{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,4,14]],"date-time":"2025-04-14T04:02:20Z","timestamp":1744603340338,"version":"3.40.4"},"reference-count":31,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2024,5,20]],"date-time":"2024-05-20T00:00:00Z","timestamp":1716163200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Deutsche Derma Gesell"],"published-print":{"date-parts":[[2024,6]]},"abstract":"<jats:title>SUMMARY<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>The chronic inflammatory skin disease hidradenitis suppurativa (HS) leads to severe pain and reduced quality of life. Nonetheless, it often takes years until a correct diagnosis is made. In this analysis, disease\u2010related experiences and pathways of patients with HS were investigated and compared with the physicians\u2019 perspective.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Public posts on forums and social media as well as results of a survey conducted among dermatologists and their patients on the actual medical care reality of HS in Germany were analysed. Furthermore, claims data from German health insurance companies were evaluated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Patients with HS suffer from a 43.3% reduction in working ability. Dermatology (26.5%) was the most frequently consulted specialty, with HS diagnosed predominantly in the inpatient setting (43.8%). Abscesses were described as the most frequent alternative diagnosis in HS patients (53.2%). Patient\u2010reported changes of physicians in dermatology (34.1%) and surgery (42.4%) occurred predominantly within the specialty. Dermatology received most referrals from general practitioners (67.1%), but only 12.1% from surgeons.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>There is an urgent need to reduce the delay in diagnosis and the prolonged burden of disease in patients with HS. Therefore, awareness of the disease, its detection and treatment which goes beyond dermatology should be promoted, if possible as part of medical studies.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ddg.15411","type":"journal-article","created":{"date-parts":[[2024,5,21]],"date-time":"2024-05-21T02:59:56Z","timestamp":1716260396000},"page":"803-809","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Diagnostic delay in Hidradenitis suppurativa investigated using data from social media and from statutory health insurances"],"prefix":"10.1111","volume":"22","author":[{"given":"Uwe","family":"Kirschner","sequence":"first","affiliation":[{"name":"Haut\u2010 und Venenzentrum Mainz Dr. med. Uwe Kirschner and Colleagues  Mainz Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria","family":"Kahn","sequence":"additional","affiliation":[{"name":"Temedica GmbH  Munich Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Steffeni","family":"Papukchieva","sequence":"additional","affiliation":[{"name":"Temedica GmbH  Munich Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karolina","family":"Stosio","sequence":"additional","affiliation":[{"name":"Temedica GmbH  Munich Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andreas","family":"Keis","sequence":"additional","affiliation":[{"name":"Temedica GmbH  Munich Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mona H. 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