{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,29]],"date-time":"2026-05-29T13:44:56Z","timestamp":1780062296524,"version":"3.54.0"},"reference-count":33,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2023,1,11]],"date-time":"2023-01-11T00:00:00Z","timestamp":1673395200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2023,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To evaluate the sexual and reproductive health education received by patients with myelomeningocele, the most severe form of spina bifida.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A survey designed to assess the sexual and reproductive health education given by a healthcare provider to patients with myelomeningocele was offered to all English\u2010speaking patients aged 12\u2009years or older with a myelomeningocele clinic visit.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>In total, 67 surveys were completed. Menstruation and menstrual management were discussed at a rate of 85% in females. Few patients had discussions with a provider about fertility (42%), sexuality (37%), risk of sexually transmitted infections (45%), or had a relationship with a reproductive healthcare provider (54%). Differences by sex were observed for contraceptive education. The rate of discussions increased with age. A total of 67% of female patients and 33% of male patients requested a referral to a reproductive healthcare provider.<\/jats:p><\/jats:sec><jats:sec><jats:title>Interpretation<\/jats:title><jats:p>Sexual and reproductive health education is part of comprehensive care for all patients and those with disabilities should not be excluded. The lack of consistent education received by patients supports the need for increased attention to this topic. We encourage multidisciplinary myelomeningocele clinics to establish a process for delivering complete and patient\u2010specific sexual and reproductive health education.<\/jats:p><\/jats:sec>","DOI":"10.1111\/dmcn.15494","type":"journal-article","created":{"date-parts":[[2023,1,12]],"date-time":"2023-01-12T04:49:36Z","timestamp":1673498976000},"page":"1105-1111","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Sexual and reproductive health education for patients with myelomeningocele"],"prefix":"10.1111","volume":"65","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0816-323X","authenticated-orcid":false,"given":"Carley M.","family":"Lutz","sequence":"first","affiliation":[{"name":"Center for Surgical Outcomes Research Center for Innovation in Pediatric Practice, The Abigail Wexner Research Institute, Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amanda","family":"Onwuka","sequence":"additional","affiliation":[{"name":"Center for Surgical Outcomes Research Center for Innovation in Pediatric Practice, The Abigail Wexner Research Institute, Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Molly E.","family":"Fuchs","sequence":"additional","affiliation":[{"name":"Department of Urology Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaret","family":"Carey","sequence":"additional","affiliation":[{"name":"Myelomeningocele Clinic Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Judy","family":"Griffey","sequence":"additional","affiliation":[{"name":"Myelomeningocele Clinic Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Victoria L.","family":"Hobensack","sequence":"additional","affiliation":[{"name":"Myelomeningocele Clinic Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Sharpe\u00a0Scandinaro","sequence":"additional","affiliation":[{"name":"Myelomeningocele Clinic Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"McCracken","sequence":"additional","affiliation":[{"name":"Department of Pediatric and Adolescent Gynecology Nationwide Children's Hospital  Columbus OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,1,11]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdr2.1589"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2015.7"},{"key":"e_1_2_8_4_1","unstructured":"Centers for Disease Control and Prevention.Health Issues & Treatments for Spina Bifida. Centers for Disease Control and Prevention.https:\/\/www.cdc.gov\/ncbddd\/spinabifida\/treatment.html. Published2020. Updated Septemeber 3 2020. 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