{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T14:04:26Z","timestamp":1790172266139,"version":"4.1.0"},"reference-count":66,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2026,7,10]],"date-time":"2026-07-10T00:00:00Z","timestamp":1783641600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,7,10]],"date-time":"2026-07-10T00:00:00Z","timestamp":1783641600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["bpspsychub.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["British J Health Psychol"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Cervical cancer screening attendance among women with intellectual disabilities (ID) in Scotland is approximately 30%, significantly below the general population rate of 69% and the WHO's recommended 70% target. HPV self\u2010sampling could provide a more accessible screening option for this underserved population. This study aimed to understand the views and experiences of women with ID regarding cervical cancer screening and the acceptability of HPV self\u2010sampling.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A qualitative study using focus groups was conducted with women with ID who attended third\u2010sector community groups across Scotland, along with their carers. Four focus groups were held between September and October 2024, with a total of 13 participants (11 women with ID, 2 carers). Data were analysed using reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Five main themes emerged: (1) National Health Service (NHS) communication as a source of distress; (2) power imbalances between health care providers and women with ID: feeling unheard, dismissed and out of control; (3) enduring consequences of inadequate care; (4) past trauma shapes future avoidance; and (5) self\u2010sampling as a pathway to empowerment. Participants demonstrated high acceptability of self\u2010sampling, viewing it as a potential solution to overcome barriers to traditional screening.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This research reveals significant systemic inadequacies in current cervical cancer screening services for women with ID, whilst highlighting self\u2010sampling's transformative potential. Successful implementation requires comprehensive accessible information, enhanced health care professional training and trauma\u2010informed care approaches. Self\u2010sampling could significantly advance health equity goals whilst improving health care outcomes for this underserved population.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/bjhp.70092","type":"journal-article","created":{"date-parts":[[2026,7,11]],"date-time":"2026-07-11T05:11:23Z","timestamp":1783746683000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["\u2018\u2026but look how many lives would have been saved if this was available then\u2019 Exploring the acceptability of future Human Papillomavirus self\u2010sampling, and the barriers and facilitators of cervical cancer screening for those with intellectual disabilities in Scotland"],"prefix":"10.1111","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0009-0008-0539-3743","authenticated-orcid":false,"given":"Catherine B.","family":"White","sequence":"first","affiliation":[{"name":"Division of Psychology University of Stirling  Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7093-1391","authenticated-orcid":false,"given":"Lesley M.","family":"McGregor","sequence":"additional","affiliation":[{"name":"Division of Psychology University of Stirling  Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,10]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/0749\u20105978(91)90020\u2010T"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.k4823"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0003\u20106870(00)00031\u20104"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41416\u2010018\u20100029\u20106"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/10732748211055268"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.4126"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rasd.2017.11.002"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.3399\/bjgpopen20X101030"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13690\u2010025\u201001517\u20103"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/phn.12944"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.13110"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/ijc.26128"},{"key":"e_1_2_12_15_1","volume-title":"Health program planning: An education and ecological approach","author":"Green L.","year":"2005"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.7748\/ldp2010.09.13.7.14.c7975"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nurpra.2025.105504"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2023.36213"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2019.12.013"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/109019818401100101"},{"key":"e_1_2_12_21_1","unstructured":"Jo's Cervical Cancer Trust. (2019).Behind the headlines: HPV self\u2010sampling. Retrieved March 6 2024 fromhttps:\/\/www.jostrust.org.uk\/about\u2010us\/news\u2010and\u2010blog\/blog\/behind\u2010headlines\u2010hpv\u2010self\u2010sampling"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12905\u2010020\u201001158\u20104"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12939\u2010021\u201001509\u2010z"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12885\u2010024\u201012044\u20109"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1093\/geronb\/gbu161"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.2147\/IJWH.S428144"},{"key":"e_1_2_12_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmedr.2020.101223"},{"key":"e_1_2_12_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jmir.2016.12.002"},{"key":"e_1_2_12_29_1","unstructured":"Learning Disabilities Cancer Strategic Group. (2009).Best practice in cervical screening for women with learning disabilities. Retrieved November 14 2024 fromhttps:\/\/www.choiceforum.org\/docs\/bestprac.pdf"},{"key":"e_1_2_12_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2024.102672"},{"key":"e_1_2_12_31_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315617444"},{"key":"e_1_2_12_32_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41416\u2010019\u20100564\u20109"},{"key":"e_1_2_12_33_1","unstructured":"Mencap. (2020).How common is learning disability. [Fact sheet]. Retrieved fromhttps:\/\/www.mencap.org.uk\/learning\u2010disability\u2010explained\/research\u2010and\u2010statistics\/how\u2010common\u2010learning\u2010disability"},{"key":"e_1_2_12_34_1","doi-asserted-by":"publisher","DOI":"10.1186\/1748\u20105908\u20106\u201042"},{"key":"e_1_2_12_35_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12885\u2010024\u201012607\u2010w"},{"key":"e_1_2_12_36_1","unstructured":"NHS Greater Glasgow and Clyde. (2024).NHSGGC is improving access to life\u2010saving cancer screening. Retrieved fromhttps:\/\/live.nhsggc.scot\/nhsggc\u2010is\u2010improving\u2010access\u2010to\u2010life\u2010saving\u2010cancer\u2010screening\/#:~:text=26\/07\/2024 for%20people%20with%20learning%20disabilities"},{"key":"e_1_2_12_37_1","unstructured":"NHS North Central London Cancer Alliance. (2021).YouScreen cervical screening made easier. Retrieved fromhttps:\/\/www.nclcanceralliance.nhs.uk\/our\u2010work\/primary\u2010care\/gp\u2010info\u2010youscreen\/#:~:text=Women%20who%20are%20HPV%20positive prevent%20cervical%20cancer%20from%20developing"},{"key":"e_1_2_12_38_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjgh\u20102020\u2010003743"},{"key":"e_1_2_12_39_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12417"},{"key":"e_1_2_12_40_1","doi-asserted-by":"publisher","DOI":"10.1352\/2008.46:411\u2010426"},{"key":"e_1_2_12_41_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2023.1072362"},{"key":"e_1_2_12_42_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2024.1379497"},{"key":"e_1_2_12_43_1","unstructured":"Public Health Scotland. (2022a).Cervical screening \u2013 HPV testing and change of routine screening Intervals: Frequently asked questions for professionals. [Fact sheet]. Retrieved fromhttps:\/\/apps.nhslothian.scot\/files\/sites\/2\/changes\u2010to\u2010cervical\u2010screening\u2010programme\u2010faq.pdf"},{"key":"e_1_2_12_44_1","volume-title":"Scottish burden of disease study: Forecasting the future burden of disease: Incorporating the impact of demographic transition over the next 20\u2009years","author":"Public Health Scotland","year":"2022"},{"key":"e_1_2_12_45_1","unstructured":"Public Health Scotland. (2023).Scottish cervical screening programme statistics: Annual update to 31March 2022. Retrieved fromhttps:\/\/publichealthscotland.scot\/publications\/scottish\u2010cervical\u2010screening\u2010programme\u2010statistics\/scottish\u2010cervical\u2010screening\u2010programme\u2010statistics\u2010annual\u2010update\u2010to\u201031\u2010march\u20102022\/"},{"key":"e_1_2_12_46_1","unstructured":"Quirkos. (2023).Quirkos 2.5.3. [Computer Software]. Retrieved fromhttps:\/\/www.quirkos.com"},{"key":"e_1_2_12_47_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmedr.2021.101427"},{"key":"e_1_2_12_48_1","doi-asserted-by":"publisher","DOI":"10.1177\/1090198115571364"},{"key":"e_1_2_12_49_1","unstructured":"Royal College of General Practitioners. (2017).Learning disability toolkit. Retrieved fromhttps:\/\/www.rcgp.org.uk\/clinical\u2010and\u2010research\/resources\/toolkits\/learning\u2010disability\u2010toolkit"},{"key":"e_1_2_12_50_1","unstructured":"Scottish Government. (2023).Health screening: Equity in screening strategy 2023 to 2026. Retrieved fromhttps:\/\/www.gov.scot\/publications\/scottish\u2010equity\u2010screening\u2010strategy\u20102023\u20102026\/pages\/7\/"},{"key":"e_1_2_12_51_1","unstructured":"Scottish Parliament. (2025).Question reference: S6W\u201038966 [date lodged: 25 June 2025]. Retrieved September 14 2025 fromhttps:\/\/www.parliament.scot\/chamber\u2010and\u2010committees\/questions\u2010and\u2010answers\/question?ref=S6W\u201038966"},{"key":"e_1_2_12_52_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913\u2010017\u20102031\u20108"},{"key":"e_1_2_12_53_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ypmed.2021.106900"},{"key":"e_1_2_12_54_1","doi-asserted-by":"publisher","DOI":"10.1352\/1934\u20109556\u201048.5.375"},{"key":"e_1_2_12_55_1","doi-asserted-by":"publisher","DOI":"10.5694\/mja15.00912"},{"key":"e_1_2_12_56_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471\u20102458\u201012\u201080"},{"key":"e_1_2_12_57_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ypmed.2010.01.007"},{"key":"e_1_2_12_58_1","unstructured":"UK Government. (2025).UK NSC recommends HPV self\u2010sampling option for under\u2010screened women in cervical screening programme. Retrieved September 12 2025 fromhttps:\/\/nationalscreening.blog.gov.uk\/2025\/06\/24\/uk\u2010nsc\u2010recommends\u2010hpv\u2010self\u2010sampling\u2010option\u2010for\u2010under\u2010screened\u2010women\u2010in\u2010cervical\u2010screening\u2010programme\/"},{"key":"e_1_2_12_59_1","doi-asserted-by":"publisher","DOI":"10.1177\/09691413231205965"},{"key":"e_1_2_12_60_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen\u20102024\u2010084421"},{"key":"e_1_2_12_61_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjon.2008.17.8.29205"},{"key":"e_1_2_12_62_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2022.2050230.2024"},{"key":"e_1_2_12_63_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmedr.2022.101947"},{"key":"e_1_2_12_64_1","unstructured":"Welsh Government. (2025).Written Statement: Self\u2010sampling in the cervical screening programme in Wales. Retrieved September 14 2025 fromhttps:\/\/www.gov.wales\/written\u2010statement\u2010self\u2010sampling\u2010cervical\u2010screening\u2010programme\u2010wales"},{"key":"e_1_2_12_65_1","unstructured":"World Health Organisation. (2021).New recommendations for screening and treatment to prevent cervical cancer. Retrieved fromhttps:\/\/www.who.int\/news\/item\/06\u201007\u20102021\u2010new\u2010recommendations\u2010for\u2010screening\u2010and\u2010treatment\u2010to\u2010prevent\u2010cervical\u2010cancer"},{"key":"e_1_2_12_66_1","unstructured":"World Health Organisation. (2024).Cervical cancer. [Fact sheet]. Retrieved fromhttps:\/\/www.who.int\/news\u2010room\/fact\u2010sheets\/detail\/cervical\u2010cancer"},{"key":"e_1_2_12_67_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889\u2010024\u201021096\u20102"}],"container-title":["British Journal of Health Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjhp.70092","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/bjhp.70092","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/bjhp.70092","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T13:22:30Z","timestamp":1790169750000},"score":1,"resource":{"primary":{"URL":"https:\/\/bpspsychub.onlinelibrary.wiley.com\/doi\/10.1111\/bjhp.70092"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7,10]]},"references-count":66,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/bjhp.70092"],"URL":"https:\/\/doi.org\/10.1111\/bjhp.70092","archive":["Portico"],"relation":{},"ISSN":["1359-107X","2044-8287"],"issn-type":[{"value":"1359-107X","type":"print"},{"value":"2044-8287","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,10]]},"assertion":[{"value":"2025-10-12","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-25","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-07-10","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70092"}}