{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,29]],"date-time":"2026-07-29T10:01:04Z","timestamp":1785319264059,"version":"3.55.0"},"reference-count":40,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2022,2,2]],"date-time":"2022-02-02T00:00:00Z","timestamp":1643760000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000056","name":"National Institute of Nursing Research","doi-asserted-by":"publisher","award":["K01NR018907"],"award-info":[{"award-number":["K01NR018907"]}],"id":[{"id":"10.13039\/100000056","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000071","name":"National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["R01 HD048629"],"award-info":[{"award-number":["R01 HD048629"]}],"id":[{"id":"10.13039\/100000071","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Child"],"published-print":{"date-parts":[[2022,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Although the academic difficulties of children with spina bifida (SB) are well\u2010documented, there is limited literature on parents' views of their children's school experiences and school\u2010related supportive services. Thus, the current study examined parents' school\u2010related concerns, as well as perceived areas of strength, among children with SB.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Using a mixed\u2010methods approach, 30 families (29 mothers and 19 fathers) of children with SB (ages 8\u201315\u2009years) completed questionnaires and interviews. Content analysis was used to generate themes from interview data about parents' school\u2010related concerns and perceptions of their child's strengths.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Overall, six themes emerged when assessing both parents' concerns and perceived strengths. Some parents did not endorse school concerns or strengths for their child. However, other parents described concerns related to academic performance, cognitive abilities, lack of school support, missed school and\/or class time and disengagement, as well as strengths such as academic skills, cognitive abilities, persistence, self\u2010advocacy and agreeableness. Despite parents' concerns about their children's academic performance, quantitative data revealed that less than 50% of children had received a neuropsychological evaluation and\/or academic accommodations; additional quantitative data supported the qualitative findings.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The mixed\u2010methods approach used in this study provides a richer understanding of parents' experiences in the school setting when they have a child with SB. Results can inform clinical practice, identifying a need to improve academic support for children with SB and help parents manage education\u2010related stressors.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cch.12969","type":"journal-article","created":{"date-parts":[[2022,1,19]],"date-time":"2022-01-19T08:08:16Z","timestamp":1642579696000},"page":"623-633","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Parents' school\u2010related concerns and perceived strengths in youth with spina bifida"],"prefix":"10.1111","volume":"48","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5286-4121","authenticated-orcid":false,"given":"Adrien M.","family":"Winning","sequence":"first","affiliation":[{"name":"Psychology Department Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique","family":"Ridosh","sequence":"additional","affiliation":[{"name":"Marcella Niehoff School of Nursing Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4141-191X","authenticated-orcid":false,"given":"Elicia","family":"Wartman","sequence":"additional","affiliation":[{"name":"Psychology Department Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1506-4416","authenticated-orcid":false,"given":"Tessa","family":"Kritikos","sequence":"additional","affiliation":[{"name":"Psychology Department Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine","family":"Friedman","sequence":"additional","affiliation":[{"name":"Psychology Department Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meredith","family":"Starnes","sequence":"additional","affiliation":[{"name":"Psychology Department Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Autumn N.","family":"Crowe","sequence":"additional","affiliation":[{"name":"Psychology Department Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2216-1927","authenticated-orcid":false,"given":"Grayson N.","family":"Holmbeck","sequence":"additional","affiliation":[{"name":"Psychology Department Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,2,2]]},"reference":[{"key":"e_1_2_8_2_1","volume-title":"Manual for the ASEBA school\u2010age forms & profiles","author":"Achenbach T. M.","year":"2001"},{"issue":"3","key":"e_1_2_8_3_1","first-page":"121","article-title":"Interventions for ADHD in children and teens: A focus on adhd coaching","volume":"43","author":"Ahmann E.","year":"2017","journal-title":"Pediatric Nursing"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/00002800-200209000-00009"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/092970490911324"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1037\/cap0000030"},{"key":"e_1_2_8_7_1","volume-title":"Statistical power and analysis for the behavioral sciences","author":"Cohen J.","year":"1988"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2015.7"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/ddrr.89"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617706060371"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsr075"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsaa020"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0954579400004466"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1080\/15374416.2013.850700"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1521\/jsyt.2012.31.2.21"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.lindif.2010.08.001"},{"key":"e_1_2_8_17_1","volume-title":"Manual for self\u2010perception profile for children: Revision of the perceived competence scale for children","author":"Harter S.","year":"1985"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732316665344"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.7748\/nr.4.1.81.s9"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/0148-9062(75)90418-0"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/27.1.5"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/ddrr.90"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006x.71.4.782"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsq084"},{"key":"e_1_2_8_25_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/21.2.137"},{"key":"e_1_2_8_26_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2013.00863"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2016.1153161"},{"key":"e_1_2_8_28_1","volume-title":"Nursing research: Methods and critical appraisal for evidence\u2010based practice","author":"LoBiondo\u2010Wood G.","year":"2006"},{"key":"e_1_2_8_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.lindif.2005.07.004"},{"key":"e_1_2_8_30_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2016.1161845"},{"key":"e_1_2_8_31_1","doi-asserted-by":"publisher","DOI":"10.1002\/pits.20292"},{"key":"e_1_2_8_32_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2015.1021021"},{"key":"e_1_2_8_33_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0014996"},{"key":"e_1_2_8_34_1","doi-asserted-by":"publisher","DOI":"10.1037\/\/0022-3514.59.6.1266"},{"key":"e_1_2_8_35_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2011.01338.x"},{"key":"e_1_2_8_36_1","unstructured":"Spina Bifida Association. (2018).Guidelines for the care of people with spina bifida.http:\/\/www.spinabifidaassociation.org\/guidelines\/"},{"key":"e_1_2_8_37_1","doi-asserted-by":"publisher","DOI":"10.1038\/mp.2010.97"},{"key":"e_1_2_8_38_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1355617716000680"},{"key":"e_1_2_8_39_1","volume-title":"Manual for the Wechsler Abbreviated Scale of Intelligence","author":"Wechsler D.","year":"1999"},{"key":"e_1_2_8_40_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsaa042"},{"key":"e_1_2_8_41_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsz052"}],"container-title":["Child: Care, Health and Development"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/cch.12969","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/cch.12969","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/cch.12969","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,23]],"date-time":"2023-08-23T21:52:07Z","timestamp":1692827527000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/cch.12969"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,2,2]]},"references-count":40,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2022,7]]}},"alternative-id":["10.1111\/cch.12969"],"URL":"https:\/\/doi.org\/10.1111\/cch.12969","archive":["Portico"],"relation":{},"ISSN":["0305-1862","1365-2214"],"issn-type":[{"value":"0305-1862","type":"print"},{"value":"1365-2214","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,2,2]]},"assertion":[{"value":"2021-01-22","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-01-08","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-02-02","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}