{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,31]],"date-time":"2026-01-31T22:07:16Z","timestamp":1769897236535,"version":"3.49.0"},"reference-count":15,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2025,3,25]],"date-time":"2025-03-25T00:00:00Z","timestamp":1742860800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,3,25]],"date-time":"2025-03-25T00:00:00Z","timestamp":1742860800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100009471","name":"Stiftelsen Dam","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100009471","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acta Paediatrica"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>Most paediatric surgeons regard themselves as crucial and responsible for the follow\u2010up of patients with anorectal malformations (ARM) and Hirschsprung's disease (HD). In this study, we explored to what extent paediatric gastroenterologists (PG) want to be involved in the care, if they experienced any knowledge gaps, and how they preferred to increase their knowledge.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>All Norwegian paediatric departments received a questionnaire covering different aspects of follow\u2010up of patients with ARM and HD. One PG was asked to answer on behalf of the department.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>13\/18 (72%) departments answered, 6\/6 (100%) university\u2010 and 7\/12 (58%) regional hospitals. The PG strongly disagreed that paediatric surgeons should have main responsibility for the follow\u2010up on HD and ARM patients. The PG regarded the information provided by paediatric surgeons on main diagnosis, associated anomalies and recommendations for paediatric follow\u2010up as insufficient. The PG listed surgical treatment, bowel management and long\u2010term outcomes as knowledge gaps, and preferred national paediatric guidelines and paediatric meetings as sources to increase knowledge.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>PG want more involvement in the follow\u2010up of ARM and HD patients. To increase their knowledge, they recommend improved information from paediatric surgeons, national guidelines and a focus on ARM and HD at national paediatric meetings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/apa.70076","type":"journal-article","created":{"date-parts":[[2025,3,27]],"date-time":"2025-03-27T00:22:44Z","timestamp":1743034964000},"page":"2023-2028","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["A National Survey on Paediatric Gastroenterologists' Role in Caring for Anorectal Malformations and Hirschsprung's Disease"],"prefix":"10.1111","volume":"114","author":[{"given":"Anders Telle","family":"Hoel","sequence":"first","affiliation":[{"name":"Department of Pediatric Surgery Oslo University Hospital and Institute of Clinical Medicine, University of Oslo  Oslo Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5947-0320","authenticated-orcid":false,"given":"Charlotte Kristensen","family":"Knatten","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Akershus University Hospital  Oslo Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristin","family":"Bj\u00f8rnland","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery Oslo University Hospital and Institute of Clinical Medicine, University of Oslo  Oslo Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,3,25]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.40530"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.earlhumdev.2014.09.016"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2017.01.001"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2012.01.068"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2017.08.018"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1055\/s-0037-1607356"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2018.01.010"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1055\/s-0040-1713597"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1055\/s-0033-1353491"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2020.05.015"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1515\/ijamh\u20102020\u20100052"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023\u2010020\u201001362\u20103"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10151-015-1267-8"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPG.0000000000002282"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2012.04.016"}],"container-title":["Acta Paediatrica"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/apa.70076","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/apa.70076","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/apa.70076","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,1,31]],"date-time":"2026-01-31T11:53:18Z","timestamp":1769860398000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/apa.70076"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,3,25]]},"references-count":15,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2025,8]]}},"alternative-id":["10.1111\/apa.70076"],"URL":"https:\/\/doi.org\/10.1111\/apa.70076","archive":["Portico"],"relation":{},"ISSN":["0803-5253","1651-2227"],"issn-type":[{"value":"0803-5253","type":"print"},{"value":"1651-2227","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,3,25]]},"assertion":[{"value":"2024-10-13","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-03-18","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-03-25","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}