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The transition is a high\u2010risk period associated with increases in hospital admissions and death. The factors underlying this increased risk include not only characteristics of the disease itself, with the accumulation of disabilities and progression of organ damage, but also psychological factors and a frequent paucity of adult\u2010care resources for <jats:styled-content style=\"fixed-case\">SCD<\/jats:styled-content>. Leaving the familiar paediatric team causes marked anxiety in many patients. The transition of care coincides with the many other transitions that characterize the emotional, social and academic development of adolescents. The shift from protection by parents and physicians to independent self\u2010management may be difficult. Finally, young adults may have limited access to health insurance. In recent years, many medical groups have suggested the development of transitioning programmes combining transition schedules, printed and web\u2010based materials, and, in some cases, transition\u2010dedicated physicians, nurses and psychologists. Transition must begin early, involve both the paediatric and the adult team, direct appropriate attention to the parents and occur over a period of several years. Evaluations of these programmes are urgently needed.<\/jats:p>","DOI":"10.1111\/bjh.12700","type":"journal-article","created":{"date-parts":[[2013,12,17]],"date-time":"2013-12-17T14:08:41Z","timestamp":1387289321000},"page":"630-635","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":54,"title":["Transition from paediatric to adult care for patients with sickle cell disease"],"prefix":"10.1111","volume":"164","author":[{"given":"Mariane","family":"de Montalembert","sequence":"first","affiliation":[{"name":"Department of Paediatrics Hopital Necker\u2010Enfants Malades Paris France"},{"name":"Paris Descartes University Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Corinne","family":"Guitton","sequence":"additional","affiliation":[{"name":"Department of Paediatrics Hopital de Bicetre Bicetre France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"the French Reference Centre for Sickle Cell Disease","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2013,12,17]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-0969"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2141.2005.05500.x"},{"key":"e_1_2_8_4_1","doi-asserted-by":"crossref","first-page":"684a","DOI":"10.1182\/blood.V116.21.1629.1629","article-title":"High mortality among children with sickle cell anemia and stroke who discontinue chronic blood transfusion after transition to an adult programme","volume":"116","author":"Ballas S.K.","year":"2010","journal-title":"Blood"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2010-06-293514"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/1054-139X(93)90143-D"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00277-008-0670-x"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2010.378"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0b013e3181acd889"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.21865"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-3049"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2011-02-272682"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/1043454209350155"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedhc.2012.06.004"},{"key":"e_1_2_8_15_1","first-page":"479","article-title":"Transitioning adolescents with sickle cell disease to adult\u2010centered care","volume":"25","author":"Hauser E.S.","year":"1999","journal-title":"Pediatric Nursing"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.20722"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.12968\/hmed.2010.71.6.48435"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0b013e3182847483"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/003335491312800206"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.2147\/JBM.S32588"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.a771"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0b013e3180335081"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.21974"},{"key":"e_1_2_8_24_1","unstructured":"National Institutes of Health(2002)The Management of Sickle Cell Disease 4th edn. 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