{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T00:48:02Z","timestamp":1747183682653,"version":"3.40.5"},"reference-count":20,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2023,10,3]],"date-time":"2023-10-03T00:00:00Z","timestamp":1696291200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Br J Haematol"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:title>Summary<\/jats:title><jats:p>We evaluated the impact of peer reviews in driving improvement in healthcare quality for people with haemoglobinopathy in the United Kingdom. We analysed compliance to four Quality Standards (QS)\u2010based peer reviews from 2010 to 2020 to evaluate its impact in driving healthcare quality. Seventeen paediatric and 29 adult haemoglobinopathy centres were reviewed in 2010\/11 and 2012\/13 respectively; 33 paediatric and 33 adult centres were reviewed in 2014\/16, and 32 paediatric and 32 adult centres were reviewed in 2018\/2020. Compliance with QS and participant feedback were analysed to assess the impact of peer review programmes to drive improvement in quality of care. We noted that haemoglobinopathy centres significantly improved their compliance to QS between the first two review programmes, but not in the final review programme. In comparison to other disease\u2010group reviews, the haemoglobinopathy departments were less able to address critical peer review recommendations in their own institutions. The peer review programme was unable to drive sustained improvement in healthcare quality, underscoring the need for sustained development and support for haemoglobinopathy services in the National Health Service. Further work is needed to understand why disparities exist among peer review\u2010driven improvement initiatives within different disease groups.<\/jats:p>","DOI":"10.1111\/bjh.19114","type":"journal-article","created":{"date-parts":[[2023,10,3]],"date-time":"2023-10-03T07:31:18Z","timestamp":1696318278000},"page":"668-676","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["<scp>UK<\/scp> Haemoglobin Disorders Peer Review: A Quality Standards\u2010based review programme for sickle cell disease and thalassaemia"],"prefix":"10.1111","volume":"204","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3862-3230","authenticated-orcid":false,"given":"S.","family":"Chakravorty","sequence":"first","affiliation":[{"name":"King's College Hospital NHS Trust  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Drasar","sequence":"additional","affiliation":[{"name":"Whittington Hospital NHS Trust  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"B.","family":"Kaya","sequence":"additional","affiliation":[{"name":"Barts Health NHS Trust  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4056-8026","authenticated-orcid":false,"given":"R.","family":"Kesse\u2010Adu","sequence":"additional","affiliation":[{"name":"Guy's and St Thomas's Hospital NHS Trust  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Velangi","sequence":"additional","affiliation":[{"name":"Birmingham Children's Hospital NHS Trust  Birmingham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Wright","sequence":"additional","affiliation":[{"name":"Sheffield Teaching Hospitals NHS Trust  Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9363-6531","authenticated-orcid":false,"given":"J.","family":"Howard","sequence":"additional","affiliation":[{"name":"Guy's and St Thomas's Hospital NHS Trust  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,10,3]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"NHS Screening Programmes.Data collection and performance analysis report \u2013 newborn blood spot screening 2015\/16. Public Health England. [cited 2023 September 30].https:\/\/www.gov.uk\/government\/publications\/newborn\u2010blood\u2010spot\u2010screening\u2010data\u2010collectionand\u2010performance\u2010analysis\u2010report"},{"key":"e_1_2_12_3_1","unstructured":"National Haemoglobinopathy Register.National Haemoglobinopathy Register [Internet]; 2016. [cited 2023 September 19]. 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A report of the National Confidential Enquiry of Patient Outcome and Death. 2008."},{"key":"e_1_2_12_10_1","unstructured":"West Midlands Quality Review Service.Services for children and young people with haemoglobin disorders peer review programme 2010\u20132011: Overview Report 2011. 2011."},{"key":"e_1_2_12_11_1","unstructured":"West Midlands Quality Review Service.Overview report\u20102012\/2013 \u2013 adults with haemoglobin disorders. 2013. [cited 2023 September 19]. Available from:http:\/\/www.wmqrs.nhs.uk\/review\u2010programmes\/view\/haemoglobin\u2010disorders\u20102012\u201013\u2010reviews\u2010adults"},{"key":"e_1_2_12_12_1","unstructured":"West Midlands Quality Review Service.Overview report \u2013 services for people with haemoglobin disorders 2014\u20132016. 2016."},{"key":"e_1_2_12_13_1","unstructured":"UK Forum on Haemoglobin Disorders.Health services for people with haemoglobin disorders \u2013 an overview report UK. November 2020."},{"key":"e_1_2_12_14_1","unstructured":"UK Forum on Haemoglobin Disorders.Quality standards health services for people with haemoglobin disorders UK 2021 [Internet]. [cited 2023 September 19]. Available from:https:\/\/haemoglobin.org.uk\/quality\u2010standards\u2010for\u2010peer\u2010review\u2010of\u2010haemoglobin\u2010disorders\u20102021\/"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-0009.2005.00397.x"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.7326\/M20-7171"},{"key":"e_1_2_12_17_1","unstructured":"All Party Parliamentary Group in Sickle Cell Disease.No one's listening sickle cell APPG 2021. [cited 2023 September 19]. Available from:https:\/\/www.sicklecellsociety.org\/no\u2010ones\u2010listening\/"},{"volume-title":"Digital discovery report","year":"2023","author":"NHS Race and Health Observatory","key":"e_1_2_12_18_1"},{"key":"e_1_2_12_19_1","unstructured":"World\u2010first NHS test to curb transfusion side\u2010effects for thousands with inherited blood disorders [press release]. 2023."},{"key":"e_1_2_12_20_1","unstructured":"NHS England.National Programme of Care \u2013 Clinical Reference Groups \u2013 Haemoglobinopathies 2022.2022;[Internet]. [cited 2023 September 19]. Available from:https:\/\/www.england.nhs.uk\/commissioning\/spec\u2010services\/npc\u2010crg\/blood\u2010and\u2010infection\u2010group\u2010f\/haemoglobinopathies\/"},{"key":"e_1_2_12_21_1","unstructured":"NHS launches lifesaving sickle cell campaign [press release]. NHS England. 2022."}],"container-title":["British Journal of Haematology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjh.19114","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,2,7]],"date-time":"2024-02-07T06:05:01Z","timestamp":1707285901000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/bjh.19114"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,10,3]]},"references-count":20,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2024,2]]}},"alternative-id":["10.1111\/bjh.19114"],"URL":"https:\/\/doi.org\/10.1111\/bjh.19114","archive":["Portico"],"relation":{},"ISSN":["0007-1048","1365-2141"],"issn-type":[{"type":"print","value":"0007-1048"},{"type":"electronic","value":"1365-2141"}],"subject":[],"published":{"date-parts":[[2023,10,3]]},"assertion":[{"value":"2023-03-02","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-09-08","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-10-03","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}