{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,14]],"date-time":"2026-02-14T05:12:57Z","timestamp":1771045977323,"version":"3.50.1"},"reference-count":40,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2016,9,27]],"date-time":"2016-09-27T00:00:00Z","timestamp":1474934400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100001590","name":"Irish Health Research Board","doi-asserted-by":"crossref","award":["200994"],"award-info":[{"award-number":["200994"]}],"id":[{"id":"10.13039\/501100001590","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2017,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>The numbers of children with long\u2010term illnesses surviving into adulthood and transferring from child to adult services has increased dramatically in the last 30\u2009years. This study aimed to examine health\u2010related quality of life pre\u2010 and post\u2010transfer from child to adult healthcare for young people with three long\u2010term illnesses.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A total of 217 young people with cystic fibrosis, congenital heart defects or diabetes attending child and adult hospital services in Dublin, Ireland completed a questionnaire survey. Multiple linear regression was used to identify predictors of five dimensions of health\u2010related quality of life pre\u2010 and post\u2010transfer.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Post\u2010transfer young people with congenital heart disease and diabetes reported significantly lower physical well\u2010being than their pre\u2010transfer counterparts. Pre\u2010transfer young people with cystic fibrosis reported significantly lower physical well\u2010being than those with diabetes, but there was no significant difference post\u2010transfer. Pre\u2010transfer females reported lower scores than males on the Psychological Well\u2010being and Autonomy and Parent Relation dimensions; however, these differences disappeared post\u2010transfer. Higher maternal overprotection scores were associated with significantly lower scores on the Psychological Well\u2010being, Autonomy and Parent Relation, and Social Support and Peers dimensions, regardless of transfer status.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Disease group, gender and maternal overprotection were predictors of health\u2010related quality of life pre\u2010 and post\u2010transfer from child to adult healthcare. Transition programmes should promote self\u2010management and discourage parental overprotection.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12410","type":"journal-article","created":{"date-parts":[[2016,9,28]],"date-time":"2016-09-28T02:39:33Z","timestamp":1475030373000},"page":"144-151","source":"Crossref","is-referenced-by-count":20,"title":["Health\u2010related quality of life of young people with long\u2010term illnesses before and after transfer from child to adult healthcare"],"prefix":"10.1111","volume":"43","author":[{"given":"A. E.","family":"While","sequence":"first","affiliation":[{"name":"Florence Nightingale Faculty of Nursing and Midwifery King's College London  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Heery","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery Trinity College Dublin  Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A. 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