{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,27]],"date-time":"2026-10-27T02:42:13Z","timestamp":1793068933742,"version":"4.5.0"},"reference-count":34,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2020,11,5]],"date-time":"2020-11-05T00:00:00Z","timestamp":1604534400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Congenital Anomalies"],"published-print":{"date-parts":[[2021,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>This study aimed to determine the difficulties that the mothers of infants with a cleft lip and\/or palate (CL\/P) go through, the problems they encounter in this process, and how they perceive the support of healthcare professionals, families, and friends. The study used a phenomenological approach from qualitative research methods. The study sample included 18 mothers of 0 to 3\u2010month\u2010old infants with CL\/P. The data were collected using socio\u2010demographic information form and semi\u2010structured interview form. The data obtained from the interviews were evaluated using content and thematic analysis approaches. On the basis of the interviews conducted with mothers of infants with CL\/P, the following themes emerged: (a) \u201cunexpected event: having an infant with CL\/P,\u201d (b) \u201cusing social media,\u201d (c) \u201cstigma,\u201d and (d) \u201cuncertainty of long\u2010term treatment.\u201d In this study, it was determined that mothers experienced shock, confusion, sadness, and disappointment in this process; therefore, they used social media to seek support from the families as well as conducted research on the disease that involved a lot of uncertainty due to long\u2010term treatments. The present study can help healthcare professionals, who play a role in the care and treatment of infants with CL\/P, to understand and know what mothers need in the preoperative period.<\/jats:p>","DOI":"10.1111\/cga.12398","type":"journal-article","created":{"date-parts":[[2020,10,26]],"date-time":"2020-10-26T11:37:34Z","timestamp":1603712254000},"page":"38-45","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":13,"title":["\u201cUnexpected event\u201d: Having an infants with cleft lip and\/or palate"],"prefix":"10.1111","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9281-1614","authenticated-orcid":false,"given":"Sevil","family":"\u00c7\u0131nar","sequence":"first","affiliation":[{"name":"Pediatric Nursing Department, Faculty of Health Sciences Artvin \u00c7oruh University  Artvin Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1574-4673","authenticated-orcid":false,"given":"Ay\u015fe","family":"Ay","sequence":"additional","affiliation":[{"name":"Department of Nursing, Faculty of Health Sciences Ba\u015fkent University  Ankara Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6980-1568","authenticated-orcid":false,"given":"Handan","family":"Boztepe","sequence":"additional","affiliation":[{"name":"Department of Nursing, Faculty of Health Sciences At\u0131l\u0131m University  Ankara Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1719-9840","authenticated-orcid":false,"given":"Eda","family":"G\u00fcrlen","sequence":"additional","affiliation":[{"name":"Faculty of Education, Department of Educational Sciences, Curriculum and Instruction Hacettepe University Ankara  Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,11,5]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(09)60695-4"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.heliyon.2019.e03019"},{"key":"e_1_2_7_4_1","unstructured":"Statistics TUIK(2019).http:\/\/www.tuik.gov.tr.PreTablo.Dohttp:\/\/wwwtuikgovtr\/PreHaberBultenlerido?id=30696"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2011.01244.x"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjom.2008.16.12.31819"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-008-9152-5"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2004.03075.x"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijporl.2019.109598"},{"key":"e_1_2_7_10_1","unstructured":"American Cleft Palate Craniofacial Association.Parameters for Evaluation and Treatment of Patients with Cleft Lip\/Palate or Other Craniofacial Anomalies\u2010Revision2009. 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