{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,18]],"date-time":"2026-03-18T16:13:59Z","timestamp":1773850439824,"version":"3.50.1"},"reference-count":28,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2023,2,5]],"date-time":"2023-02-05T00:00:00Z","timestamp":1675555200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000062","name":"National Institute of Diabetes and Digestive and Kidney Diseases","doi-asserted-by":"publisher","award":["R01DK120551"],"award-info":[{"award-number":["R01DK120551"]}],"id":[{"id":"10.13039\/100000062","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000062","name":"National Institute of Diabetes and Digestive and Kidney Diseases","doi-asserted-by":"publisher","award":["R03DK132222"],"award-info":[{"award-number":["R03DK132222"]}],"id":[{"id":"10.13039\/100000062","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000062","name":"National Institute of Diabetes and Digestive and Kidney Diseases","doi-asserted-by":"publisher","award":["K23DK129820"],"award-info":[{"award-number":["K23DK129820"]}],"id":[{"id":"10.13039\/100000062","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Clinical Transplantation"],"published-print":{"date-parts":[[2023,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant programs to register donor candidates while the SRTR conducts follow\u2010up.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff from October 26, 2021 to December 17, 2021.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and eight liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre\u2010operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN postdonation follow\u2010up requirements, ease\u2010of\u2010use, protection from data use for regulation, adequate data security, and equity in data access.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This survey identifies potential targets to strengthen participation in the effort to create a national living donor registry in the United States. Collaboration and investment to overcome barriers to LDC participation among transplant programs are vital to generate long\u2010term data on living donation for donor candidates, donors, and patients in need of transplant.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ctr.14908","type":"journal-article","created":{"date-parts":[[2023,1,9]],"date-time":"2023-01-09T16:44:04Z","timestamp":1673282644000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":16,"title":["Factors enabling transplant program participation in the Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective: A national survey"],"prefix":"10.1111","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9423-4849","authenticated-orcid":false,"given":"Krista L.","family":"Lentine","sequence":"first","affiliation":[{"name":"Saint Louis University Transplant Center SSM\u2010Saint Louis University Hospital  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4666-1870","authenticated-orcid":false,"given":"Mary Amanda","family":"Dew","sequence":"additional","affiliation":[{"name":"University of Pittsburgh  Pittsburgh PA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Huiling","family":"Xiao","sequence":"additional","affiliation":[{"name":"Saint Louis University Transplant Center SSM\u2010Saint Louis University Hospital  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Addie","family":"Wisniewski","sequence":"additional","affiliation":[{"name":"Saint Louis University Transplant Center SSM\u2010Saint Louis University Hospital  St. Louis Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Macey L.","family":"Levan","sequence":"additional","affiliation":[{"name":"New York University  New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fawaz","family":"Al Ammary","sequence":"additional","affiliation":[{"name":"University of Irvine  Irvine California USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Asif","family":"Sharfuddin","sequence":"additional","affiliation":[{"name":"Indiana University  Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5684-0613","authenticated-orcid":false,"given":"David A.","family":"Axelrod","sequence":"additional","affiliation":[{"name":"University of Iowa  Iowa City Iowa USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy D.","family":"Waterman","sequence":"additional","affiliation":[{"name":"Houston Methodist Transplant Institute  Houston Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bertram","family":"Kasiske","sequence":"additional","affiliation":[{"name":"Hennepin County Medical Center  Minneapolis Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,2,5]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.2215\/CJN.11220918"},{"key":"e_1_2_10_3_1","volume-title":"Data Submission Requirements"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajt.14356"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajt.15256"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2011-000202"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1093\/ndt\/gfab054"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/TP.0000000000000877"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajt.14365"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/TXD.0000000000001143"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajt.16983"},{"key":"e_1_2_10_12_1","unstructured":"LentineKL SnyderJJ Optimizing Living Donor Follow\u2010up in Contemporary Practice. Transplant Management Forum 04\/11\/2022. 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Accessed December 23 2022.https:\/\/optn.transplant.hrsa.gov\/media\/jtqe1hrw\/20210730_ldc_ydatacollectionworkgroup_summary.pdf"},{"key":"e_1_2_10_23_1","unstructured":"Organ Procurement and Transplantation Network (OPTN).OPTN Living Donor Committee Living Donor Data Collection Workgroup. Meeting Summary December 20 2021. Accessed December 23 2022.https:\/\/optn.transplant.hrsa.gov\/media\/rj2l0f10\/20211220_ldc_datacollectionworkgroup_summary_final.pdf"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/ctr.13088"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajt.15964"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajt.15951"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.34067\/KID.0004592020"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1111\/ajt.16523"},{"key":"e_1_2_10_29_1","unstructured":"2022 SRTR Consensus Conference Day 3 Part 2. 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