{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,14]],"date-time":"2026-02-14T00:15:17Z","timestamp":1771028117978,"version":"3.50.1"},"reference-count":19,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2013,11,22]],"date-time":"2013-11-22T00:00:00Z","timestamp":1385078400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Foundation of Nursing Studies"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2014,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Neurogenic bowel dysfunction in children is a lifelong condition often resulting in the need for active bowel management programmes, such as transanal irrigation. Parents are central in the decision\u2010making process to initiate and carry out treatments until such a time their child becomes independent. Minimal research has focussed on examining parents' experiences of undertaking transanal irrigation with their child. This study aimed to explore parents' experiences of learning about and using irrigation with their child and how parents motivated their children to become independent.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Semi\u2010structured telephone interviews were conducted with parents with experience of using transanal irrigation with their child. Interviews were undertaken by a parent researcher. Data were analysed using qualitative content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Eighteen telephone interviews (16 mothers, 1 father and 1 carer) were conducted. Parents shared how they had negotiated getting started and using transanal irrigation with their child. They discussed a sense of success derived from their confidence in using and mastering irrigation, the process of making decisions to continue or stop using irrigation and how they motivated themselves and their child to continue with the irrigation regime. Challenges included minimizing their child's distress during the irrigation procedure and how they negotiated and moved towards their child becoming independent.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Despite the emotional difficulty parents experienced as a result of the invasive nature of transanal irrigation most parents reported an improvement in their child's faecal continence which positively impacted on the child and family's lives. The child's physical ability and emotional readiness to develop independent irrigation skills in the future concerned some parents. The experiences shared by parents in this study has the capacity to inform transanal irrigation nursing and medical care.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12117","type":"journal-article","created":{"date-parts":[[2013,11,23]],"date-time":"2013-11-23T01:15:09Z","timestamp":1385169309000},"page":"863-869","source":"Crossref","is-referenced-by-count":14,"title":["Parents of children with neurogenic bowel dysfunction: their experiences of using transanal irrigation with their child"],"prefix":"10.1111","volume":"40","author":[{"given":"C.","family":"Sanders","sequence":"first","affiliation":[{"name":"Children's Nursing Research Unit Alder Hey Children's Hospital  Liverpool UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.","family":"Bray","sequence":"additional","affiliation":[{"name":"The Children's Nursing Research Unit Edge Hill University, Alder Hey  Liverpool UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.","family":"Driver","sequence":"additional","affiliation":[{"name":"Aberdeen Children's Hospital  Aberdeen UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"V.","family":"Harris","sequence":"additional","affiliation":[{"name":"Parent Co\u2010researcher, Scope  Liverpool UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2013,11,22]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1089\/lap.2006.16.168"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1038\/sc.2009.186"},{"key":"e_1_2_9_4_1","doi-asserted-by":"crossref","first-page":"601","DOI":"10.1093\/ptj\/82.6.601","article-title":"Neurogenic bladder, neurogenic bowel, and sexual dysfunction in people with spinal cord injury","volume":"82","author":"Benevento B. T.","year":"2002","journal-title":"Physical Therapy"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1038\/sc.2012.146"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.3109\/00365520903583855"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04569.x"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1038\/sc.2013.86"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcf.2011.10.006"},{"key":"e_1_2_9_10_1","unstructured":"FoNS(2012)An action research project exploring the utility of rectal irrigation in children from a professional and parent perspective(study report) [on line]. Available at:http:\/\/www.fons.org\/library\/report\u2010details.aspx?nstid=24405(accessed from 27 February 2013)."},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/22.2.167"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"e_1_2_9_13_1","first-page":"112","article-title":"Qualitative content analysis: a guide to paths not taken","volume":"3","author":"Miles M. B.","year":"1994","journal-title":"Qualitative Health Research"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(04)17445-X"},{"key":"e_1_2_9_15_1","unstructured":"Nisell M.(2005)Psychosocial consequences of high and intermediate imperforate anus. Published Thesis Karlinska Institute. Karolinska University Press Sweden."},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2007.09.004"},{"key":"e_1_2_9_17_1","article-title":"Examining professionals' and parents' views of using transanal irrigation with children: understanding their experiences to develop a shared health resource for education and practice","author":"Sanders C.","year":"2013","journal-title":"Journal of Child Health Care"},{"key":"e_1_2_9_18_1","volume-title":"Qualitative Research. 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