{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T00:46:24Z","timestamp":1787013984569,"version":"build-2736575974"},"reference-count":32,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2022,10,17]],"date-time":"2022-10-17T00:00:00Z","timestamp":1665964800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000056","name":"National Institute of Nursing Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000056","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000118","name":"Office of Behavioral and Social Sciences Research","doi-asserted-by":"publisher","award":["K01NR018907"],"award-info":[{"award-number":["K01NR018907"]}],"id":[{"id":"10.13039\/100000118","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000118","name":"Office of Behavioral and Social Sciences Research","doi-asserted-by":"publisher","award":["R01 NR016235"],"award-info":[{"award-number":["R01 NR016235"]}],"id":[{"id":"10.13039\/100000118","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100009633","name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["R01 HD048629"],"award-info":[{"award-number":["R01 HD048629"]}],"id":[{"id":"10.13039\/100009633","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000912","name":"March of Dimes Foundation","doi-asserted-by":"publisher","award":["12\u2010FY13\u2010271"],"award-info":[{"award-number":["12\u2010FY13\u2010271"]}],"id":[{"id":"10.13039\/100000912","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Child"],"published-print":{"date-parts":[[2023,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>The purpose of this study was to examine the trajectories of condition and independent living self\u2010management in youth with spina bifida (SB).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A diverse sample of adolescents and young adults (AYAs) with SB completed the Adolescent\/Young Adult Self\u2010Management and Independence Scale (AMIS\u2010II) across four time points. Parents reported on demographic characteristics including age, sex, race\/ethnicity, and family income. Growth in self\u2010management and its subscales (condition and independent living) were estimated using linear mixed\u2010effect models as a function of respondents' demographics.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      This study included 99 respondents age 18 to 27\u2009years old. About half were female (52.5%) and White (52.5%); 15.2% were Black, and about a third were Hispanic\/Latino (32.3%). Eighty\u2010seven AYAs (87.9%) had myelomeningocele. The lesion level was 31.3% sacral, 48.5% lumbar and 18.2% thoracic. A third of the families earned less than 50K. Overall, self\u2010management growth was dependent on age, sex, and race\/ethnicity, but not income. Growth in condition self\u2010management depended on sex; only males demonstrated increasing growth (\n\u2009=\u20090.11,\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.001). Black participants endorsed higher increasing total and condition self\u2010management when compared with White (\n                      <jats:sub>diff<\/jats:sub>\n                      \u2009=\u20090.17 and 0.17, respectively, both\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.05) and Hispanic\/Latino (\n                      <jats:sub>diff<\/jats:sub>\n                      \u2009=\u20090.18 and 0.21, respectively, both\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.02) respondents.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This study provides evidence of differences in growth of self\u2010management by demographic\/social determinants of health. Possible reasons for differences are discussed. Predictors of changes in self\u2010management behaviours over time in young adults with SB can identify subgroups in need of further study.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/cch.13065","type":"journal-article","created":{"date-parts":[[2022,10,7]],"date-time":"2022-10-07T16:48:25Z","timestamp":1665161305000},"page":"508-517","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":14,"title":["Trajectories of self\u2010management and independence in youth with spina bifida: Demographic predictors of growth"],"prefix":"10.1111","volume":"49","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2621-6710","authenticated-orcid":false,"given":"Monique M.","family":"Ridosh","sequence":"first","affiliation":[{"name":"Marcella Niehoff School of Nursing Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"William","family":"Adams","sequence":"additional","affiliation":[{"name":"Stritch School of Medicine Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fabiola","family":"Maga\u00f1a","sequence":"additional","affiliation":[{"name":"Marcella Niehoff School of Nursing Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathleen J.","family":"Sawin","sequence":"additional","affiliation":[{"name":"Department of Nursing Research and Evidence\u2010Based Practice Children's Wisconsin  Milwaukee Wisconsin USA"},{"name":"Self\u2010Management Science Center, College of Nursing University of Wisconsin\u2010Milwaukee  Milwaukee Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Grayson N.","family":"Holmbeck","sequence":"additional","affiliation":[{"name":"Department of Psychology Loyola University Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,10,17]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.2105\/ajph.2015.302902"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2011.03938.x"},{"issue":"4","key":"e_1_2_7_4_1","first-page":"595","article-title":"Testing the transition preparation training program: A randomized controlled trial","volume":"3","author":"Betz C. 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