{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,14]],"date-time":"2026-01-14T18:18:01Z","timestamp":1768414681808,"version":"3.49.0"},"reference-count":52,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2019,6,23]],"date-time":"2019-06-23T00:00:00Z","timestamp":1561248000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100010025","name":"University of Derby","doi-asserted-by":"publisher","award":["REF reinvestment programme"],"award-info":[{"award-number":["REF reinvestment programme"]}],"id":[{"id":"10.13039\/100010025","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010025","name":"University of Derby","doi-asserted-by":"publisher","award":["Undergraduate Research Scholarship awards"],"award-info":[{"award-number":["Undergraduate Research Scholarship awards"]}],"id":[{"id":"10.13039\/100010025","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Br J Haematol"],"published-print":{"date-parts":[[2019,10]]},"abstract":"<jats:title>Summary<\/jats:title><jats:p>A brief measure of patient satisfaction with treatment for pain is needed to help improve the treatment of painful episodes caused by sickle cell disease (SCD), especially during and after the transition from paediatric to adult care. Focus groups of 28 adolescent and adult patients were consulted about the content, clarity and relevance of 30 potential items, resulting in an 18\u2010item version. This was validated by analysing questionnaire responses from 120 patients aged 12\u201353\u00a0years. Confirmatory factor analysis and item analysis indicated five subscales with high internal reliability: \u2018Communication and Involvement\u2019 (6 items, \u03b1\u00a0=\u00a00\u00b787); \u2018Respect and Dignity\u2019 (3 items, \u03b1\u00a0=\u00a00\u00b782); \u2018Pain Control\u2019 (3 items, \u03b1\u00a0=\u00a00\u00b791); \u2018Staff Attitudes and Behaviour\u2019 (4 items, \u03b1\u00a0=\u00a00\u00b788); and \u2018Overall Satisfaction\u2019 (2 items, \u03b1\u00a0=\u00a00\u00b785) plus a Total Satisfaction score (18 items, \u03b1\u00a0=\u00a00\u00b796). High negative correlations with the Picker Patient Experience Questionnaire, a measure of problem experiences, indicated good convergent validity. Lower satisfaction scores among patients aged over 18\u00a0years, those admitted via the emergency department, those treated by non\u2010specialist hospital staff, and those reporting more breakthrough pain indicated good concurrent validity. The questionnaire provides a convenient brief measure that can be used to inform and evaluate improvements in healthcare for adolescent and adult patients with SCD, and could potentially be adapted for other painful conditions.<\/jats:p>","DOI":"10.1111\/bjh.16015","type":"journal-article","created":{"date-parts":[[2019,6,23]],"date-time":"2019-06-23T23:24:22Z","timestamp":1561332262000},"page":"105-116","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Development and validation of the Satisfaction with Treatment for Pain Questionnaire (STPQ) among patients with sickle cell disease"],"prefix":"10.1111","volume":"187","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7665-5482","authenticated-orcid":false,"given":"James","family":"Elander","sequence":"first","affiliation":[{"name":"University of Derby Derby UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1302-2802","authenticated-orcid":false,"given":"Deepali","family":"Bij","sequence":"additional","affiliation":[{"name":"University of Derby Derby UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0091-8087","authenticated-orcid":false,"given":"Romaana","family":"Kapadi","sequence":"additional","affiliation":[{"name":"University of Derby Derby UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9676-0896","authenticated-orcid":false,"given":"Malcolm B.","family":"Schofield","sequence":"additional","affiliation":[{"name":"University of Derby Derby UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Arlene","family":"Osias","sequence":"additional","affiliation":[{"name":"Royal London Hospital, Barts NHS Trust London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nosheen","family":"Khalid","sequence":"additional","affiliation":[{"name":"Royal London Hospital, Barts NHS Trust London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Banu","family":"Kaya","sequence":"additional","affiliation":[{"name":"Royal London Hospital, Barts NHS Trust London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paul","family":"Telfer","sequence":"additional","affiliation":[{"name":"Centre for Genomics and Child Health Blizard Institute, Queen Mary University of London London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2019,6,23]]},"reference":[{"key":"e_1_2_8_2_1","first-page":"886","article-title":"Patient satisfaction in specialized versus nonspecialized adult sickle cell care centers: the PiSCES study","volume":"99","author":"Aisiku I.P.","year":"2007","journal-title":"Journal of the National Medical Association"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.annemergmed.2008.07.050"},{"key":"e_1_2_8_4_1","doi-asserted-by":"crossref","first-page":"3743","DOI":"10.1182\/blood.V104.11.3743.3743","article-title":"Outcome of transitioning paediatric patients with sickle cell disease to adult programs","volume":"104","author":"Ballas S.K.","year":"2004","journal-title":"Blood"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.2044-8317.1950.tb00285.x"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1159\/000360260"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13643-015-0089-0"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.24459"},{"key":"e_1_2_8_9_1","first-page":"3","article-title":"Teoria statistica delle classi e calcolo delle probabilita","volume":"8","author":"Bonferroni C.","year":"1936","journal-title":"Pubblicazioni del R Istituto Superiore di Scienze Economiche e Commericiali di Firenze"},{"key":"e_1_2_8_10_1","doi-asserted-by":"crossref","unstructured":"Brady S.R.. (2015). Utilizing and adapting the Delphi method for use in qualitative research.International Journal of Qualitative Methods 10 Dec 2015 https:\/\/doi.org\/10.1177\/1609406915621381.","DOI":"10.1177\/1609406915621381"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2010.378"},{"key":"e_1_2_8_13_1","volume-title":"Methodology in the Social Sciences. Confirmatory Factor Analysis for Applied Research","author":"Brown T.A.","year":"2015"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2010.04.011"},{"key":"e_1_2_8_15_1","volume-title":"The Comprehensive Care Project Working Together to Help Improve the NHS: Sickle Cell Service Users \u2010 Satisfaction Survey of a Patient's Visit to NHS","author":"Chalkley S.","year":"2012"},{"key":"e_1_2_8_16_1","volume-title":"Scale Development. Theory and Applications","author":"DeVellis R.F.","year":"2012"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1182\/asheducation-2015.1.501"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acpain.2006.08.005"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1201\/9781315155074-18"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10865-005-9042-3"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1080\/13557858.2011.555520"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000004528"},{"key":"e_1_2_8_23_1","volume-title":"Discovering Statistics Using IBM SPSS Statistics","author":"Field A.","year":"2013"},{"key":"e_1_2_8_24_1","volume-title":"Psychometrics: An Introduction","author":"Furr R.M.","year":"2018"},{"key":"e_1_2_8_25_1","doi-asserted-by":"publisher","DOI":"10.17705\/1CAIS.00407"},{"key":"e_1_2_8_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.annemergmed.2013.02.004"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315832746"},{"key":"e_1_2_8_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2014.02.002"},{"key":"e_1_2_8_29_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-014-2986-7"},{"key":"e_1_2_8_30_1","doi-asserted-by":"publisher","DOI":"10.1542\/hpeds.2014-0171"},{"key":"e_1_2_8_31_1","volume-title":"Structural Equation Modeling: Concepts, Issues, and Applications","author":"Hoyle R.H.","year":"1995"},{"key":"e_1_2_8_32_1","doi-asserted-by":"publisher","DOI":"10.4135\/9780857028075"},{"key":"e_1_2_8_33_1","doi-asserted-by":"publisher","DOI":"10.1080\/10705519909540118"},{"key":"e_1_2_8_34_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/14.5.353"},{"key":"e_1_2_8_35_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF02291817"},{"key":"e_1_2_8_36_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315788135"},{"key":"e_1_2_8_37_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.25024"},{"key":"e_1_2_8_38_1","doi-asserted-by":"crossref","first-page":"1114","DOI":"10.1353\/hpu.2010.0940","article-title":"Problematic hospital experiences among adult patients with sickle cell disease","volume":"21","author":"Lattimer L.","year":"2010","journal-title":"Journal of Health Care for the Poor and Underserved"},{"key":"e_1_2_8_39_1","doi-asserted-by":"crossref","first-page":"4854","DOI":"10.1182\/blood.V124.21.4854.4854","article-title":"Implementation of a community hospital\u2010based fast track pathway for the treatment of acute pain episodes in adults with sickle cell disease","volume":"124","author":"Lottenberg R.","year":"2014","journal-title":"Blood"},{"key":"e_1_2_8_40_1","doi-asserted-by":"publisher","DOI":"10.5055\/jom.2017.0382"},{"key":"e_1_2_8_41_1","volume-title":"The Patient Satisfaction Questionnaire Short\u2010Form (PSQ\u201018)","author":"Marshall G.","year":"1994"},{"key":"e_1_2_8_42_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.318.7198.1585"},{"key":"e_1_2_8_43_1","doi-asserted-by":"crossref","first-page":"2101","DOI":"10.1182\/blood.V120.21.2101.2101","article-title":"Quality improvement goals for sickle cell disease pain management in an urban paediatric emergency department: we can do better!","volume":"111","author":"Morris C.R.","year":"2012","journal-title":"Blood"},{"key":"e_1_2_8_44_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2009-07-233700"},{"key":"e_1_2_8_45_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2141.2003.04193.x"},{"key":"e_1_2_8_46_1","volume-title":"Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK \u2010 2018","author":"Sickle Cell Society","year":"2008"},{"key":"e_1_2_8_47_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2015.11.004"},{"key":"e_1_2_8_48_1","first-page":"36","article-title":"Use of focus groups for pain and quality of life assessment in adults with sickle cell disease","volume":"12","author":"Strickland O.L.","year":"2001","journal-title":"Journal of the National Black Nurses Association"},{"key":"e_1_2_8_49_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1553-2712.2012.01330.x"},{"key":"e_1_2_8_50_1","doi-asserted-by":"publisher","DOI":"10.1001\/archinte.164.2.175"},{"key":"e_1_2_8_51_1","doi-asserted-by":"publisher","DOI":"10.1367\/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2"},{"key":"e_1_2_8_52_1","doi-asserted-by":"publisher","DOI":"10.1053\/jpdn.2002.30930"},{"key":"e_1_2_8_53_1","doi-asserted-by":"publisher","DOI":"10.1177\/0011000006288127"}],"container-title":["British Journal of Haematology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fbjh.16015","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjh.16015","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/bjh.16015","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjh.16015","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,10]],"date-time":"2023-09-10T04:14:15Z","timestamp":1694319255000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/bjh.16015"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,6,23]]},"references-count":52,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2019,10]]}},"alternative-id":["10.1111\/bjh.16015"],"URL":"https:\/\/doi.org\/10.1111\/bjh.16015","archive":["Portico"],"relation":{},"ISSN":["0007-1048","1365-2141"],"issn-type":[{"value":"0007-1048","type":"print"},{"value":"1365-2141","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,6,23]]},"assertion":[{"value":"2018-12-11","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-04-23","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-06-23","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}