{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T17:34:38Z","timestamp":1787506478549,"version":"build-2736575974"},"reference-count":40,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2014,5,6]],"date-time":"2014-05-06T00:00:00Z","timestamp":1399334400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Stichting Belang Gebrekkige Kind Adelante"},{"name":"Zuyd Hogeschool"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2015,1]]},"abstract":"Abstract<\/jats:title>\n \n Background<\/jats:title>\n The aim was to provide an overview of the number, domains and priority of needs as expressed by parents in supporting participation of their school\u2010aged child with a physical disability. Additionally, this study investigated whether the number of needs within each domain is related to the child's gross motor function level, parent's perceived own general health, family socio\u2010economic status and family type.<\/jats:p>\n <\/jats:sec>\n \n Method<\/jats:title>\n \n A cross\u2010sectional study with a total of 146 participants (84.9% mothers) who completed a survey including the\n F<\/jats:styled-content>\n amily\n N<\/jats:styled-content>\n eeds\n I<\/jats:styled-content>\n nventory \u2013\n P<\/jats:styled-content>\n aediatric\n R<\/jats:styled-content>\n ehabilitation, the\n G<\/jats:styled-content>\n ross\n M<\/jats:styled-content>\n otor\n F<\/jats:styled-content>\n unction\n C<\/jats:styled-content>\n lassification\n S<\/jats:styled-content>\n ystem\n F<\/jats:styled-content>\n amily\n R<\/jats:styled-content>\n eport\n Q<\/jats:styled-content>\n uestionnaire, the\n G<\/jats:styled-content>\n eneral\n H<\/jats:styled-content>\n ealth\n Q<\/jats:styled-content>\n uestionnaire and a demographic questionnaire. A need has been operationalized as \u2018a family's, parent's or other family member's expressed desire for information, services and supports related to their family\u2019. Descriptive statistics and correlation analysis were applied.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n Parents (\n n<\/jats:italic>\n = 146; response rate 27%) varied in the number of expressed needs (range 0\u2013124; mean = 35.9; median = 30;\n SD<\/jats:styled-content>\n = 25.6). Highest mean percentage scores were found for the domains \u2018Laws, regulations and fees\u2019 (36%), \u2018Leisure time\u2019 (35.6%) and \u2018Aids, adaptations, facilities and resources\u2019 (33.8%). Seven single needs were expressed by 50% or more of the parents. All domains of needs showed a positive correlation with perceived parental general health. The domains \u2018Laws, regulations and fees\u2019, \u2018Day care & school\u2019, \u2018Emotional and mental support\u2019 and \u2018Raising my child\u2019 correlated negatively with family socio\u2010economic status; and child's gross motor function level correlated positively with the domains \u2018Aids, adaptations, facilities and resources\u2019, \u2018Practical support at home\u2019 and \u2018Leisure time\u2019.\n <\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n As parents have a major influence on participation of children with a physical disability, meeting their individual needs should become an objective for service providers and policy makers. Family\u2010centred service might be more effective by putting a greater emphasis on changing the environment.<\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/cch.12145","type":"journal-article","created":{"date-parts":[[2014,5,6]],"date-time":"2014-05-06T04:07:36Z","timestamp":1399349256000},"page":"84-92","source":"Crossref","is-referenced-by-count":25,"title":["What do parents need to enhance participation of their school\u2010aged child with a physical disability? A cross\u2010sectional study in the\n N<\/scp>\n etherlands"],"prefix":"10.1111","volume":"41","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5788-958X","authenticated-orcid":false,"given":"B.","family":"Pi\u0161kur","sequence":"first","affiliation":[{"name":"Research Centre Autonomy and Participation for Persons with a Chronic Illness Faculty of Health Zuyd University of Applied Science Heerlen The Netherlands"},{"name":"Department of Occupational Therapy Faculty of Health Zuyd University of Applied Science Heerlen The Netherlands"},{"name":"Department of Rehabilitation Medicine CAPHRI, School for Public Health and Primary Care Faculty of Health, Medicine and Life Sciences Maastricht University Maastricht The Netherlands"},{"name":"Partner of NetChild, University Network for Childhood Disability Research in the Netherlands Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A. J. H. M.","family":"Beurskens","sequence":"additional","affiliation":[{"name":"Research Centre Autonomy and Participation for Persons with a Chronic Illness Faculty of Health Zuyd University of Applied Science Heerlen The Netherlands"},{"name":"Department of General Practice CAPHRI, School for Public Health and Primary Care Faculty of Health, Medicine and Life Sciences Maastricht University Maastricht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M. J.","family":"Jongmans","sequence":"additional","affiliation":[{"name":"Partner of NetChild, University Network for Childhood Disability Research in the Netherlands Utrecht The Netherlands"},{"name":"Department of Special Education Faculty of Social Sciences Utrecht University Utrecht The Netherlands"},{"name":"Department of Neonatology Wilhemina Children's Hospital University Medical Center Utrecht Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Ketelaar","sequence":"additional","affiliation":[{"name":"Partner of NetChild, University Network for Childhood Disability Research in the Netherlands Utrecht The Netherlands"},{"name":"Brain Center Rudolf Magnus and Center of Excellence for Rehabilitation Medicine University Medical Center Utrecht and De Hoogstraat Rehabilitation Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R. J. E. 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