{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T03:35:16Z","timestamp":1790739316888,"version":"4.1.0"},"reference-count":17,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2013,3,21]],"date-time":"2013-03-21T00:00:00Z","timestamp":1363824000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Clinical Genetics"],"published-print":{"date-parts":[[2013,5]]},"abstract":"<jats:p>This is a qualitative examination of candidates' decision\u2010making in relation to the genetic test for Huntington's disease. Semi\u2010structured interviews were conducted with nine participants who were asked about factors influencing their decision whether to take up predictive genetic testing. Transcripts of interviews were subjected to interpretative phenomenological analysis to elicit emergent themes. A key factor for participants was to do the right thing for their children. Interestingly, this factor presents a moral dilemma to participants and can direct them either towards or away from testing. This article offers a detailed examination of how participants think through this dilemma.<\/jats:p>","DOI":"10.1111\/cge.12124","type":"journal-article","created":{"date-parts":[[2013,2,25]],"date-time":"2013-02-25T16:23:03Z","timestamp":1361809383000},"page":"417-421","source":"Crossref","is-referenced-by-count":11,"title":["Doing the right thing for one's children: deciding whether to take the genetic test for Huntington's disease as a moral dilemma"],"prefix":"10.1111","volume":"83","author":[{"given":"JA","family":"Smith","sequence":"first","affiliation":[{"name":"Department of Psychological Sciences Birkbeck University of London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M","family":"Stephenson","sequence":"additional","affiliation":[{"name":"University of Sheffield  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C","family":"Jacobs","sequence":"additional","affiliation":[{"name":"Department of Clinical Genetics Guy's and St Thomas' NHS Foundation Trust  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"O","family":"Quarrell","sequence":"additional","affiliation":[{"name":"Department of Clinical Genetics Sheffield Children's Hospital  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2013,3,21]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(89)90722-8"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.1320450112"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105302007002398"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1038\/ejhg.2010.114"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(03)00155-2"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-005-0619-3"},{"key":"e_1_2_6_8_1","volume-title":"Interpretative phenomenological analysis: theory, method, research","author":"Smith JA","year":"2009"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1136\/jme.29.2.74"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305284002"},{"key":"e_1_2_6_11_1","volume-title":"Moral dilemmas","author":"Gowans C","year":"1987"},{"key":"e_1_2_6_12_1","volume-title":"Existentialism & humanism","author":"Sartre JP","year":"1946"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1034\/j.1399-0004.2001.600501.x"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511570049.005"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-008-9173-0"},{"key":"e_1_2_6_16_1","volume-title":"Practical genetic counselling","author":"Harper P","year":"2004"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.2012.01900.x"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1023\/B:JOGC.0000018823.60761.e0"}],"container-title":["Clinical Genetics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fcge.12124","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/cge.12124","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,22]],"date-time":"2023-11-22T09:27:39Z","timestamp":1700645259000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/cge.12124"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,3,21]]},"references-count":17,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2013,5]]}},"alternative-id":["10.1111\/cge.12124"],"URL":"https:\/\/doi.org\/10.1111\/cge.12124","archive":["Portico"],"relation":{},"ISSN":["0009-9163","1399-0004"],"issn-type":[{"value":"0009-9163","type":"print"},{"value":"1399-0004","type":"electronic"}],"subject":[],"published":{"date-parts":[[2013,3,21]]}}}