{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T15:53:01Z","timestamp":1784821981152,"version":"3.55.0"},"reference-count":38,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2014,10,6]],"date-time":"2014-10-06T00:00:00Z","timestamp":1412553600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2015,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Juvenile idiopathic arthritis (<jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>) is one of the most common diseases of childhood causing pain, swelling of joints and reduced mobility. Previous research has focused on the challenges and psychosocial impact of <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>, but there has been limited attention given to how young people adjust and adapt to living with a long\u2010term condition such as <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>. The aim of this qualitative study was therefore to explore adolescents' experiences of living with <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>, with particular focus on the process of adjustment.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Ten adolescents (7 female, 3 male) aged 13\u201317 years with good treatment adherence were recruited from an adolescent arthritis clinic. In\u2010depth interviews were conducted, and data were analysed by two researchers independently using interpretative phenomenological analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>These adolescents described the physical and psychosocial \u2018burden of living with <jats:styled-content style=\"fixed-case\">JIA<\/jats:styled-content>\u2019 and the challenges faced by an underlying preoccupation \u2018to be a normal teenager\u2019. However, their accounts also revealed ways in which they regained agency and developed \u2018resilience through taking control\u2019 over their lives. This resilience helped the adolescents re\u2010establish a sense of well\u2010being through an ongoing process of \u2018acceptance and self\u2010growth\u2019.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Although much research has adopted a deficit model that focuses on adjustment problems, the current study highlights the resourcefulness of young people in managing the challenges of living with a long\u2010term condition. These experiences of successful adjustment can be used as the basis of positive, strength\u2010based intervention approaches for adolescents with arthritis to enhance resilience and well\u2010being.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12206","type":"journal-article","created":{"date-parts":[[2014,10,7]],"date-time":"2014-10-07T02:27:25Z","timestamp":1412648845000},"page":"734-743","source":"Crossref","is-referenced-by-count":52,"title":["Journeys of adjustment: the experiences of adolescents living with juvenile idiopathic arthritis"],"prefix":"10.1111","volume":"41","author":[{"given":"T.","family":"Cartwright","sequence":"first","affiliation":[{"name":"Department of Psychology University of Westminster  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"E.","family":"Fraser","sequence":"additional","affiliation":[{"name":"Medical Paediatric Psychology Service Crosshouse Hospital  Kilmarnock Scotland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Edmunds","sequence":"additional","affiliation":[{"name":"Department of Psychology University of Westminster  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"N.","family":"Wilkinson","sequence":"additional","affiliation":[{"name":"Oxford Paediatric and Adolescent Rheumatology Centre (OxPARC) Nuffield Orthopaedic Centre  Oxford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Jacobs","sequence":"additional","affiliation":[{"name":"Oxford Paediatric and Adolescent Rheumatology Centre (OxPARC) Nuffield Orthopaedic Centre  Oxford UK"},{"name":"Department of Paediatric Psychology The Children's Hospital  Oxford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2014,10,6]]},"reference":[{"key":"e_1_2_11_2_1","volume-title":"Unraveling the Mystery of Health. 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