{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T16:32:06Z","timestamp":1787502726754,"version":"build-2736575974"},"reference-count":47,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2020,3,9]],"date-time":"2020-03-09T00:00:00Z","timestamp":1583712000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["bpspsychub.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["British J Health Psychol"],"published-print":{"date-parts":[[2020,5]]},"abstract":"<jats:sec>\n                    <jats:label\/>\n                    <jats:sec>\n                      <jats:title>Objective<\/jats:title>\n                      <jats:p>Despite increased research into how caring for a child diagnosed with juvenile idiopathic arthritis (JIA) affects mothers, more needs to be known about ways in which such experiences transform their lives. Insight into the experiences of such mothers was sought through analysis of interviews with eight mothers and one father caring for a child with JIA.<\/jats:p>\n                    <\/jats:sec>\n                    <jats:sec>\n                      <jats:title>Design<\/jats:title>\n                      <jats:p>The study is situated within a larger project involving families with a child with JIA. A social constructionist approach was adopted and grounded theory including a \u2018negative case,\u2019 guided gathering and analysing data. Individual, semi\u2010structured interviews were conducted based on the research question: \u2018What is it like to be the mother of a child with juvenile idiopathic arthritis?\u2019<\/jats:p>\n                    <\/jats:sec>\n                    <jats:sec>\n                      <jats:title>Results<\/jats:title>\n                      <jats:p>Findings suggest that mothers find difficulty living up to the \u2018ideal mother\u2019 expected within Western society when forced to provide competing demands of age\u2010related, yet illness\u2010relevant care. The unpredictable nature of JIA means mothers face a lack of understanding from professionals so become hyper\u2010vigilant, \u2018battling\u2019 on behalf of their ill child. A self\u2010perpetuating loop develops if this is misperceived as being overprotective, leaving mothers vulnerable to being judged \u2018neurotic\u2019. However, with experience, often at an emotional cost, such mothers\u2019 confidence in managing the competing demands of caring for their ill child increases such they can navigate a positive journey from \u2018neurotic\u2019 to \u2018managing\u2019 mother.<\/jats:p>\n                    <\/jats:sec>\n                    <jats:sec>\n                      <jats:title>Conclusions<\/jats:title>\n                      <jats:p>Understanding this process could help health care professionals reduce stressful experiences faced by mothers when caring for a chronically ill child.<\/jats:p>\n                    <\/jats:sec>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:label\/>\n                    <jats:p>\n                      <jats:boxed-text content-type=\"box\" position=\"anchor\">\n                        <jats:caption>\n                          <jats:title>Statement of contribution<\/jats:title>\n                        <\/jats:caption>\n                        <jats:p>\n                          <jats:bold>\n                            <jats:italic>What is already known on this subject?<\/jats:italic>\n                          <\/jats:bold>\n                          <jats:list list-type=\"bullet\">\n                            <jats:list-item>\n                              <jats:p>Mothers of chronically ill children are often diagnosed with anxiety and depression. Such mothers will have taken over managing their child's condition, and this can include negative experiences within the health care system. Qualitative methods enable deeper understanding of the experiences of mothers of chronically ill children.<\/jats:p>\n                            <\/jats:list-item>\n                          <\/jats:list>\n                        <\/jats:p>\n                        <jats:p>\n                          <jats:bold>\n                            <jats:italic>What does the study add?<\/jats:italic>\n                          <\/jats:bold>\n                          <jats:list list-type=\"bullet\">\n                            <jats:list-item>\n                              <jats:p>Potentially gendered position of mothers of children with chronic conditions.<\/jats:p>\n                            <\/jats:list-item>\n                            <jats:list-item>\n                              <jats:p>Taken for granted assumptions implicitly underpin interactions between mothers and some professionals.<\/jats:p>\n                            <\/jats:list-item>\n                            <jats:list-item>\n                              <jats:p>Greater partnership between mothers and professionals ultimately improves the care of the ill child.<\/jats:p>\n                            <\/jats:list-item>\n                          <\/jats:list>\n                        <\/jats:p>\n                      <\/jats:boxed-text>\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/bjhp.12409","type":"journal-article","created":{"date-parts":[[2020,3,9]],"date-time":"2020-03-09T14:50:13Z","timestamp":1583765413000},"page":"324-338","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["From \u2018neurotic\u2019 to \u2018managing\u2019 mother: The \u2018medical career\u2019 experienced by mothers of a child diagnosed with Juvenile Idiopathic Arthritis"],"prefix":"10.1111","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3996-5371","authenticated-orcid":false,"given":"Jennifer M.","family":"Waite\u2010Jones","sequence":"first","affiliation":[{"name":"School of Healthcare University of Leeds  UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8504-4704","authenticated-orcid":false,"given":"Veronica","family":"Swallow","sequence":"additional","affiliation":[{"name":"Department of Nursing and Midwifery Sheffield Hallam University  UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9406-507X","authenticated-orcid":false,"given":"Anna","family":"Madill","sequence":"additional","affiliation":[{"name":"School of Psychology University of Leeds  UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,3,9]]},"reference":[{"key":"e_1_2_10_2_1","volume-title":"How many qualitative interviews is enough?","author":"Baker S. 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