{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,11]],"date-time":"2026-10-11T11:33:42Z","timestamp":1791718422430,"version":"4.3.4"},"reference-count":36,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2014,10,1]],"date-time":"2014-10-01T00:00:00Z","timestamp":1412121600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/3.0\/"}],"funder":[{"name":"Alberta Children's Hospital Research Institute\/CIHR PostDoctoral Fellowship Award"},{"name":"PreHOT Team Grant - Alberta Health Innovates - Health Solutions","award":["200700595"],"award-info":[{"award-number":["200700595"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2015,9]]},"abstract":"Abstract<\/jats:title>\n \n Background<\/jats:title>\n \n Despite the benefits of Neonatal Follow\u2010Up (\n NFU<\/jats:styled-content>\n ) programs for infants at risk for developmental problems subsequent to preterm birth, non\u2010attendance continues to be a problem within\n C<\/jats:styled-content>\n anada and beyond. This study investigated the\n barriers<\/jats:italic>\n and\n facilitators<\/jats:italic>\n to attendance at\n C<\/jats:styled-content>\n anadian\n NFU<\/jats:styled-content>\n programs from mothers' and health care providers' (\n HCP<\/jats:styled-content>\n ) perspectives.\n <\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n \n In this multi\u2010site qualitative descriptive study, we conducted semi\u2010structured individual interviews with 12 mothers, six from each of two\n NFU<\/jats:styled-content>\n programs; and focus groups with 20\n HCP<\/jats:styled-content>\n s from nine\n NFU<\/jats:styled-content>\n programs. Interviews were audio\u2010recorded and transcribed and then subjected to thematic analysis.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n The predominant barriers represented a complex interplay of cumulative factors: mothers' isolation and feeling overwhelmed, with limited support, experiencing difficulty attending because of limited resources, who viewed\n NFU<\/jats:styled-content>\n as not needed until problems arose for their child. Other barriers included vulnerability and fear of bad news. Mothers reported the need to protect their vulnerable child from risks, whereas\n HCP<\/jats:styled-content>\n s reported creating vulnerability by monitoring the child's development over time.\n HCP<\/jats:styled-content>\n s perceived fear of bad news as a barrier, whereas mothers viewed that impending bad news increased their need to attend to address the issue. The predominant facilitators were support, family centred\u2010care and mothers with adequate resources.\n <\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n \n Attendance is most problematic for mothers with limited support, capacity and resources. First and foremost, targeted approaches to\n NFU<\/jats:styled-content>\n service provision are needed to address the cumulative barriers and improve experiences for mothers who find it difficult to attend\n NFU<\/jats:styled-content>\n . A continuous relationship with a single point of contact is needed and merits further investigation \u2013 a provider who works across the traditional silos of neonatal intensive care,\n NFU<\/jats:styled-content>\n and community services, minimizes duplication and navigates transitions.\n <\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/cch.12202","type":"journal-article","created":{"date-parts":[[2014,10,1]],"date-time":"2014-10-01T08:38:29Z","timestamp":1412152709000},"page":"722-733","source":"Crossref","is-referenced-by-count":63,"title":["Mothers' and health care providers' perspectives of the barriers and facilitators to attendance at\n C<\/scp>\n anadian neonatal follow\u2010up programs"],"prefix":"10.1111","volume":"41","author":[{"given":"M.","family":"Ballantyne","sequence":"first","affiliation":[{"name":"School of Nursing Faculty of Health Sciences McMaster University Hamilton ON Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Benzies","sequence":"additional","affiliation":[{"name":"Faculty of Nursing University of Calgary Calgary AB Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"P.","family":"Rosenbaum","sequence":"additional","affiliation":[{"name":"Department of Pediatrics McMaster University Hamilton ON Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Lodha","sequence":"additional","affiliation":[{"name":"Department of Paediatrics University of Calgary Calgary AB Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2014,10]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.2307\/3349613"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.65.2.192"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/00004703-198502000-00003"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1097\/JPN.0b013e31823f900b"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12015"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2393-13-S1-S10"},{"key":"e_1_2_9_8_1","volume-title":"Transforming Qualitative Information: Thematic Analysis and Code Development","author":"Boyatzis E.","year":"1998"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1754.2001.00621.x"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/oxfordjournals.aje.a116908"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.114.2.404"},{"key":"e_1_2_9_12_1","first-page":"589","article-title":"Risk status for dropping out of developmental followup for very low birth weight infants","volume":"108","author":"Catlett A. 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