{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,25]],"date-time":"2026-01-25T17:01:28Z","timestamp":1769360488025,"version":"3.49.0"},"reference-count":34,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2025,12,15]],"date-time":"2025-12-15T00:00:00Z","timestamp":1765756800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,12,15]],"date-time":"2025-12-15T00:00:00Z","timestamp":1765756800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Child"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Short bowel syndrome (SBS) is a rare but severe malabsorptive condition resulting from resecting extensive small bowel or congenital anomalies. Children with SBS require long\u2010term nutritional support to maintain growth and development. This study aims to explore the experiences and needs of parents managing home nutrition for children with SBS. It seeks to identify gaps in current nutritional management practices and provide insights into developing personalized, evidence\u2010based strategies to enhance support and optimize long\u2010term care outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A qualitative descriptive study was conducted using semistructured interviews with 12 parents of children with SBS. Each interview ranging from 20 to 45\u2009min, focused on home nutrition management experiences and needs. Content analysis was employed to theme extraction.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four major themes and 12 sub\u2010themes were identified. Complex emotional experience includes exhaustion and self\u2010healing, questioning and anxiety, and positive coping and adaptation. Challenges and responses to nutrition management included seeking specialized medical support, heavy caregiving burden, exploration of different ways of nutrition management and emergency response. Financial burden was identified as a major theme with the sub\u2010theme of financial burden posing dilemma. Additionally, parents expressed multidimensional needs for home\u2010based nutrition management, including medical support, reimbursement policy tilt, diversified professional knowledge and external support from medical institutions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Parents face substantial pressures in managing home nutrition for children with SBS, highlighting the need for structured, multidimensional support to strengthen caregiving confidence and improve long\u2010term outcomes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/cch.70221","type":"journal-article","created":{"date-parts":[[2025,12,16]],"date-time":"2025-12-16T01:55:56Z","timestamp":1765850156000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Parents' Experiences and Needs in Home Nutritional Management of Children With Short Bowel Syndrome: A Qualitative Study"],"prefix":"10.1111","volume":"52","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-3136-5478","authenticated-orcid":false,"given":"Qiufan","family":"Lu","sequence":"first","affiliation":[{"name":"Department of Nursing Children's Hospital of Chongqing Medical University, National Clinical Research Center for Children and Adolescents' Health and Diseases, Ministry of Education key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defect and Reconstruction  Chongqing China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Qiao","family":"Shen","sequence":"additional","affiliation":[{"name":"Department of Pediatric Research Institute Children's Hospital of Chongqing Medical University  Chongqing China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Xin","family":"Wan","sequence":"additional","affiliation":[{"name":"Department of Nursing Children's Hospital of Chongqing Medical University, National Clinical Research Center for Children and Adolescents' Health and Diseases, Ministry of Education key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defect and Reconstruction  Chongqing China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-0595-0518","authenticated-orcid":false,"given":"Jinjiu","family":"Hu","sequence":"additional","affiliation":[{"name":"Department of Nursing Children's Hospital of Chongqing Medical University, National Clinical Research Center for Children and Adolescents' Health and Diseases, Ministry of Education key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defect and Reconstruction  Chongqing China"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-2224-4922","authenticated-orcid":false,"given":"Xianlan","family":"Zheng","sequence":"additional","affiliation":[{"name":"Department of Nursing Children's Hospital of Chongqing Medical University, National Clinical Research Center for Children and Adolescents' Health and Diseases, Ministry of Education key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Structural Birth Defect and Reconstruction  Chongqing 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