{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2023,10,4]],"date-time":"2023-10-04T06:41:48Z","timestamp":1696401708176},"reference-count":18,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2014,7,16]],"date-time":"2014-07-16T00:00:00Z","timestamp":1405468800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2015,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>In the terminal stages of neuro\u2010metabolic diseases, parents can begin to experience a sense of loss even before the child dies, and might accept death prematurely.<\/jats:p><\/jats:sec><jats:sec><jats:title>Cases<\/jats:title><jats:p>A 2.5\u2010year\u2010old female patient with <jats:styled-content style=\"fixed-case\">S<\/jats:styled-content>andoff <jats:styled-content style=\"fixed-case\">D<\/jats:styled-content>isease (diagnosed at 9 months of age), and a 17\u2010month\u2010old male <jats:styled-content style=\"fixed-case\">K<\/jats:styled-content>rabbe patient (diagnosed at 5 months of age) were admitted to the hospital with hypernatraemic dehydration and bronchopneumonia, respectively, within 10 days of each other. Both patients developed respiratory arrest short after admission and were supported with mechanical ventilation. Both families gave written consent to end life support, but their wishes could not be accepted according to <jats:styled-content style=\"fixed-case\">T<\/jats:styled-content>urkish law.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Specialists are expected to communicate well with families and give continuous care while respecting the opinions of patients' families on the timing of the withdrawal of life support. However, ethical and legal regulations on the conduct of health care professionals in these circumstances are unclear in <jats:styled-content style=\"fixed-case\">T<\/jats:styled-content>urkey and should be developed rapidly.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12171","type":"journal-article","created":{"date-parts":[[2014,7,16]],"date-time":"2014-07-16T06:57:09Z","timestamp":1405493829000},"page":"1242-1245","source":"Crossref","is-referenced-by-count":3,"title":["Limitations in the approach health caregivers can take in end\u2010of\u2010life care decisions"],"prefix":"10.1111","volume":"41","author":[{"given":"S.","family":"B\u00fclb\u00fcl","sequence":"first","affiliation":[{"name":"Department of Pediatric Metabolic Diseases Kirikkale University School of Medicine  Kirikkale Turkey"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"S\u00fcr\u00fcc\u00fc","sequence":"additional","affiliation":[{"name":"Department of Pediatric Metabolic Diseases Kirikkale University School of Medicine  Kirikkale Turkey"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.","family":"Karavaizo\u011flu","sequence":"additional","affiliation":[{"name":"Department of Pediatric Metabolic Diseases Kirikkale University School of Medicine  Kirikkale Turkey"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Eke","sequence":"additional","affiliation":[{"name":"Department of Forensic Medicine Kirikkale University School of Medicine  Kirikkale Turkey"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2014,7,16]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2011.07.008"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-0078"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/00002727-200510000-00002"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0b013e318212244a"},{"key":"e_1_2_6_6_1","first-page":"281","article-title":"\u00d6tanazi: Ya\u015fama Hakk\u0131 A\u00e7\u0131s\u0131ndan Bir De\u011ferlendirme","volume":"60","author":"G\u00fcrcan E. 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