{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T20:01:38Z","timestamp":1778097698149,"version":"3.51.4"},"reference-count":67,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2016,12,9]],"date-time":"2016-12-09T00:00:00Z","timestamp":1481241600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100007370","name":"Universit\u00e9 Catholique de Louvain","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100007370","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2017,6]]},"abstract":"<jats:sec><jats:title>Aim<\/jats:title><jats:p>Dysphagia is frequent in paediatric patients with neuromuscular diseases (<jats:styled-content style=\"fixed-case\">pNMD<\/jats:styled-content>). Its detection is important for initiating early diagnosis and treatment as well as for minimizing related complications. The aim of this study was to review the literature on dysphagia screening and evaluation tools in <jats:styled-content style=\"fixed-case\">pNMD<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A systematic review was performed on the basis of the Preferred Reporting Items for Systematic Reviews and Meta\u2010Analyses guidelines. Three databases (PubMed, <jats:styled-content style=\"fixed-case\">CINAHL<\/jats:styled-content>, and ScienceDirect) were searched. Measurement properties of tools and the quality index developed by Downs and Black were considered.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Our search yielded four studies and four different tools for paediatric patients with Duchenne muscular dystrophy (<jats:styled-content style=\"fixed-case\">DMD<\/jats:styled-content>). The Sydney Swallow Questionnaire, surface electromyography, Neuromuscular Disease Swallowing Status Scale, and videofluoroscopic swallow study showed interesting properties for <jats:styled-content style=\"fixed-case\">DMD<\/jats:styled-content>. No data were available for other <jats:styled-content style=\"fixed-case\">NMD<\/jats:styled-content> and children under 9 years. The mean total score for the quality index was 17.5.<\/jats:p><\/jats:sec><jats:sec><jats:title>Interpretation<\/jats:title><jats:p>We did not identify any superior validated tools, either for screening or for evaluation of dysphagia, and no widely accepted protocol. Further studies are needed to identify the simplest assessment with the best psychometric properties for <jats:styled-content style=\"fixed-case\">pNMD<\/jats:styled-content>. We recommend establishing a specific tool for <jats:styled-content style=\"fixed-case\">pNMD<\/jats:styled-content>.<\/jats:p><\/jats:sec>","DOI":"10.1111\/dmcn.13354","type":"journal-article","created":{"date-parts":[[2016,12,9]],"date-time":"2016-12-09T12:59:24Z","timestamp":1481288364000},"page":"591-596","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":40,"title":["Screening and evaluation tools of dysphagia in children with neuromuscular diseases: a systematic review"],"prefix":"10.1111","volume":"59","author":[{"given":"Nicolas","family":"Audag","sequence":"first","affiliation":[{"name":"Institut de Recherche Exp\u00e9rimentale et Clinique (IREC) P\u00f4le de Pneumologie, ORL &amp; Dermatologie Universit\u00e9 Catholique de Louvain Brussels Belgium"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christophe","family":"Goubau","sequence":"additional","affiliation":[{"name":"Unit\u00e9 de Pneumologie 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