{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T12:11:34Z","timestamp":1777464694760,"version":"3.51.4"},"reference-count":32,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2025,1,25]],"date-time":"2025-01-25T00:00:00Z","timestamp":1737763200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,1,25]],"date-time":"2025-01-25T00:00:00Z","timestamp":1737763200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>This study aimed to develop a universally applicable core set of quality indicators for Hirschsprung's disease care through a consensus\u2010driven process, to standardise and improve care quality across Europe.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A modified Delphi method was used to achieve consensus among healthcare professionals (HPs) and patient representatives (PRs) across Europe. Participants completed three rounds of anonymous surveys, rating quality indicators for Hirschsprung's disease care. A systematic literature review informed the initial item list. Results were analysed using predefined criteria, and a final consensus meeting established the core set of indicators.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>An international panel of 8 PRs and 96 multidisciplinary health care professionals representing 59 European hospitals completed all questionnaires, eventually including 12 baseline characteristics and 39 indicators. Six of the top 10 indicators were commonly prioritised by both groups. The remaining items were refined through debate and finalised during a consensus meeting.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This study established a core set of 12 baseline characteristics and 14 quality indicators for evaluating Hirschsprung's disease care. These indicators will support benchmarking and continuous quality improvement within the European Paediatric Surgical Audit framework, ultimately enhancing outcomes and care for children with Hirschsprung's disease.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/apa.17594","type":"journal-article","created":{"date-parts":[[2025,1,25]],"date-time":"2025-01-25T04:14:31Z","timestamp":1737778471000},"page":"1464-1477","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Defining Excellence: The First Core Set of Quality Indicators for the European Paediatric Surgical Audit on Hirschsprung's Disease Care"],"prefix":"10.1111","volume":"114","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1430-596X","authenticated-orcid":false,"given":"Daniel","family":"Rossi","sequence":"first","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Department of Pediatric Surgery Erasmus University Medical Center\u2013Sophia Children's Hospital  Rotterdam The Netherlands"},{"name":"Department of Women's and Children's Health Karolinska Institutet  Stockholm Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2169-7399","authenticated-orcid":false,"given":"Anna L\u00f6f","family":"Granstr\u00f6m","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Department of Women's and Children's Health Karolinska Institutet  Stockholm Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mikko","family":"Pakarinen","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Department of Pediatric Surgery, New Children's Hospital Helsinki University Central Hospital and University of Helsinki  Helsinki Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristin","family":"Bj\u00f8rnland","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Department of Pediatric Surgery Oslo University Hospital and University of Oslo  Oslo Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ivo","family":"de Blaauw","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Department of Surgery, Division of Pediatric Surgery Radboud UMC\u2010Amalia Children's Hospital  Nijmegen The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mark","family":"Elleb\u00e6k","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Research Unit for Surgery Odense University Hospital  Odense Denmark"},{"name":"University of Southern Denmark  Odense Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Francesco Fascetti","family":"Leon","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Pediatric Surgery Unit, Department of Women's and Children's Health Padua University Hospital  Padua Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dirk\u2010Jan","family":"Gloudemans","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Dutch Association for Hirschsprung's Disease  's\u2010Hertogenbosch Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alessio Pini","family":"Prato","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Umberto Bosio Center for Digestive Diseases The Children Hospital, AO SS Antonio e Biagio e Cesare Arrigo  Alessandria Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Udo","family":"Rolle","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The Netherlands"},{"name":"Department of Pediatric Surgery and Pediatric Urology University Hospital Frankfurt  Frankfurt\/M Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicole","family":"Schwarzer","sequence":"additional","affiliation":[{"name":"European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA)  Rotterdam The 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