{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T13:52:47Z","timestamp":1790949167177,"version":"4.1.0"},"reference-count":30,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2022,5,30]],"date-time":"2022-05-30T00:00:00Z","timestamp":1653868800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2022,12]]},"abstract":"<jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To explore the lived experiences of adolescents with fetal alcohol spectrum disorder (FASD) to understand: the ways in which their challenges influence daily functioning; and the personal assets and external resources that facilitate participation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Semi\u2010structured interviews were conducted with four adolescents (one identified as non\u2010binary, one male, and two female) with FASD aged 13 to 15\u2009years. A photo elicitation approach facilitated participation, whereby adolescents first took photographs of their daily activities and environments. Photographs were subsequently used to generate discussion during the interviews. Data analysis involved using interpretative phenomenological analysis to generate themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Two superordinate themes and three subthemes relating to participants' lived experiences emerged from the interviews: (1) \u2018anxiety challenges participation\u2019 (subthemes [i] \u2018need for external support\u2019; [ii] \u2018the power of positive relationships\u2019; and [iii] \u2018talents and interests facilitate participation\u2019) and (2) \u2018importance of a unique identity\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Interpretation<\/jats:title>\n                    <jats:p>Findings illustrated the barriers adolescents experienced regarding their daily functioning and independence. Additionally, incorporating strengths into daily activities appeared to reduce anxiety and improve participation, and adolescents desired for their unique characteristics to be recognized and appreciated. To support adolescents with FASD, service providers should consider incorporating strengths\u2010based approaches and an explicit focus on facilitating the development of positive self\u2010identities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>What this paper adds<\/jats:title>\n                    <jats:p>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>Anxiety often prevented adolescents' independent participation in social activities, requiring caregiver assistance.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Strengths (e.g. talents, positive relationships) facilitated adolescents' participation and reduced their anxiety.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Clinicians and researchers should consider strengths\u2010based approaches to interventions targeting participation.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Interventions for adolescents with fetal alcohol spectrum disorder could focus on developing a positive self\u2010identity.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/dmcn.15290","type":"journal-article","created":{"date-parts":[[2022,5,31]],"date-time":"2022-05-31T01:23:58Z","timestamp":1653960238000},"page":"1547-1555","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":16,"title":["Lived experiences of adolescents with fetal alcohol spectrum disorder"],"prefix":"10.1111","volume":"64","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1519-1260","authenticated-orcid":false,"given":"Kelly","family":"Skorka","sequence":"first","affiliation":[{"name":"School of Health and Rehabilitation Sciences The University of Queensland  Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jodie","family":"Copley","sequence":"additional","affiliation":[{"name":"School of Health and Rehabilitation Sciences The University of Queensland  Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine","family":"McBryde","sequence":"additional","affiliation":[{"name":"School of Health and Rehabilitation Sciences The University of Queensland  Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela J.","family":"Meredith","sequence":"additional","affiliation":[{"name":"School of Health and Rehabilitation Sciences The University of Queensland  Brisbane Australia"},{"name":"School of Health and Rehabilitation Sciences University of the Sunshine Coast  Sunshine Coast Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natasha","family":"Reid","sequence":"additional","affiliation":[{"name":"Child Health Research Centre The University of Queensland  Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,5,30]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2017.1919"},{"key":"e_1_2_8_3_1","unstructured":"BowerC ElliottEJ. 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