{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T23:30:42Z","timestamp":1782862242266,"version":"3.54.5"},"reference-count":27,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2016,9,21]],"date-time":"2016-09-21T00:00:00Z","timestamp":1474416000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000071","name":"National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["RO1 HD048629"],"award-info":[{"award-number":["RO1 HD048629"]}],"id":[{"id":"10.13039\/100000071","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2017,3]]},"abstract":"<jats:sec><jats:title>Aim<\/jats:title><jats:p>To assess changes over time in parents' expectations of adult milestone achievement (college attendance, full\u2010time job attainment, independent living, marriage, parenthood) for young people with spina bifida, to examine how expectancies relate to actual milestone achievement, and to compare milestone achievement in emerging adults with spina bifida with that of peers with typical development.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Sixty\u2010eight families of children with spina bifida (mean age 8y 4mo, 37 males, 31 females) and 68 families of children with typical development (mean age 8y 6mo, 37 males, 31 females) participated at Time 1. At all subsequent timepoints, parents of young people with spina bifida were asked to rate their expectations of emerging adulthood milestone achievement. At Time 7, when participants were 22 to 23 years old, milestone achievement was assessed.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Parents of young people with spina bifida lowered their expectations over time for most milestones; parents of children with higher cognitive ability reported decreases of lower magnitude. Parent expectancies were optimistic and unrelated to actual milestone achievement. Emerging adults with spina bifida were less likely than individuals with typical development to achieve all milestones.<\/jats:p><\/jats:sec><jats:sec><jats:title>Interpretation<\/jats:title><jats:p>Optimistic parental expectations may be adaptive for children with spina bifida and their families, although it is important for families to set realistic goals. Healthcare providers serve a key role in helping families of young people with spina bifida prepare for emerging adulthood.<\/jats:p><\/jats:sec>","DOI":"10.1111\/dmcn.13279","type":"journal-article","created":{"date-parts":[[2016,9,21]],"date-time":"2016-09-21T11:52:37Z","timestamp":1474458757000},"page":"311-316","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":16,"title":["Milestone achievement in emerging adulthood in spina bifida: a longitudinal investigation of parental expectations"],"prefix":"10.1111","volume":"59","author":[{"given":"Christina E","family":"Holbein","sequence":"first","affiliation":[{"name":"Department of Psychology Loyola University Chicago Chicago IL USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathy","family":"Zebracki","sequence":"additional","affiliation":[{"name":"Department of Psychology Shriners Hospitals for Children Chicago IL USA"},{"name":"Department of Psychiatry and Behavioral Sciences Northwestern University Feinberg School of Medicine Chicago IL USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Colleen F","family":"Bechtel","sequence":"additional","affiliation":[{"name":"Department of Psychology Loyola University Chicago Chicago IL USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jaclyn","family":"Lennon Papadakis","sequence":"additional","affiliation":[{"name":"Department of Psychology Loyola University Chicago Chicago IL USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Franks Bruno","sequence":"additional","affiliation":[{"name":"Wolff Child Psychology Denver CO USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Grayson N","family":"Holmbeck","sequence":"additional","affiliation":[{"name":"Department of Psychology Loyola University Chicago Chicago IL USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2016,9,21]]},"reference":[{"key":"e_1_2_8_2_1","unstructured":"Centers for Disease Control and Prevention (CDC). (2013)Neural tube defect ascertainment project.http:\/\/www.nbdpn.org\/current\/resources\/ntd_fa_info.html(accessed 22 August 2016)."},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsl002"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.20735"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1353\/foc.0.0044"},{"key":"e_1_2_8_6_1","volume-title":"The Post\u2010High School Outcomes of Young Adults with Disabilities up to 8 Years after High School: A Report from the National Longitudinal Transition Study\u20102 (NLTS\u20102)","author":"Newman L","year":"2011"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1352\/1944-7558-115.4.340"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsu017"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsj018"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsq075"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2010.04.004"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/1044207311414680"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1559-1816.2010.00677.x"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1352\/0895-8017(1998)103<0117:PDEACC>2.0.CO;2"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.3102\/00028312038003547"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1177\/10883576040190010401"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0019599"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1037\/0033-2909.112.1.155"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/0148-9062(75)90418-0"},{"key":"e_1_2_8_20_1","volume-title":"Peabody Picture Vocabulary Test \u2013 Revised Manual","author":"Dunn LM","year":"1981"},{"key":"e_1_2_8_21_1","volume-title":"Using Multivariate Statistics","author":"Tabachnik BG","year":"2013"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0895-4356(96)00236-3"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2004.tb00479.x"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/27.1.5"},{"key":"e_1_2_8_25_1","doi-asserted-by":"publisher","DOI":"10.1080\/15295192.2012.709151"},{"key":"e_1_2_8_26_1","doi-asserted-by":"publisher","DOI":"10.1002\/mrdd.20169"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.20468"},{"key":"e_1_2_8_28_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.b2393"}],"container-title":["Developmental Medicine &amp; Child Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fdmcn.13279","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fdmcn.13279","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/dmcn.13279","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,24]],"date-time":"2023-09-24T16:27:38Z","timestamp":1695572858000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/dmcn.13279"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,9,21]]},"references-count":27,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2017,3]]}},"alternative-id":["10.1111\/dmcn.13279"],"URL":"https:\/\/doi.org\/10.1111\/dmcn.13279","archive":["Portico"],"relation":{},"ISSN":["0012-1622","1469-8749"],"issn-type":[{"value":"0012-1622","type":"print"},{"value":"1469-8749","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,9,21]]},"assertion":[{"value":"2016-08-12","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2016-09-21","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}