{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T20:02:27Z","timestamp":1791316947399,"version":"4.3.1"},"reference-count":63,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2017,5,2]],"date-time":"2017-05-02T00:00:00Z","timestamp":1493683200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Crown Family Foundation (Navot)"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2017,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>A growing line of research has sought to characterize the different presentations of autism spectrum disorder (ASD) among boys and girls. Much less is known about maternal experience and mother\u2013child relationship in children with ASD based on child gender. The present qualitative study aimed to investigate the mother\u2013daughter relationship from the perspective of mothers who are raising girls with ASD with normal intelligence and functional verbal communication.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Eleven in\u2010depth interviews were conducted with mothers of girls with ASD, ages 10\u201319\u00a0years. Data were analysed in an interactive process commonly used in naturalistic inquiry. Results provide insight into the unique maternal experience of raising a daughter with ASD.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Mothers reported a sense of exclusion from the neurotypical population and male\u2010dominant ASD population and transformation in relationship. Themes identified were skepticism and delayed diagnosis, disbelief from others, lack of information about girls with ASD, higher social demands in adolescence, puberty challenges around hygiene, disappointment about physical appearance, vulnerability in relationships and worries about future functioning. The mother\u2013daughter relationship started with an early expectation of a close and intimate relationship that then underwent a transformation, which challenged maternal competence, reshaped expectations and created a different bond between mother and daughter.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The findings in this qualitative study highlight the impact of gender on the maternal experience of raising a daughter with ASD and contribute to a better understanding of the needs of both mothers and daughters. These results can help providers support the mother\u2013daughter dyad by recognizing gender\u2010specific challenges.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12470","type":"journal-article","created":{"date-parts":[[2017,5,2]],"date-time":"2017-05-02T16:51:35Z","timestamp":1493743895000},"page":"536-545","source":"Crossref","is-referenced-by-count":44,"title":["Maternal experience raising girls with autism spectrum disorder: a qualitative study"],"prefix":"10.1111","volume":"43","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1321-8669","authenticated-orcid":false,"given":"N.","family":"Navot","sequence":"first","affiliation":[{"name":"Department of Child and Adolescent Psychiatry Ziv Medical Center  Safed Israel"},{"name":"Department of Psychiatry and Behavioral Medicine University of Washington  Seattle WA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A. G.","family":"Jorgenson","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Behavioral Medicine University of Washington  Seattle WA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S. J.","family":"Webb","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Behavioral Medicine University of Washington  Seattle WA USA"},{"name":"Department of Epidemiology University of Washington  Seattle WA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,5,2]]},"reference":[{"key":"e_1_2_8_2_1","first-page":"1","article-title":"Employment outcomes of vocational rehabilitation clients with autism spectrum disorders","author":"Alverson C. 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