{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T02:15:38Z","timestamp":1777860938800,"version":"3.51.4"},"reference-count":70,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,7,31]],"date-time":"2025-07-31T00:00:00Z","timestamp":1753920000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,7,31]],"date-time":"2025-07-31T00:00:00Z","timestamp":1753920000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Child"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Families with children and youth with special health care needs (CYSHCN)\u2014especially those with complex or multiple morbidities\u2014have additional considerations when planning for emergencies. These families can also have health\u2010related social needs that make achieving household emergency preparedness especially challenging. Our objective was to identify and address the unmet social needs and emergency preparedness needs in a diverse sample of families of CYSHCN recruited from a network of medical homes across Pennsylvania as part of a home\u2010focused, virtual emergency preparedness intervention.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The study spanned April 2020 to June 2022 and included (1) two sequential CYSHCN\u2010focused interviews addressing medical needs, household emergency preparedness and health\u2010related social needs; (2) core materials on emergency planning and local resources and (3) individualized referrals for unmet needs identified in either interview that were addressed and followed by the medical home team and community partners. Needs identified in the interviews were aggregated, reviewed, inductively categorized and counted sample\u2010wide, per\u2010participant and within sociodemographic subgroups.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Of the 170 participants who completed the first interview, 148 (87%) also completed the second. The CYSHCN in the study (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009170) had reliance on medical equipment (68%), physical mobility needs (48%), intellectual\/communication challenges (79%) and\/or vision or hearing loss (36%). Health\u2010related social needs were prevalent and included food insecurity (20%) and housing instability (8%). Sample\u2010wide, 1072 unmet needs were identified and addressed through referrals; 279 of these pertained to emergency preparedness. Other unmet needs fell into each of the Healthy People 2030 Social Determinants of Health domains, mainly Health Care Access and Quality (558 needs; 52%). The sample averaged six unmet needs per participant (median, 5; range, 0\u201327), and those in the following groups had disproportionately more unmet needs: non\u2013English language speakers, renters, unemployed participants, those with CYSHCN with &gt;\u20092 comorbidities and participants living with another individual with a disability.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Families with CYSHCN experience wide\u2010ranging unmet medical, social and emergency preparedness needs. Our findings suggest that the medical home team may support these crucial areas by incorporating social\u2010needs screening and referrals into an emergency preparedness intervention.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/cch.70118","type":"journal-article","created":{"date-parts":[[2025,7,31]],"date-time":"2025-07-31T09:20:08Z","timestamp":1753953608000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Identifying Unmet Needs of Families With Children and Youth With Special Health Care Needs in a Preparedness Intervention Connected to the Medical Home"],"prefix":"10.1111","volume":"51","author":[{"given":"Braden","family":"Bubarth","sequence":"first","affiliation":[{"name":"Drexel University College of Medicine  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2366-2384","authenticated-orcid":false,"given":"Jennifer","family":"Griffin","sequence":"additional","affiliation":[{"name":"Dornsife School of Public Health Drexel University  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Zekarias","family":"Berhane","sequence":"additional","affiliation":[{"name":"Dornsife School of Public Health Drexel University  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Renee\u00a0M.","family":"Turchi","sequence":"additional","affiliation":[{"name":"Drexel University College of Medicine  Philadelphia Pennsylvania USA"},{"name":"Dornsife School of Public Health Drexel University  Philadelphia Pennsylvania USA"},{"name":"St. Christopher's Hospital for Children  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,7,31]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2022-060975"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922816665087"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1001\/dmp.2010.28"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2012.659837"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s44202\u2010023\u201000089\u2010z"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12968"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/10911359.2018.1527739"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2022-060970"},{"key":"e_1_2_13_10_1","unstructured":"Child and Adolescent Health Measurement Initiative. Interactive Data Query. 2022 NSCH. \u201cData Resource Center for Child and Adolescent Health Supported by the U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB)\u201d. Retrieved July 18 2024 fromwww.childhealthdata.org."},{"key":"e_1_2_13_11_1","unstructured":"Children and Youth With Special Health Care Needs.NSCH Data Brief. June2022.https:\/\/mchb.hrsa.gov\/sites\/default\/files\/mchb\/programs\u2010impact\/nsch\u2010data\u2010brief\u2010children\u2010youth\u2010special\u2010health\u2010care\u2010needs.pdf."},{"key":"e_1_2_13_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cppeds.2016.02.004"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.5055\/ajdm.2022.0431"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2014-0318"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/cch.13149"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/21501319221112248"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922815591959"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/21501319221131405"},{"key":"e_1_2_13_19_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2021.12825"},{"key":"e_1_2_13_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2021.07.010"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.2202\/1547\u20107355.1792"},{"key":"e_1_2_13_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-023-15580-4"},{"key":"e_1_2_13_23_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020\u2010035378"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2024.104958"},{"key":"e_1_2_13_25_1","doi-asserted-by":"publisher","DOI":"10.7812\/TPP\/17\u2010002"},{"key":"e_1_2_13_26_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2018\u20102355"},{"key":"e_1_2_13_27_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2021-056150D"},{"key":"e_1_2_13_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedhc.2022.09.008"},{"key":"e_1_2_13_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2024.06.002"},{"key":"e_1_2_13_30_1","doi-asserted-by":"publisher","DOI":"10.1089\/hs.2022.0119"},{"key":"e_1_2_13_31_1","doi-asserted-by":"publisher","DOI":"10.1542\/9781610020237-part01-prevention"},{"key":"e_1_2_13_32_1","doi-asserted-by":"publisher","DOI":"10.1017\/dmp.2015.159"},{"key":"e_1_2_13_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2021.07.056"},{"key":"e_1_2_13_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2008.08.010"},{"key":"e_1_2_13_35_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2012.301069"},{"key":"e_1_2_13_36_1","unstructured":"Healthy People 2030. \u201cSocial Determinants of Health\u201d. Accessed May 15 2025.https:\/\/health.gov\/healthypeople\/priority\u2010areas\/social\u2010determinants\u2010health."},{"key":"e_1_2_13_37_1","doi-asserted-by":"publisher","DOI":"10.1089\/hs.2018.0007"},{"key":"e_1_2_13_38_1","doi-asserted-by":"publisher","DOI":"10.1089\/hs.2022.0033"},{"key":"e_1_2_13_39_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2021.10.007"},{"key":"e_1_2_13_40_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-023-05997-6"},{"key":"e_1_2_13_41_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2021\u2010056150F"},{"key":"e_1_2_13_42_1","doi-asserted-by":"publisher","DOI":"10.3390\/children4050039"},{"key":"e_1_2_13_43_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpediatrics.2011.172"},{"key":"e_1_2_13_44_1","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2014.0273"},{"key":"e_1_2_13_45_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2018-1795"},{"key":"e_1_2_13_46_1","doi-asserted-by":"publisher","DOI":"10.1080\/10400435.2016.1265023"},{"key":"e_1_2_13_47_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pcl.2023.03.006"},{"key":"e_1_2_13_48_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11920\u2010021\u201001295\u2010z"},{"key":"e_1_2_13_49_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2006\u20101684"},{"key":"e_1_2_13_50_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.102.1.137"},{"key":"e_1_2_13_51_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.110.1.184"},{"key":"e_1_2_13_52_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0000000000001083"},{"key":"e_1_2_13_53_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2017\u20102453"},{"key":"e_1_2_13_54_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2017.08.022"},{"key":"e_1_2_13_55_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1744-6155.2011.00293.x"},{"key":"e_1_2_13_56_1","unstructured":"Office of the Assistant Secretary for Planning and Evaluation\u201cHHS Call to Action: Addressing Health Related Social Needs in Communities Across the Nation US Department of Health and Human Services.\u201d2023.https:\/\/aspe.hhs.gov\/sites\/default\/files\/documents\/54c9bfde7090c3d3f02a9fd924cb3e4a\/hhs\u2010call\u2010to\u2010action\u2010health\u2010related\u2010social\u2010needs.pdf."},{"key":"e_1_2_13_57_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922820941206"},{"key":"e_1_2_13_58_1","doi-asserted-by":"publisher","DOI":"10.5055\/ajdm.2020.0368"},{"key":"e_1_2_13_59_1","unstructured":"Pennsylvania Chapter American Academy of Pediatrics. \u201cPennsylvania Medical Home Program\u201d. Accessed February 21 2023.https:\/\/pamedicalhomeprogram.org\/."},{"key":"e_1_2_13_60_1","unstructured":"Pennsylvania Chapter American Academy of Pediatrics. \u201cChildren and Youth With Special Health Care Needs (CYSHCN) Committee\u201d. Accessed April 18 2025.https:\/\/www.paaap.org\/children\u2010\u2010youth\u2010with\u2010special\u2010health\u2010care\u2010needs\u2010cyshcn\u2010committee.html."},{"key":"e_1_2_13_61_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2008-3648"},{"key":"e_1_2_13_62_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2018-1704"},{"key":"e_1_2_13_63_1","doi-asserted-by":"publisher","DOI":"10.1097\/DBP.0000000000000260"},{"key":"e_1_2_13_64_1","volume-title":"Achieving Health Equity via the Affordable Care Act: Promises, Provisions, and Making Reform a Reality for Diverse Patients: Workshop Summary","author":"Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities","year":"2015"},{"key":"e_1_2_13_65_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922813482762"},{"key":"e_1_2_13_66_1","doi-asserted-by":"publisher","DOI":"10.1177\/1084822320980415"},{"key":"e_1_2_13_67_1","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2015.1021413"},{"key":"e_1_2_13_68_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922819870251"},{"key":"e_1_2_13_69_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2019-1622"},{"key":"e_1_2_13_70_1","doi-asserted-by":"publisher","DOI":"10.1177\/2158244015597043"},{"key":"e_1_2_13_71_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020\u20100973"}],"container-title":["Child: Care, Health and Development"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/cch.70118","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/cch.70118","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/cch.70118","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T02:29:37Z","timestamp":1777516177000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/cch.70118"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7,31]]},"references-count":70,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2025,9]]}},"alternative-id":["10.1111\/cch.70118"],"URL":"https:\/\/doi.org\/10.1111\/cch.70118","archive":["Portico"],"relation":{},"ISSN":["0305-1862","1365-2214"],"issn-type":[{"value":"0305-1862","type":"print"},{"value":"1365-2214","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,31]]},"assertion":[{"value":"2024-08-08","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-06-04","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-07-31","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70118"}}