{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,2]],"date-time":"2026-04-02T16:38:16Z","timestamp":1775147896113,"version":"3.50.1"},"reference-count":39,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2023,5,26]],"date-time":"2023-05-26T00:00:00Z","timestamp":1685059200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100003522","name":"Crohn's and Colitis UK","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003522","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Colorectal Disease"],"published-print":{"date-parts":[[2023,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>People living with ulcerative colitis (UC) have two broad treatment avenues, namely medical or surgical therapy. The choice between these can depend on patient preference as well as the receipt of relevant information. The aim of this study was to define the informational needs of patients with UC.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A postal survey was designed to capture respondent demographics, treatment experienced within the previous 12\u2009months and informational preferences by rating a long list of items. It was delivered through two hospitals that provide tertiary inflammatory bowel disease services. Descriptive analyses were performed to describe demographics and experiences. Principal component analysis was carried out using a varimax rotation to investigate informational needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 101 responses were returned (20.1% response rate). The median age of respondents was 45\u2009years and the median time since diagnosis was 10\u2009years. Control preferences skewed towards shared (42.6%) or patient\u2010led but clinician\u2010informed (35.6%). Decision regret was low for the population (median 12.5\/100, range 0\u2013100). Key informational needs related to medical therapy were benefits and risks of long\u2010term therapy, burden of hospital attendance, reproductive health, need for steroid treatment and impact on personal life. For surgery, these were stoma information, effect on daily life, effect on sexual and reproductive health, risks and benefits and disruption of life due to surgery.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This study has identified key areas for discussion when counselling patients about treatment decisions around medical therapy and surgery for UC.<\/jats:p><\/jats:sec>","DOI":"10.1111\/codi.16625","type":"journal-article","created":{"date-parts":[[2023,5,27]],"date-time":"2023-05-27T04:48:37Z","timestamp":1685162917000},"page":"1479-1488","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["A survey of patient informational preferences when choosing between medical and surgical therapy for ulcerative colitis: a sub\u2010study from the <scp>DISCUSS<\/scp> project"],"prefix":"10.1111","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9971-1635","authenticated-orcid":false,"given":"M. J.","family":"Lee","sequence":"first","affiliation":[{"name":"Department of Oncology and Metabolism University of Sheffield  Sheffield UK"},{"name":"Academic Directorate of General Surgery Sheffield Teaching Hospitals NHS Foundation Trust  Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A. M.","family":"Folan","sequence":"additional","affiliation":[{"name":"Department of Psychology, School of Social Sciences Leeds Beckett University  Leeds UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"D. M.","family":"Baker","sequence":"additional","affiliation":[{"name":"Academic Directorate of General Surgery Sheffield Teaching Hospitals NHS Foundation Trust  Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2819-3727","authenticated-orcid":false,"given":"S.","family":"Blackwell","sequence":"additional","affiliation":[{"name":"ACPGBI Patient Liaison Group  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"R.","family":"Wootton","sequence":"additional","affiliation":[{"name":"Academic Directorate of General Surgery Sheffield Teaching Hospitals NHS Foundation Trust  Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"K.","family":"Robinson","sequence":"additional","affiliation":[{"name":"Department of Gastroenterology Hull and East Yorkshire Hospitals  Hull UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"Sebastian","sequence":"additional","affiliation":[{"name":"Sheffield Inflammatory Bowel Disease Centre, Royal Hallamshire Hospital Sheffield Teaching Hospitals NHS Foundation Trust  Sheffield UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0980-2793","authenticated-orcid":false,"given":"S. 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J.","family":"Lobo","sequence":"additional","affiliation":[{"name":"Department of Gastroenterology Hull and East Yorkshire Hospitals  Hull UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,5,26]]},"reference":[{"key":"e_1_2_10_2_1","article-title":"The impact of biological interventions for ulcerative colitis on health\u2010related quality of life","volume":"9","author":"LeBlanc K","year":"2015","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.gastro.2011.01.055"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/ecco-jcc\/jjy040"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(16)32126-2"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1093\/ibd\/izx026"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/codi.14936"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12885-016-2292-3"},{"key":"e_1_2_10_9_1","unstructured":"Recommendations for Research. Ulcerative Colitis: Management. NICE Guideline [NG130]. Published 03 May2019. Accessed January 1 2023.https:\/\/www.nice.org.uk\/guidance\/ng130\/chapter\/Recommendations\u2010for\u2010research"},{"key":"e_1_2_10_10_1","unstructured":"Montgomery.The Montgomery Judgement. Montgomery (Appellant) v Lanarkshire Health Board (Respondent) (Scotland). Preprint at2015. 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