{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,30]],"date-time":"2025-10-30T07:16:41Z","timestamp":1761808601066,"version":"build-2065373602"},"reference-count":47,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2023,7,6]],"date-time":"2023-07-06T00:00:00Z","timestamp":1688601600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100007602","name":"Programme Grants for Applied Research","doi-asserted-by":"publisher","award":["RP\u2010PG\u20101212\u201020009"],"award-info":[{"award-number":["RP\u2010PG\u20101212\u201020009"]}],"id":[{"id":"10.13039\/501100007602","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bpspsychub.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["British J Health Psychol"],"published-print":{"date-parts":[[2023,11]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Rigorous photoprotection is the only means to prevent skin cancer in people with the rare condition of xeroderma pigmentosum (XP). We conducted a qualitative process evaluation of patient experiences and responses to a highly personalized, multi\u2010component intervention, \u2018XPAND\u2019, designed to influence the psychosocial determinants of inadequate photoprotection among adults with XP.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Qualitative study of 15 patients following participation in a RCT.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Semi\u2010structured interviews explored acceptability, changes in photoprotection and attributions for behavioural changes. Analysis followed a framework approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Participants were overwhelmingly positive in their views of the quality and range of components of XPAND and the relevance to their personal photoprotection barriers. All participants reported improved adherence to at least one photoprotection activity and nearly two\u2010thirds of participants noted improvements across multiple activities. Participants believed improvements in their photoprotection behaviours were influenced by different change mechanisms. Sunscreen application, was mainly facilitated by habit formation, prompted by text messages, whereas the wearing of a photoprotective face buff was influenced by strategies, learnt during one\u2010to\u2010one sessions, to overcome worry about looking different. Enhancement of general self\u2010confidence and perceived support from XPAND described by participants facilitated change more broadly.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Exploration of responses to XPAND is required in the international XP population, followed by adaptation and evaluation to see if it could benefit other patient groups at higher risk of skin cancer. Implications for approaches to behaviour change include the acceptability of complex multidimensional interventions, the importance of dynamic personalization and the interactive nature of behaviour change mechanisms.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/bjhp.12675","type":"journal-article","created":{"date-parts":[[2023,7,6]],"date-time":"2023-07-06T22:51:14Z","timestamp":1688683874000},"page":"1113-1131","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Acceptability and influence of a complex personalized intervention on changes in photoprotection behaviours among people with xeroderma pigmentosum"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7396-0182","authenticated-orcid":false,"given":"Jessica","family":"Walburn","sequence":"first","affiliation":[{"name":"School of Cancer and Pharmaceutical Sciences King's College London  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lesley","family":"Foster","sequence":"additional","affiliation":[{"name":"National Xeroderma Pigmentosum Service Guy's and St. Thomas' NHS Foundation Trust  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vera","family":"Ara\u00fajo\u2010Soares","sequence":"additional","affiliation":[{"name":"Division of Prevention, Center for Preventive Medicine and Digital Health (CPD), Medical Faculty Mannheim Heidelberg University  Heidelberg Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Robert","family":"Sarkany","sequence":"additional","affiliation":[{"name":"National Xeroderma Pigmentosum Service Guy's and St. Thomas' NHS Foundation Trust  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John","family":"Weinman","sequence":"additional","affiliation":[{"name":"School of Cancer and Pharmaceutical Sciences King's College London  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kirby","family":"Sainsbury","sequence":"additional","affiliation":[{"name":"Faculty of Medical Sciences, Institute of Health &amp; Society Newcastle University  Newcastle upon Tyne UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Myfanwy","family":"Morgan","sequence":"additional","affiliation":[{"name":"School of Cancer and Pharmaceutical Sciences King's College London  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,7,6]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/09546630600688515"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2012.745935"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105317714643"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2016.10.042"},{"volume-title":"Planning health promotion programs: An intervention mapping approach","year":"2016","author":"Bartholomew Eldredge L. K.","key":"e_1_2_12_6_1"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.2010.083022"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/1748\u20105908\u20107\u201037"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.2147\/PRBM.S40457"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1073\/pnas.1519444113"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2016.02.1236"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12160\u2010014\u20109593\u2010z"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.22050"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.89.9.1322"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.brat.2005.06.006"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2022.2146112"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10865\u2010009\u20109219\u20102"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dnarep.2008.01.014"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1080\/17437199.2015.1077155"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1001\/archderm.1994.01690080084012"},{"key":"e_1_2_12_21_1","doi-asserted-by":"publisher","DOI":"10.1080\/17437199.2016.1151372"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10865\u2010016\u20109782\u20102"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12160\u2010013\u20109486\u20106"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1352465809005128"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.h1258"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen\u20102018\u2010024445"},{"key":"e_1_2_12_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00432\u2010015\u20102086\u2010z"},{"key":"e_1_2_12_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.brat.2017.07.002"},{"key":"e_1_2_12_29_1","doi-asserted-by":"publisher","DOI":"10.1037\/0033\u20102909.133.4.673"},{"key":"e_1_2_12_30_1","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0000000000000388"},{"key":"e_1_2_12_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468\u20103083.2006.01771.x"},{"volume-title":"Qualitative research practice: A guide for social science students and researchers","year":"2003","author":"Ritchie J.","key":"e_1_2_12_32_1"},{"key":"e_1_2_12_33_1","doi-asserted-by":"publisher","DOI":"10.1037\/hea0000673"},{"key":"e_1_2_12_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjhp.12287"},{"key":"e_1_2_12_35_1","doi-asserted-by":"publisher","DOI":"10.1080\/21642850.2020.1840379"},{"key":"e_1_2_12_36_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1464\u20100597.2007.00325.x"},{"key":"e_1_2_12_37_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913\u2010017\u20102031\u20108"},{"key":"e_1_2_12_38_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n2061"},{"key":"e_1_2_12_39_1","doi-asserted-by":"publisher","DOI":"10.1111\/phpp.12108"},{"key":"e_1_2_12_40_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjhp.12396"},{"key":"e_1_2_12_41_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjhp.12375"},{"key":"e_1_2_12_42_1","unstructured":"Walburn J. Norton S. Sarkany R. Canfield M. Sainsbury K. McCrone P. Morgan M. Ara\u00fajo\u2010Soares V. Boadu J. Foster L. Heydenreich J. Nemec M. Mander A. Sniehotta F. Wulf H. &Weinman J.(n.d.).A personalised and systematically designed intervention improves photoprotection in adults with Xeroderma Pigmentosum (XP): Results of the XPAND trial."},{"key":"e_1_2_12_43_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen\u20102018\u2010028577"},{"key":"e_1_2_12_44_1","doi-asserted-by":"publisher","DOI":"10.1080\/21642850.2020.1819287"},{"key":"e_1_2_12_45_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen\u20102017\u2010018364"},{"key":"e_1_2_12_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/phpp.12292"},{"key":"e_1_2_12_47_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ypmed.2016.04.010"},{"key":"e_1_2_12_48_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2016.09.038"}],"container-title":["British Journal of Health Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjhp.12675","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,29]],"date-time":"2025-10-29T16:43:57Z","timestamp":1761756237000},"score":1,"resource":{"primary":{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/10.1111\/bjhp.12675"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,7,6]]},"references-count":47,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2023,11]]}},"alternative-id":["10.1111\/bjhp.12675"],"URL":"https:\/\/doi.org\/10.1111\/bjhp.12675","archive":["Portico"],"relation":{},"ISSN":["1359-107X","2044-8287"],"issn-type":[{"type":"print","value":"1359-107X"},{"type":"electronic","value":"2044-8287"}],"subject":[],"published":{"date-parts":[[2023,7,6]]},"assertion":[{"value":"2022-05-13","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-05-23","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-07-06","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}