stress\u2010related impact of either printed materials or the HOBS app, as the fathers' responses were insufficient.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The HOBS app was significantly more useful than the printed information, with regard to discharge preparations, follow up at home and ongoing decision making, particularly if the infants had sustained cardiac impairment. The average total usefulness scores were 23.9\/35 (95% CI 21.6\u201326.1) versus 17.0\/35 (95% CI 14.1\u201320.0), respectively. Initial stress significantly decreased from baseline in both groups and elevated awareness of deterioration did not increase stress in the HOBS group.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Mothers who used the HOBS app found it significantly more useful than the controls who received printed information, particularly if their infant had sustained cardiac impairment. Elevated awareness of deterioration did not increase stress.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/apa.17556","type":"journal-article","created":{"date-parts":[[2024,12,21]],"date-time":"2024-12-21T03:17:49Z","timestamp":1734751069000},"page":"1238-1248","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["An individualised mobile app was beneficial for the mothers of infants with severe congenital heart defects"],"prefix":"10.1111","volume":"114","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6808-8158","authenticated-orcid":false,"given":"Elin","family":"Hjorth\u2010Johansen","sequence":"first","affiliation":[{"name":"Department of Neonatal Intensive Care Oslo University Hospital  Oslo Norway"},{"name":"Institute of Clinical Medicine University of Oslo  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elin","family":"B\u00f8r\u00f8sund","sequence":"additional","affiliation":[{"name":"Department of Digital Health Research, Division of Medicine Oslo University Hospital  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne","family":"Moen","sequence":"additional","affiliation":[{"name":"Institute of Health and Society, Division of Medicine University of Oslo  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ingeborg Martinsen","family":"\u00d8sten","sequence":"additional","affiliation":[{"name":"Department of Neonatal Intensive Care Oslo University Hospital  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gunnar","family":"Wik","sequence":"additional","affiliation":[{"name":"Department of Paediatric and Adolescent Medicine Sorlandet Hospital  Kristiansand Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne Lee","family":"Solev\u00e5g","sequence":"additional","affiliation":[{"name":"Department of Neonatal Intensive Care Oslo University Hospital  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Siw Helen Westby","family":"Eger","sequence":"additional","affiliation":[{"name":"Department of Neonatal Intensive Care Oslo University Hospital  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4745-5267","authenticated-orcid":false,"given":"Henrik","family":"Holmstr\u00f8m","sequence":"additional","affiliation":[{"name":"Institute of Clinical Medicine University of Oslo  Oslo Norway"},{"name":"Department of Paediatric Cardiology Oslo University Hospital  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,12,21]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2019-317581"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2352-4642(19)30402-X"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2020-319936"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.116.004862"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-6712.2007.00444.x"},{"issue":"1","key":"e_1_2_12_7_1","first-page":"31","article-title":"Parental vigilance in caring for their children with hypoplastic left heart syndrome","volume":"41","author":"Meakins L","year":"2015","journal-title":"Pediatr Nurs"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10826-019-01406-8"},{"key":"e_1_2_12_9_1","article-title":"Home monitoring in patients with 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