{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T09:42:11Z","timestamp":1792057331320,"version":"4.4.0"},"reference-count":25,"publisher":"Oxford University Press (OUP)","issue":"6","license":[{"start":{"date-parts":[[2015,4,1]],"date-time":"2015-04-01T00:00:00Z","timestamp":1427846400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"},{"start":{"date-parts":[[2015,4,1]],"date-time":"2015-04-01T00:00:00Z","timestamp":1427846400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100009853","name":"Dimbleby Cancer Care","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100009853","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Br J Dermatol"],"published-print":{"date-parts":[[2015,6]]},"DOI":"10.1111\/bjd.13583","type":"journal-article","created":{"date-parts":[[2014,12,26]],"date-time":"2014-12-26T09:49:12Z","timestamp":1419587352000},"page":"1581-1592","source":"Crossref","is-referenced-by-count":39,"title":["\u2018We're all carrying a burden that we're not sharing\u2019: a qualitative study of the impact of cutaneous T-cell lymphoma on the family"],"prefix":"10.1093","volume":"172","author":[{"given":"L.E.","family":"Selman","sequence":"first","affiliation":[{"name":"Department of Palliative Care, Policy and Rehabilitation; Cicely Saunders Institute; King's College London; Bessemer Rd London SE5 9PJ U.K"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"T.","family":"Beynon","sequence":"additional","affiliation":[{"name":"Department of Palliative Care, Policy and Rehabilitation; Cicely Saunders Institute; King's College London; Bessemer Rd London SE5 9PJ U.K"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"E.","family":"Radcliffe","sequence":"additional","affiliation":[{"name":"Department of Palliative Care, Policy and Rehabilitation; Cicely Saunders Institute; King's College London; Bessemer Rd London SE5 9PJ U.K"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Whittaker","sequence":"additional","affiliation":[{"name":"St. John's Institute of Dermatology; Guy's and St. Thomas' NHS Foundation Trust; London U.K"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D.","family":"Orlowska","sequence":"additional","affiliation":[{"name":"St. John's Institute of Dermatology; Guy's and St. Thomas' NHS Foundation Trust; London U.K"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"F.","family":"Child","sequence":"additional","affiliation":[{"name":"St. John's Institute of Dermatology; Guy's and St. Thomas' NHS Foundation Trust; London U.K"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R.","family":"Harding","sequence":"additional","affiliation":[{"name":"Department of Palliative Care, Policy and Rehabilitation; Cicely Saunders Institute; King's College London; Bessemer Rd London SE5 9PJ U.K"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2015,4,1]]},"reference":[{"key":"10.1111\/bjd.13583-BIB0001|bjd13583-cit-0001","doi-asserted-by":"crossref","first-page":"4730","DOI":"10.1200\/JCO.2009.27.7665","article-title":"Survival outcomes and prognostic factors in mycosis fungoides\/S\u00e9zary syndrome: validation of the revised International Society for Cutaneous Lymphomas\/European Organisation for Research and Treatment of Cancer staging proposal","volume":"28","author":"Agar","year":"2010","journal-title":"J Clin Oncol"},{"issue":"Suppl. 4","key":"10.1111\/bjd.13583-BIB0002|bjd13583-cit-0002","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1093\/annonc\/mdp147","article-title":"Primary cutaneous lymphoma: ESMO clinical recommendations for diagnosis, treatment and follow-up","volume":"20","author":"Willemze","year":"2009","journal-title":"Ann Oncol"},{"key":"10.1111\/bjd.13583-BIB0003|bjd13583-cit-0003","doi-asserted-by":"crossref","first-page":"160","DOI":"10.7861\/clinmedicine.12-2-160","article-title":"Management of cutaneous T-cell lymphoma","volume":"12","author":"Duhovic","year":"2012","journal-title":"Clin Med"},{"key":"10.1111\/bjd.13583-BIB0004|bjd13583-cit-0004","doi-asserted-by":"crossref","first-page":"1095","DOI":"10.1111\/j.1365-2133.2003.05698.x","article-title":"Joint British Association of Dermatologists and U.K. Cutaneous Lymphoma Group guidelines for the management of primary cutaneous T-cell lymphomas","volume":"149","author":"Whittaker","year":"2003","journal-title":"Br J Dermatol"},{"key":"10.1111\/bjd.13583-BIB0005|bjd13583-cit-0005","doi-asserted-by":"crossref","first-page":"599","DOI":"10.1111\/bjd.12644","article-title":"What are the supportive and palliative care needs of patients with cutaneous T-cell lymphoma and their caregivers? A systematic review of the evidence","volume":"170","author":"Beynon","year":"2014","journal-title":"Br J Dermatol"},{"key":"10.1111\/bjd.13583-BIB0006|bjd13583-cit-0006","doi-asserted-by":"crossref","first-page":"815","DOI":"10.1111\/j.1365-2133.2008.08992.x","article-title":"Quality of life and psychological distress in patients with cutaneous lymphoma","volume":"160","author":"Sampogna","year":"2009","journal-title":"Br J Dermatol"},{"key":"10.1111\/bjd.13583-BIB0007|bjd13583-cit-0007","doi-asserted-by":"crossref","first-page":"2504","DOI":"10.1002\/cncr.22252","article-title":"Significant impact of cutaneous T-cell lymphoma on patients' quality of life - results of a 2005 National Cutaneous Lymphoma Foundation survey","volume":"107","author":"Demierre","year":"2006","journal-title":"Cancer"},{"key":"10.1111\/bjd.13583-BIB0008|bjd13583-cit-0008","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1016\/j.jpainsymman.2012.01.012","article-title":"Prevalence and severity of pruritus and quality of life in patients with cutaneous T-cell lymphoma","volume":"45","author":"Wright","year":"2013","journal-title":"J Pain Symptom Manage"},{"key":"10.1111\/bjd.13583-BIB0009|bjd13583-cit-0009","doi-asserted-by":"crossref","first-page":"929","DOI":"10.1111\/j.1365-2133.2007.07794.x","article-title":"The family impact of skin diseases: the Greater Patient concept","volume":"156","author":"Basra","year":"2007","journal-title":"Br J Dermatol"},{"key":"10.1111\/bjd.13583-BIB0010|bjd13583-cit-0010","first-page":"196","volume-title":"The SAGE Encyclopedia of Qualitative Research Methods","author":"Saumure","year":"2008"},{"key":"10.1111\/bjd.13583-BIB0011|bjd13583-cit-0011","doi-asserted-by":"crossref","first-page":"202","DOI":"10.1037\/h0089739","article-title":"Families experiencing stress: I. The Family Adjustment and Adaptation Response Model: II. Applying the FAAR Model to health-related issues for intervention and research","volume":"6","author":"Patterson","year":"1988","journal-title":"Fam Syst Med"},{"key":"10.1111\/bjd.13583-BIB0012|bjd13583-cit-0012","doi-asserted-by":"crossref","first-page":"a949","DOI":"10.1136\/bmj.a949","article-title":"Why use theories in qualitative research?","volume":"337","author":"Reeves","year":"2008","journal-title":"BMJ"},{"key":"10.1111\/bjd.13583-BIB0013|bjd13583-cit-0013","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1002\/nur.4770160308","article-title":"Theory unmasked: the uses and guises of theory in qualitative research","volume":"16","author":"Sandelowski","year":"1993","journal-title":"Res Nurs Health"},{"key":"10.1111\/bjd.13583-BIB0014|bjd13583-cit-0014","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qual Res Psychol"},{"key":"10.1111\/bjd.13583-BIB0015|bjd13583-cit-0015","volume-title":"The Discovery of Grounded Theory: Strategies for Qualitative Research","author":"Glaser","year":"1967"},{"key":"10.1111\/bjd.13583-BIB0016|bjd13583-cit-0016","doi-asserted-by":"crossref","first-page":"113","DOI":"10.1046\/j.1471-6712.2003.00220.x","article-title":"Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity","volume":"17","author":"Proot","year":"2003","journal-title":"Scand J Caring Sci"},{"key":"10.1111\/bjd.13583-BIB0017|bjd13583-cit-0017","doi-asserted-by":"crossref","first-page":"1158","DOI":"10.1111\/j.1365-2702.2006.01473.x","article-title":"Relatives in end-of-life care - part 1: a systematic review of the literature the five last years, January 1999-February 2004","volume":"15","author":"Andershed","year":"2006","journal-title":"J Clin Nurs"},{"key":"10.1111\/bjd.13583-BIB0018|bjd13583-cit-0018","doi-asserted-by":"crossref","first-page":"483","DOI":"10.1177\/0898264308317533","article-title":"Family caregivers' strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving","volume":"20","author":"Kim","year":"2008","journal-title":"J Aging Health"},{"key":"10.1111\/bjd.13583-BIB0019|bjd13583-cit-0019","doi-asserted-by":"crossref","first-page":"819","DOI":"10.1093\/eurpub\/cku026","article-title":"Burden on family carers and care-related financial strain at the end of life: a cross-national population-based study","volume":"24","author":"Pivodic","year":"2014","journal-title":"Eur J Public Health"},{"key":"10.1111\/bjd.13583-BIB0020|bjd13583-cit-0020","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1191\/026921699673763725","article-title":"Identifying the concerns of informal carers in palliative care","volume":"13","author":"Payne","year":"1999","journal-title":"Palliat Med"},{"key":"10.1111\/bjd.13583-BIB0021|bjd13583-cit-0021","doi-asserted-by":"crossref","first-page":"598","DOI":"10.1093\/fampra\/cmu040","article-title":"Radecki Breitkopf C. Coping with colorectal cancer: a qualitative exploration with patients and their family members","volume":"31","author":"Asiedu","year":"2014","journal-title":"Fam Pract"},{"key":"10.1111\/bjd.13583-BIB0022|bjd13583-cit-0022","doi-asserted-by":"crossref","first-page":"58","DOI":"10.12968\/ijpn.2004.10.2.12454","article-title":"Positive aspects and challenges associated with caring for a dying relative at home","volume":"10","author":"Hudson","year":"2004","journal-title":"Int J Palliat Nurs"},{"key":"10.1111\/bjd.13583-BIB0023|bjd13583-cit-0023","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1191\/0269216303pm667oa","article-title":"What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness","volume":"17","author":"Harding","year":"2003","journal-title":"Palliat Med"},{"key":"10.1111\/bjd.13583-BIB0024|bjd13583-cit-0024","first-page":"317","article-title":"Interventions with family caregivers of cancer patients: meta-analysis of randomized trials","volume":"60","author":"Northouse","year":"2010","journal-title":"CA Cancer J Clin"},{"key":"10.1111\/bjd.13583-BIB0025|bjd13583-cit-0025","doi-asserted-by":"crossref","first-page":"1227","DOI":"10.1200\/JCO.2011.39.5798","article-title":"Psychosocial care for family caregivers of patients with cancer","volume":"30","author":"Northouse","year":"2012","journal-title":"J Clin Oncol"}],"container-title":["British Journal of Dermatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fbjd.13583","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fbjd.13583","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/onlinelibrary.wiley.com\/wol1\/doi\/10.1111\/bjd.13583\/fullpdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,2,14]],"date-time":"2023-02-14T09:13:11Z","timestamp":1676365991000},"score":1,"resource":{"primary":{"URL":"https:\/\/academic.oup.com\/bjd\/article\/172\/6\/1581\/6615867"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,4,1]]},"references-count":25,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2015,6]]}},"URL":"https:\/\/doi.org\/10.1111\/bjd.13583","archive":["Portico"],"relation":{},"ISSN":["0007-0963"],"issn-type":[{"value":"0007-0963","type":"print"}],"subject":[],"published":{"date-parts":[[2015,4,1]]}}}