{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T11:01:55Z","timestamp":1740135715135,"version":"3.37.3"},"reference-count":25,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2015,6,23]],"date-time":"2015-06-23T00:00:00Z","timestamp":1435017600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["5R01HD043100\u201005"],"award-info":[{"award-number":["5R01HD043100\u201005"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["303189","1004384"],"award-info":[{"award-number":["303189","1004384"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2015,12]]},"abstract":"<jats:sec><jats:title>Aim<\/jats:title><jats:p>The aim of this study was to investigate the validity of using a Bouchard activity record (<jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content>) in individuals with Rett syndrome to measure physical activity, as compared with pragmatic criterion standard measures of walking status and step counts recorded using the StepWatch activity monitor (<jats:styled-content style=\"fixed-case\">SAM<\/jats:styled-content>).<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>During the waking hours of 1\u00a0day, 43 females (mean age 21y, <jats:styled-content style=\"fixed-case\">SD<\/jats:styled-content> 9y) wore a <jats:styled-content style=\"fixed-case\">SAM<\/jats:styled-content> whilst a proxy completed a modified <jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content>. Responses to the <jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content> were compared among participants, who were grouped according to walking status, using the Mann\u2013Whitney two\u2010sample rank\u2010sum test. Relationships were sought between <jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content> responses and step counts using linear regression.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>According to the proxy\u2010reported <jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content> responses, those who needed assistance with walking spent more time sitting (median [interquartile range] 9h 15min [8h 8min\u201310h 30min] vs 6h 15min [4h 15min\u20138h 30min]; <jats:italic>p<\/jats:italic>&lt;0.001) and less time standing (1h [38min\u20131h 30min] vs 2h 15min [45min\u20133h 45min]; <jats:italic>p<\/jats:italic>=0.04) than those who could walk independently. In those who could walk independently, time classified as \u2018uptime\u2019 (standing and walking) using the <jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content> was associated with increased step count (<jats:italic>r<\/jats:italic><jats:sup>2<\/jats:sup>=0.58; <jats:italic>p<\/jats:italic>&lt;0.001).<\/jats:p><\/jats:sec><jats:sec><jats:title>Interpretation<\/jats:title><jats:p>These data support the validity of proxy\u2010reported <jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content> responses. In those who could walk independently, uptime, classified using the <jats:styled-content style=\"fixed-case\">BAR<\/jats:styled-content>, could be used to estimate daily step count. This tool offers an inexpensive method for clinicians to gain insights into physical activity levels in individuals with Rett syndrome.<\/jats:p><\/jats:sec>","DOI":"10.1111\/dmcn.12838","type":"journal-article","created":{"date-parts":[[2015,6,24]],"date-time":"2015-06-24T05:26:07Z","timestamp":1435123567000},"page":"1137-1142","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":14,"title":["A validation study of a modified Bouchard activity record that extends the concept of \u2018uptime\u2019 to Rett syndrome"],"prefix":"10.1111","volume":"57","author":[{"given":"Leon","family":"Lor","sequence":"first","affiliation":[{"name":"School of Physiotherapy and Exercise Science Curtin University Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kylie","family":"Hill","sequence":"additional","affiliation":[{"name":"School of Physiotherapy and Exercise Science Curtin University Perth WA Australia"},{"name":"Lung Institute of Western Australia and Centre for Asthma Allergy and Respiratory Research The University of Western Australia Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Jacoby","sequence":"additional","affiliation":[{"name":"Telethon Kids Institute The University of Western Australia Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helen","family":"Leonard","sequence":"additional","affiliation":[{"name":"Telethon Kids Institute The University of Western Australia Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jenny","family":"Downs","sequence":"additional","affiliation":[{"name":"School of Physiotherapy and Exercise Science Curtin University Perth WA Australia"},{"name":"Telethon Kids Institute The University of Western Australia Perth WA Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2015,6,23]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/13810"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1203\/PDR.0b013e3182242461"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/ana.22124"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638280150504180"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1055\/s-0028-1104575"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/0883073811402688"},{"volume-title":"ACSM's Guidelines for Exercise Testing and Prescription","year":"2009","author":"Thompson WR","key":"e_1_2_7_8_1"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2003.tb00929.x"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1161\/01.CIR.0000075572.40158.77"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.3928\/00904481-20121126-03"},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.2165\/00007256-199519010-00005"},{"key":"e_1_2_7_13_1","doi-asserted-by":"publisher","DOI":"10.4061\/2011\/708510"},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2014.993436"},{"key":"e_1_2_7_15_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2011.630773"},{"key":"e_1_2_7_16_1","first-page":"8","article-title":"The prevalence and incidence of Rett syndrome in Australia","volume":"6","author":"Leonard H","year":"1997","journal-title":"Eur Child Adolesc Psych"},{"key":"e_1_2_7_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/jsr.12240"},{"key":"e_1_2_7_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-006-0293-9"},{"key":"e_1_2_7_19_1","doi-asserted-by":"publisher","DOI":"10.1093\/ajcn\/37.3.461"},{"key":"e_1_2_7_20_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.bpo.0000218532.66856.6c"},{"key":"e_1_2_7_21_1","doi-asserted-by":"publisher","DOI":"10.1249\/MSS.0b013e3182351913"},{"key":"e_1_2_7_22_1","doi-asserted-by":"publisher","DOI":"10.1249\/01.mss.0000183344.46077.bb"},{"key":"e_1_2_7_23_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1368980009990681"},{"key":"e_1_2_7_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/01241398-200409000-00012"},{"key":"e_1_2_7_25_1","doi-asserted-by":"publisher","DOI":"10.1002\/mrdd.10020"},{"key":"e_1_2_7_26_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.12093"}],"container-title":["Developmental Medicine &amp; Child Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fdmcn.12838","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/dmcn.12838","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,3]],"date-time":"2023-10-03T17:08:10Z","timestamp":1696352890000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/dmcn.12838"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,6,23]]},"references-count":25,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2015,12]]}},"alternative-id":["10.1111\/dmcn.12838"],"URL":"https:\/\/doi.org\/10.1111\/dmcn.12838","archive":["Portico"],"relation":{},"ISSN":["0012-1622","1469-8749"],"issn-type":[{"type":"print","value":"0012-1622"},{"type":"electronic","value":"1469-8749"}],"subject":[],"published":{"date-parts":[[2015,6,23]]},"assertion":[{"value":"2015-05-25","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2015-06-23","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}