{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,29]],"date-time":"2026-05-29T18:26:52Z","timestamp":1780079212212,"version":"3.54.0"},"reference-count":35,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,9,23]],"date-time":"2021-09-23T00:00:00Z","timestamp":1632355200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Clinical Endocrinology"],"published-print":{"date-parts":[[2022,2]]},"abstract":"<jats:title>Summary<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>Medical care transition to adult care presents challenges for individuals with complex medical conditions such as Turner syndrome (TS). The goals of this study were to: (1) identify factors associated with transition readiness; (2) examine associations and differences between patients' and parents' perceptions of readiness using Transition Readiness Assessment Questionnaire (TRAQ).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>In a prospective cross\u2010sectional study, girls with TS 12\u201325 years and one parent were recruited from 11\/2019 to 12\/2020. Three questionnaires were administered (demographic\/clinical questionnaire, TRAQ, and TS Transition Readiness Assessment Questionnaire [TS\u2010TRAQ]). Medical records were reviewed for karyotype and personal medical history. Descriptive statistics, Spearman's correlation, paired sample <jats:italic>t<\/jats:italic> tests, and linear regression were used to examine readiness and associated factors.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Of 44 eligible patients, 35 patients and 30 parents completed the study. Patient age, education, and life skills were associated with a higher TRAQ score (<jats:italic>p<\/jats:italic>\u2009&lt;\u2009.001). Greater TS knowledge was associated with higher readiness (<jats:italic>p<\/jats:italic>\u2009&lt;\u2009.05). Readiness score for patient and parental perception of patient's readiness were correlated (<jats:italic>r<\/jats:italic>\u2009=\u2009.83; <jats:italic>p<\/jats:italic>\u2009&lt;\u2009.01). Within patient\u2010parent dyads, patients had higher readiness (<jats:italic>p<\/jats:italic>\u2009&lt;\u2009.01). TRAQ and TS\u2010TRAQ scores were correlated (<jats:italic>r<\/jats:italic>\u2009=\u2009.69; <jats:italic>p<\/jats:italic>\u2009&lt;\u2009.01).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Increasing patient age, patient education, life skills, confidence, and higher social\/emotional scores were associated with a higher total TRAQ. Patient and parent perceived readiness were correlated and scores within dyads were different. Patients had higher perceived readiness. Positive correlations between TRAQ and TS\u2010TRAQ suggest this tool may be a useful resource. Given the unique neurocognitive profile and social\/emotional challenges among girls with TS, future research should include both patients and parents, and focus on validating TS\u2010specific transition readiness tools.<\/jats:p><\/jats:sec>","DOI":"10.1111\/cen.14584","type":"journal-article","created":{"date-parts":[[2021,9,23]],"date-time":"2021-09-23T10:08:49Z","timestamp":1632391729000},"page":"155-164","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["Patient\u2010parent perceptions of transition readiness in Turner syndrome and associated factors"],"prefix":"10.1111","volume":"96","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8432-005X","authenticated-orcid":false,"given":"Nisha","family":"Patel","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Division of Endocrinology, Nationwide Children's Hospital The Ohio State University College of Medicine  Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brett","family":"Klamer","sequence":"additional","affiliation":[{"name":"Center for Biostatistics The Ohio State University College of Medicine  Columbus Ohio USA"},{"name":"Biostatistics Resource at Nationwide Children's Hospital (BRANCH)  Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shanlee","family":"Davis","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Colorado School of Medicine  Aurora Colorado USA"},{"name":"eXtraOrdinary Kids Clinic Children's Hospital Colorado  Aurora Colorado USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leena","family":"Nahata","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Endocrinology, Nationwide Children's Hospital The Ohio State University College of Medicine  Columbus Ohio USA"},{"name":"Center for Biobehavioral Health Abigail Wexner Research Institute  Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,9,23]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1530\/EJE-17-0430"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1210\/jc.2008-1049"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1210\/jc.2009-0495"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1445-5994.2005.00990.x"},{"issue":"4","key":"e_1_2_8_6_1","first-page":"161","article-title":"Health and psychosocial status of patients with turner syndrome after transition to adulthood: the Belgian experience","volume":"62","author":"Verlinde F","year":"2004","journal-title":"Horm Res"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-145-11-200612050-00020"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1210\/jc.2006-1374"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1054-139X(03)00208-8"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsq100"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsp128"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/petr.12898"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-017-1580-2"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2010.07.009"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1530\/EC-17-0036"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/cen.14293"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1080\/09297049.2011.647900"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922814541169"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/0883073814538507"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-015-0063-3"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-012-0980-4"},{"key":"e_1_2_8_22_1","unstructured":"Endocrine Society. 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