{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,11]],"date-time":"2026-06-11T13:03:29Z","timestamp":1781183009249,"version":"3.54.1"},"reference-count":32,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,6,11]],"date-time":"2026-06-11T00:00:00Z","timestamp":1781136000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,6,11]],"date-time":"2026-06-11T00:00:00Z","timestamp":1781136000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Deutsche Derma Gesell"],"abstract":"<jats:title>Summary<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Studies on the state of medical care for patients with cutaneous T\u2010cell lymphoma (CTCL) are limited. To date, only secondary data analyses are available for Germany.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patients and Methods<\/jats:title>\n                    <jats:p>Cross\u2010sectional study conducted over a one\u2010year recruitment period (01 March 2024 to 28 February 2025) in the dermatological department of a German university hospital. The physician questionnaire recorded the skin\u2010related burden of disease using the mSWAT and data on disease course, while the patient questionnaire recorded socio\u2010demographic and clinical parameters, patient satisfaction, and health\u2010related quality of life using the Skindex\u201029.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>121 patients (median age 63 years, 66.9\u00a0% male) with mycosis fungoides (95.0\u00a0%) and S\u00e9zary syndrome (5.0\u00a0%) were included. 30.0\u00a0% of the working patients reported sick leave due to CTCL and 51.7\u00a0% had already been hospitalized at least once for this indication. The Skindex\u201029 revealed an impairment in quality of life in 52.9\u00a0% of patients. Patients with higher disease stages (IIB\u2013IVB according to EORTC\/ISCL), lack of response to therapy, and an mSWAT \u2265\u00a030 showed a significantly higher impairment in quality of life. A median of 4 follow\u2010up appointments were attended annually, with 63.6\u00a0% of patients being treated exclusively at the university hospital.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study is the first to analyze the state of medical care of patients with mycosis fungoides and S\u00e9zary syndrome using primary data from routine care at a German university hospital and reveals a high burden of disease as well as a high need for care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/ddg.70194x","type":"journal-article","created":{"date-parts":[[2026,6,11]],"date-time":"2026-06-11T12:51:58Z","timestamp":1781182318000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Current state of medical care for patients with mycosis fungoides and S\u00e9zary syndrome at a German university hospital \u2013 a cross\u2010sectional study"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9188-861X","authenticated-orcid":false,"given":"Inga","family":"Hansen\u2010Abeck","sequence":"first","affiliation":[{"name":"Department of Dermatology and Venereology University Hospital Hamburg\u2010Eppendorf  Hamburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Larissa","family":"K\u00f6lln","sequence":"additional","affiliation":[{"name":"Department of Dermatology and Venereology University Hospital Hamburg\u2010Eppendorf  Hamburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Finn","family":"Abeck","sequence":"additional","affiliation":[{"name":"Department of Dermatology and Venereology University Hospital Hamburg\u2010Eppendorf  Hamburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-3999-5902","authenticated-orcid":false,"given":"Glenn","family":"Geidel","sequence":"additional","affiliation":[{"name":"Department of Dermatology and Venereology University Hospital Hamburg\u2010Eppendorf  Hamburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan W.","family":"Schneider","sequence":"additional","affiliation":[{"name":"Department of Dermatology and Venereology University Hospital Hamburg\u2010Eppendorf  Hamburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nina","family":"Booken","sequence":"additional","affiliation":[{"name":"Department of Dermatology and Venereology University Hospital Hamburg\u2010Eppendorf  Hamburg 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