{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,19]],"date-time":"2026-10-19T12:42:59Z","timestamp":1792413779260,"version":"4.4.0"},"reference-count":35,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2025,8,19]],"date-time":"2025-08-19T00:00:00Z","timestamp":1755561600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Clinical Endocrinology"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aimed to evaluate the experiences of patients who had a joint endocrinology consultation for transition to adult care at Marseille university hospitals between 2010 and 2020, focusing on patient follow\u2010up, satisfaction, difficulties, and expectations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A healthcare transition questionnaire was designed and administered to patients several years after transition to adult care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>One hundred and fifteen patients with rare endocrine disorders were included, with a mean age of 18.8 years at the transition consultation. Ninety\u2010six percent (110\/115) continued adult care after the first joint consultation, and 75% were still in follow\u2010up when completing the questionnaire (mean follow\u2010up, 4.5 years). Of the 81 respondents, 89% were satisfied with the transition, and 64% reported no difficulties. The most common difficulties were psychological, logistical, and medical. Fifty\u2010three out of 74 respondents (72%) felt the transition occurred at the right time, 17 (24%) thought it was too early, and 4 (5%) felt it was too late. The main concern was the transmission of medical information between doctors. Suggestions for improvement included more joint consultations and personalized transition pathways.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>In this group of rare endocrine disease patients, a transition pathway based on a joint pediatric\u2010adult consultation was associated with high patient satisfaction and long\u2010term follow\u2010up rates. Patients' suggestions and reported difficulties highlight issues to be addressed and complementary strategies to develop.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/cen.70016","type":"journal-article","created":{"date-parts":[[2025,8,19]],"date-time":"2025-08-19T07:40:03Z","timestamp":1755589203000},"page":"833-840","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Sucessful Transition in Rare Endocrine Diseases: Patient Experiences in a French Reference Centre"],"prefix":"10.1111","volume":"103","author":[{"ORCID":"https:\/\/orcid.org\/0009-0008-5550-9636","authenticated-orcid":false,"given":"Karine","family":"Aouchiche","sequence":"first","affiliation":[{"name":"Department of Paediatrics Assistance Publique\u2010H\u00f4pitaux de Marseille (APHM), Paediatric Endocrinology Unit, CHU Timone Enfants Marseille France"},{"name":"INSERM, MMG, UMR 1251, Institut MarMaRa Aix Marseille Univ Marseille 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