{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,20]],"date-time":"2026-10-20T01:06:48Z","timestamp":1792458408210,"version":"4.5.0"},"reference-count":28,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2015,8,31]],"date-time":"2015-08-31T00:00:00Z","timestamp":1440979200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000071","name":"National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["K23 HD01296"],"award-info":[{"award-number":["K23 HD01296"]}],"id":[{"id":"10.13039\/100000071","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001711","name":"Schweizerischer Nationalfonds zur F\u00f6rderung der Wissenschaftlichen Forschung","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001711","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2015,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>The aim of this paper was to examine sexual knowledge, concerns and needs of youth with spina bifida (SB) to inform the medical community on ways to better support their sexual health.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>As part of the Video Intervention\/Prevention Assessment (VIA) \u2013 transitions, a prospective cohort study, 309\u2009h of video data were collected from 14 participants (13\u201328\u2009years old) with SB. Participants were loaned a video camcorder for 8\u201312\u2009weeks to shoot visual narratives about any aspects of their lives. V\/A visual narratives were analysed with grounded theory using NVivo.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Out of 14 participants, 11 (six women) addressed issues surrounding romantic relationships and sexuality in their video clips. Analysis revealed shared concerns, questions and challenges regarding sexuality gathered under four main themes: romantic relationships, sexuality, fertility and parenthood, and need for more talk on sexuality.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Youth with SB reported difficulties in finding answers to questions regarding their sexuality, romantic relationships and fertility. This study revealed a need for help from the medical community to inform and empower youth with SB in the area of sexual health. Through sexual and reproductive health education with patients and parents starting at an early age, medical providers can further encourage healthy emotional and physical development in adolescents transitioning into adulthood.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12282","type":"journal-article","created":{"date-parts":[[2015,9,2]],"date-time":"2015-09-02T17:44:38Z","timestamp":1441215878000},"page":"963-969","source":"Crossref","is-referenced-by-count":41,"title":["What young people with spina bifida want to know about sex and are not being told"],"prefix":"10.1111","volume":"41","author":[{"given":"C.","family":"Akre","sequence":"first","affiliation":[{"name":"Center on Media and Child Health, Division of Adolescent\/Young Adult Medicine, Boston Children's Hospital, Harvard Medical School Harvard School of Public Health  Boston MA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Light","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology Washington Hospital Center  Washington DC USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L.","family":"Sherman","sequence":"additional","affiliation":[{"name":"Wheelock College  Boston MA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Polvinen","sequence":"additional","affiliation":[{"name":"Center on Media and Child Health, Division of Adolescent\/Young Adult Medicine, Boston Children's Hospital, Harvard Medical School Harvard School of Public Health  Boston MA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Rich","sequence":"additional","affiliation":[{"name":"Center on Media and Child Health, Division of Adolescent\/Young Adult Medicine, Boston Children's Hospital, Harvard Medical School Harvard School of Public Health  Boston MA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2015,8,31]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1093\/her\/cyu040"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2013.4338"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0b013e32832ce009"},{"key":"e_1_2_8_5_1","first-page":"280","article-title":"Family and peer issues among adolescents with spina bifida and cerebral palsy","volume":"88","author":"Blum R. 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