{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T00:47:05Z","timestamp":1747183625978,"version":"3.40.5"},"reference-count":10,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2023,2,16]],"date-time":"2023-02-16T00:00:00Z","timestamp":1676505600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Br J Haematol"],"published-print":{"date-parts":[[2023,6]]},"abstract":"<jats:p>Registries constitute an interesting source of real\u2010world data and bring complementary information to randomised controlled trials. They are of particular importance in rare diseases such as Waldenstr\u00f6m macroglobulinaemia (WM), which can present with various clinical and biological features. In their paper Uppal and colleagues describe the development of the Rory Morrison Registry, the UK registry for WM and IgM\u2010related disorders and highlight the profound changes in therapies both at first\u2010line and relapsed settings in the recent years.<\/jats:p><jats:p>Commentary on: Uppal E. et al. The WMUK Rory Morrison Registry for Waldenstr\u00f6m Macroglobulinaemia: the growth of a national registry for a rare disorder. <jats:italic>Br J Haematol<\/jats:italic>. 2023;201:905\u2010912.<\/jats:p>","DOI":"10.1111\/bjh.18695","type":"journal-article","created":{"date-parts":[[2023,2,16]],"date-time":"2023-02-16T13:29:25Z","timestamp":1676554165000},"page":"809-810","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Born in the <scp>UK<\/scp>: A registry to improve and broadcast knowledge on Waldenstr\u00f6m macroglobulinaemia"],"prefix":"10.1111","volume":"201","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3463-0089","authenticated-orcid":false,"given":"Eric","family":"Durot","sequence":"first","affiliation":[{"name":"Department of Hematology University Hospital of Reims and UFR M\u00e9decine  Reims France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1430-2574","authenticated-orcid":false,"given":"Alain","family":"Delmer","sequence":"additional","affiliation":[{"name":"Department of Hematology University Hospital of Reims and UFR M\u00e9decine  Reims France"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,2,16]]},"reference":[{"key":"e_1_2_2_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjh.18680"},{"key":"e_1_2_2_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.25961"},{"key":"e_1_2_2_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.26807"},{"key":"e_1_2_2_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.26173"},{"key":"e_1_2_2_6_1","article-title":"Patient reported outcome measures in Waldenstr\u00f6m macroglobulinaemia: a real\u2010world data analysis from the WMUK Rory Morrison registry","author":"Khwaja J","year":"2022","journal-title":"EJHaem"},{"key":"e_1_2_2_7_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2022.40.16_suppl.7566"},{"key":"e_1_2_2_8_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41591-022-01969-y"},{"key":"e_1_2_2_9_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.291.22.2720"},{"key":"e_1_2_2_10_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2022-164552"},{"key":"e_1_2_2_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/jha2.597"}],"container-title":["British Journal of Haematology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjh.18695","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/bjh.18695","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjh.18695","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,4,16]],"date-time":"2024-04-16T04:05:30Z","timestamp":1713240330000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/bjh.18695"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,2,16]]},"references-count":10,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2023,6]]}},"alternative-id":["10.1111\/bjh.18695"],"URL":"https:\/\/doi.org\/10.1111\/bjh.18695","archive":["Portico"],"relation":{},"ISSN":["0007-1048","1365-2141"],"issn-type":[{"type":"print","value":"0007-1048"},{"type":"electronic","value":"1365-2141"}],"subject":[],"published":{"date-parts":[[2023,2,16]]},"assertion":[{"value":"2023-02-01","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-02-01","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-02-16","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}