{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T17:35:02Z","timestamp":1790876102672,"version":"4.1.0"},"reference-count":49,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T00:00:00Z","timestamp":1778198400000},"content-version":"vor","delay-in-days":7,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100003921","name":"Department of Health, Disability and Ageing","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003921","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bpspsychub.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["British J Health Psychol"],"published-print":{"date-parts":[[2026,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Adolescents with inflammatory bowel disease (IBD) experience disruptions to normal adolescent development. Lack of preparation for transition from paediatric to adult care can have negative biopsychosocial outcomes. We aimed to explore adolescents' perspectives on how IBD affects their lives. Additionally, we aimed to understand adolescents and their parents' views on transition from paediatric to adult IBD care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Qualitative study. Adolescents and parents participated in semi\u2010structured interviews together.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Participants included eight adolescents with IBD (four females; four with Crohn's disease, two with ulcerative colitis and two with IBD\u2010U; mean age\u2009=\u200916) and their parent(s) (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20099). Data were analyzed using template thematic analysis.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Three themes were identified that reflected how IBD conflicts with typical adolescent development because of the need for careful planning to manage the disease and its symptoms (e.g., loss of bowel control, fatigue). They also described the active role parents currently play in managing their child's IBD, from managing medication to organizing appointments and communicating with healthcare professionals. Anxiety and apprehension of adolescent participants towards transitioning from adolescent to adult care were also captured.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Healthcare providers and carers must work together with adolescents with IBD to ensure they are ready for adult care, where they will need to take sole responsibility for managing their chronic condition.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/bjhp.70079","type":"journal-article","created":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T14:02:49Z","timestamp":1778248969000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["\u201cShe just wants to be a normal kid\u201d: Adolescents with inflammatory bowel disease and their caregivers' transition from paediatric to adult care"],"prefix":"10.1111","volume":"31","author":[{"given":"Mikayla","family":"de Gooyer","sequence":"first","affiliation":[{"name":"School of Psychology Deakin University  Burwood Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew I.","family":"Mackay","sequence":"additional","affiliation":[{"name":"School of Psychology Deakin University  Burwood Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4864-3956","authenticated-orcid":false,"given":"Antonina","family":"Mikocka\u2010Walus","sequence":"additional","affiliation":[{"name":"School of Psychology Deakin University  Burwood Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yao Coitinho","family":"Biurra","sequence":"additional","affiliation":[{"name":"School of Psychology Deakin University  Burwood Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine","family":"Emerson","sequence":"additional","affiliation":[{"name":"School of Psychology Deakin University  Burwood Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Klas","sequence":"additional","affiliation":[{"name":"School of Psychology Deakin University  Burwood Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leanne","family":"Raven","sequence":"additional","affiliation":[{"name":"Crohn's &amp; Colitis Australia  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wayne","family":"Massuger","sequence":"additional","affiliation":[{"name":"Crohn's &amp; Colitis Australia  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Edward M.","family":"Giles","sequence":"additional","affiliation":[{"name":"Centre for Innate Immunity and Infectious Diseases, Hudson Institute of Medical Research  Melbourne Victoria Australia"},{"name":"Department of Paediatrics Monash University  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Subhadra","family":"Evans","sequence":"additional","affiliation":[{"name":"School of Psychology Deakin University  Burwood Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,5,8]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.glmedi.2024.100051"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1590\/1984-0462\/2022\/40\/2020385"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0889-8553(05)70064-9"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/1090198104263660"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1177\/10497323211046577"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1093\/jcag\/gwae002"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1037\/bul0000473"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2014.955224"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/jcag\/gwy056"},{"issue":"12","key":"e_1_2_10_11_1","article-title":"Promotion of self\u2010Management of Chronic Disease in children and teenagers: Scoping review","volume":"9","author":"Catarino M.","year":"2021","journal-title":"Healthcare (Basel, Switzerland)"},{"key":"e_1_2_10_12_1","volume-title":"IBD paediatric quality of care: Hospital audit 2023","author":"CCA","year":"2023"},{"key":"e_1_2_10_13_1","volume-title":"State of the nation in IBD in Australia: Final report","author":"CCA","year":"2025"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00384-025-04821-0"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/10497323241265329"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.330.7486.301"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2016-014650"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2015.04.012"},{"key":"e_1_2_10_19_1","volume-title":"Inflammatory bowel disease Paediatric quality of care: Patient experience survey 2023","author":"Crohn's & Colitis Australia","year":"2023"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1155\/2014\/703890"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1014628810714"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2021.01.026"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1080\/13645579.2016.1144401"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2018.07.017"},{"issue":"10","key":"e_1_2_10_25_1","article-title":"Transition of adolescents with inflammatory bowel disease\u2010are the pediatric teams up to the task?","volume":"8","author":"Hald M.","year":"2021","journal-title":"Children (Basel, Switzerland)"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1093\/pch\/pxae013"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.3390\/children9030309"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41598-023-39289-x"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPG.0000000000000473"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291718000788"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0954579421001632"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.1111\/apa.14918"},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPG.0000000000001526"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1002\/j.1536-4801.1999.tb02839.x"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13384-022-00535-2"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dld.2020.02.009"},{"key":"e_1_2_10_37_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-5-28"},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13693"},{"key":"e_1_2_10_39_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2352-4642(20)30186-3"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.2174\/1874350101508010113"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10880-021-09805-0"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2015.1982"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPG.0000000000000359"},{"key":"e_1_2_10_44_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2352-4642(18)30022-1"},{"key":"e_1_2_10_45_1","doi-asserted-by":"publisher","DOI":"10.1080\/02673843.2013.866148"},{"key":"e_1_2_10_46_1","doi-asserted-by":"publisher","DOI":"10.1002\/ibd.22997"},{"issue":"1","key":"e_1_2_10_47_1","article-title":"Adolescents with chronic illnesses: School absenteeism, perceived peer aggression, and loneliness","volume":"5","author":"Shute R. H.","year":"2005","journal-title":"The Scientific World Journal"},{"key":"e_1_2_10_48_1","doi-asserted-by":"publisher","DOI":"10.1002\/jgh3.13032"},{"key":"e_1_2_10_49_1","doi-asserted-by":"publisher","DOI":"10.1093\/ibd\/izae087"},{"key":"e_1_2_10_50_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2025.1483021"}],"container-title":["British Journal of Health Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjhp.70079","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/bjhp.70079","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjhp.70079","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,26]],"date-time":"2026-05-26T07:07:21Z","timestamp":1779779241000},"score":1,"resource":{"primary":{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/10.1111\/bjhp.70079"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5]]},"references-count":49,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2026,5]]}},"alternative-id":["10.1111\/bjhp.70079"],"URL":"https:\/\/doi.org\/10.1111\/bjhp.70079","archive":["Portico"],"relation":{},"ISSN":["1359-107X","2044-8287"],"issn-type":[{"value":"1359-107X","type":"print"},{"value":"2044-8287","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5]]},"assertion":[{"value":"2025-11-19","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-04-22","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-05-08","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70079"}}