{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T08:02:43Z","timestamp":1783497763811,"version":"3.55.0"},"reference-count":35,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2020,12,4]],"date-time":"2020-12-04T00:00:00Z","timestamp":1607040000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000863","name":"Bowel Disease Research Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000863","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100003522","name":"Crohn's and Colitis UK","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003522","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000297","name":"Royal College of Surgeons of England","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000297","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Colorectal Disease"],"published-print":{"date-parts":[[2021,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>There are many surgical treatments used in Crohn's anal fistula, although none is perfect. Decisions about surgery in this condition may be preference sensitive. The aim of this study was to identify what information patients would like in order to make treatment decisions and to explore experiences of making decisions in this setting.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A survey was designed based upon qualitative interviews and input from patients and clinicians. It included a long list of informational items to be ranked on a scale of importance, a control preference scale, the decision regret scale, and items exploring preferred information formats. This was distributed through 10 English hospitals to patients with recent surgical treatment for Crohn's anal fistula. Results were analysed using principal component analysis, to identify key informational needs, and other appropriate descriptive statistics.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>In total 92 questionnaires were returned (response rate 41.8%); 48 (52.5%) respondents were women and 54 (58.7%) had undergone seton insertion. Principal component analysis identified three information needs: wound and aftercare, effect on perianal symptoms, severity of surgery. Decision\u2010making preferences showed a desire to participate in decision\u2010making. Median decision regret score was 25\/100 (i.e., low). The preferred format for sharing information to support decision\u2010making was from the surgeon, 80\/92 (87.0%), and from a booklet, 58\/92 (63.0%).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Key informational needs in this condition are wound and after care, effect on perianal symptoms, and severity of surgery. Patients would like this information to help engage in shared decision\u2010making.<\/jats:p><\/jats:sec>","DOI":"10.1111\/codi.15423","type":"journal-article","created":{"date-parts":[[2020,11,3]],"date-time":"2020-11-03T13:34:37Z","timestamp":1604410477000},"page":"132-144","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Survey to define informational needs of patients undergoing surgery for Crohn\u2019s anal fistula"],"prefix":"10.1111","volume":"23","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9971-1635","authenticated-orcid":false,"given":"Matthew J.","family":"Lee","sequence":"first","affiliation":[{"name":"General Surgery Sheffield Teaching Hospitals NHS Foundation Trust  Sheffield UK"},{"name":"Department of Oncology and Metabolism The Medical School University of Sheffield  Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgina L.","family":"Jones","sequence":"additional","affiliation":[{"name":"School of Social Sciences Leeds Beckett University  Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alan J.","family":"Lobo","sequence":"additional","affiliation":[{"name":"Gastroenterology Sheffield Teaching Hospitals NHS Foundation Trust  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0980-2793","authenticated-orcid":false,"given":"Steven R.","family":"Brown","sequence":"additional","affiliation":[{"name":"General Surgery Sheffield Teaching Hospitals NHS Foundation Trust  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"the pCD collaborators","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,12,4]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1097\/MIB.0000000000000148"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cgh.2018.01.030"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/codi.13462"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/bjs5.13"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp1109283"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/bjs.11009"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40271-015-0126-z"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzg031"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/codi.14936"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10151-017-1648-2"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/codi.14045"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0001-6918(99)00050-5"},{"key":"e_1_2_11_14_1","first-page":"21","article-title":"The control preferences scale","volume":"29","author":"Degner LF","year":"1997","journal-title":"Can J Nurs Res."},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X03256005"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1038\/nmeth.4346"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF02291575"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1098\/rspa.1937.0109"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315827506"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0000000000000457"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.orhc.2019.02.001"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12885-016-2292-3"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijsu.2018.05.238"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1093\/ibd\/izx026"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1159\/000253862"},{"key":"e_1_2_11_26_1","unstructured":"Montgomery.The Montgomery Judgement. Montgomery (Appellant) v Lanarkshire Health Board (Respondent)(Scotland);2015."},{"key":"e_1_2_11_27_1","volume-title":"CONSENT: SUPPORTED DECISION\u2010MAKING A Guide to Good Practice","author":"RCS Professional and Clinical Standards Committee","year":"2018"},{"key":"e_1_2_11_28_1","first-page":"1067","article-title":"Symptom amelioration in Crohn\u2019s perianal fistulas using video assisted anal fistula treatment (VAAFT)","volume":"12","author":"Adegbola SO","year":"2018","journal-title":"J Crohn Colitis"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1186\/s41687-019-0137-y"},{"key":"e_1_2_11_30_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00268-017-3895-9"},{"key":"e_1_2_11_31_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13741-016-0031-6"},{"key":"e_1_2_11_32_1","doi-asserted-by":"publisher","DOI":"10.1038\/ejcn.2016.57"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10350-006-0847-0"},{"key":"e_1_2_11_34_1","doi-asserted-by":"publisher","DOI":"10.1093\/ecco-jcc\/jjx099"},{"key":"e_1_2_11_35_1","unstructured":"NHS England.NHS England Friends and Family Test.https:\/\/www.england.nhs.uk\/fft\/(accessed March 2020)"},{"key":"e_1_2_11_36_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2016-014681"}],"container-title":["Colorectal Disease"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/codi.15423","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/codi.15423","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/codi.15423","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,3]],"date-time":"2023-09-03T16:47:36Z","timestamp":1693759656000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/codi.15423"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,12,4]]},"references-count":35,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2021,1]]}},"alternative-id":["10.1111\/codi.15423"],"URL":"https:\/\/doi.org\/10.1111\/codi.15423","archive":["Portico"],"relation":{},"ISSN":["1462-8910","1463-1318"],"issn-type":[{"value":"1462-8910","type":"print"},{"value":"1463-1318","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,12,4]]},"assertion":[{"value":"2020-05-26","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-10-13","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-12-04","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}