{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,9]],"date-time":"2025-12-09T15:36:25Z","timestamp":1765294585610},"reference-count":10,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2013,4,19]],"date-time":"2013-04-19T00:00:00Z","timestamp":1366329600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Clinical Translational Sci"],"published-print":{"date-parts":[[2013,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Utilizing billing records, we identified patients seen at Mayo Clinic with a diagnosis or history of fibromyalgia who were then contacted for enrollment in a fibromyalgia research registry. Fibromyalgia was confirmed through medical record review. Eligible patients were mailed an invitation that included a demographic questionnaire and the Fibromyalgia Research Survey. The Fibromyalgia Research Survey yields a widespread pain score (scale range 0\u201319) and a symptom severity score (scale range 0\u201312). A total of 4,034 patients returned the completed survey; 92.8% were female, their mean age was 57.4 (\u00b113.4), and 83.7% were from the Midwest region of the United States. The mean widespread pain score for all participants was 11.3 (\u00b14.5) and the mean symptom severity score was 8.2 (\u00b12.4), indicating moderate\u2010to\u2010severe fibromyalgia symptoms, which is not unusual for patients presenting to a tertiary care center. Using a systematic process, we describe the creation of a fibromyalgia registry for future research.<\/jats:p>","DOI":"10.1111\/cts.12056","type":"journal-article","created":{"date-parts":[[2013,4,19]],"date-time":"2013-04-19T18:58:49Z","timestamp":1366397929000},"page":"398-399","source":"Crossref","is-referenced-by-count":11,"title":["Construction of a US Fibromyalgia Registry Using the Fibromyalgia Research Survey Criteria"],"prefix":"10.1111","volume":"6","author":[{"given":"Mary O.","family":"Whipple","sequence":"first","affiliation":[{"name":"Fibromyalgia and Chronic Fatigue Clinic Mayo Clinic  Rochester Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Samantha J.","family":"McAllister","sequence":"additional","affiliation":[{"name":"Fibromyalgia and Chronic Fatigue Clinic Mayo Clinic  Rochester Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Terry H.","family":"Oh","sequence":"additional","affiliation":[{"name":"Physical Medicine and Rehabilitation Mayo Clinic  Rochester Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Connie A.","family":"Luedtke","sequence":"additional","affiliation":[{"name":"Department of Nursing, Mayo Clinic  Rochester Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Loren L.","family":"Toussaint","sequence":"additional","affiliation":[{"name":"Department of Psychology Luther College  Decorah Iowa USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ann","family":"Vincent","sequence":"additional","affiliation":[{"name":"General Internal Medicine Mayo Clinic  Rochester Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2013,4,19]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/keq155"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamcollsurg.2011.11.001"},{"issue":"3","key":"e_1_2_7_4_1","first-page":"138","article-title":"Creation and implementation of a prospective pediatric clinical outcomes registry","volume":"38","author":"Cassidy LD","year":"2011","journal-title":"J Registry Manag."},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmn.2004.12.005"},{"issue":"10","key":"e_1_2_7_6_1","first-page":"26","article-title":"Disease management at Mayo Clinic: improving satisfaction of fibromyalgia patients and their physicians","volume":"50","author":"Nayar V","year":"2001","journal-title":"Group Pract J."},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.100594"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2008.08.010"},{"issue":"10","key":"e_1_2_7_9_1","first-page":"S794","article-title":"Predictors of fatigue in fibromyalgia","volume":"64","author":"Vincent A","year":"2012","journal-title":"Arthritis Rheum."},{"issue":"10","key":"e_1_2_7_10_1","first-page":"S416","article-title":"Pain, sleep disturbance, and depression mediate the association between body mass index and fatigue in fibromyalgia","volume":"64","author":"Whipple MO","year":"2012","journal-title":"Arthritis Rheum."},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.110026"}],"container-title":["Clinical and Translational Science"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fcts.12056","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/ascpt.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/cts.12056","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,3]],"date-time":"2023-10-03T10:41:53Z","timestamp":1696329713000},"score":1,"resource":{"primary":{"URL":"https:\/\/ascpt.onlinelibrary.wiley.com\/doi\/10.1111\/cts.12056"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,4,19]]},"references-count":10,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2013,10]]}},"alternative-id":["10.1111\/cts.12056"],"URL":"https:\/\/doi.org\/10.1111\/cts.12056","archive":["Portico"],"relation":{},"ISSN":["1752-8054","1752-8062"],"issn-type":[{"value":"1752-8054","type":"print"},{"value":"1752-8062","type":"electronic"}],"subject":[],"published":{"date-parts":[[2013,4,19]]}}}