{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T00:50:06Z","timestamp":1747183806928,"version":"3.40.5"},"reference-count":41,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2020,12,10]],"date-time":"2020-12-10T00:00:00Z","timestamp":1607558400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Child"],"published-print":{"date-parts":[[2021,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Youth with chronic illnesses and their parents make complex medical decisions and also need to develop medical decision\u2010making skills for transition of care to adult care. The use of inclusive (e.g. \u2018we decided \u2026\u2019) and exclusive (e.g. \u2018they decided \u2026\u2019) language in youth and parents' medical decision\u2010making experiences provides insights into perceptions of engagement. This study assessed youth and parents' perceptions of engagement in medical decision\u2010making about biologic therapy.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This exploratory mixed\u2010methods secondary analysis of semistructured interview data included youth with juvenile idiopathic arthritis (JIA) and Crohn's disease (CD) and parents. Iterative qualitative coding of interviews generated themes. Exploratory analyses of variance (ANOVAs) and analyses of covariance (ANCOVAs) investigated differences in language use between youth and parents.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Parents used more inclusive language in perceptions of medical decision\u2010making experiences than youth, which exploratory analyses found significant (<jats:italic>p<\/jats:italic> &lt; 0.05). Youth used more exclusive language than parents in perceptions of medical decision\u2010making.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This research suggests that youth with chronic illnesses perceived limited engagement in medical decision\u2010making, with parents perceiving higher engagement. This presents challenges for youth as they prepare for the transition to adult care. Future research should assess how inclusive and exclusive language use impacts psychosocial and health outcomes.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12836","type":"journal-article","created":{"date-parts":[[2020,12,4]],"date-time":"2020-12-04T07:51:00Z","timestamp":1607068260000},"page":"208-217","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Use of language in the medical decision\u2010making process for biologic therapy: Youth and parent perspectives"],"prefix":"10.1111","volume":"47","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6340-7663","authenticated-orcid":false,"given":"Jennie G.","family":"David","sequence":"first","affiliation":[{"name":"Department of Psychology Nationwide Children's Hospital  Columbus Ohio USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brian P.","family":"Daly","sequence":"additional","affiliation":[{"name":"Department of Psychology Drexel University  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Douglas","family":"Chute","sequence":"additional","affiliation":[{"name":"Department of Psychology Drexel University  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer","family":"Katz\u2010Buonincontro","sequence":"additional","affiliation":[{"name":"School of Education Drexel University  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ignasi","family":"Clemente","sequence":"additional","affiliation":[{"name":"Hunter College CUNY  New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ellen A.","family":"Lipstein","sequence":"additional","affiliation":[{"name":"UC Department of Pediatrics Cincinnati Children's Hospital Medical Center  Cincinnati Ohio USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,12,10]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2834.2012.01457.x"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2005.079442"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1054-139X(03)00047-8"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1136\/gutjnl-2011-300904"},{"key":"e_1_2_13_6_1","doi-asserted-by":"crossref","unstructured":"David J. 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