{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T03:38:32Z","timestamp":1778038712134,"version":"3.51.4"},"reference-count":35,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2023,7,6]],"date-time":"2023-07-06T00:00:00Z","timestamp":1688601600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100012256","name":"Cerebral Palsy Alliance Research Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100012256","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To better understand parents' beliefs about causation in cerebral palsy (CP) and the emotions related to those beliefs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>We surveyed 226 parents of children with CP aged 1 to 18\u2009years, recruited from the Victorian Cerebral Palsy Register, to evaluate their beliefs about the causes of CP, including genetic causes, causes specific to their own child, and their attitudes and emotions in relation to these.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Although 92% of participants reported that understanding the causes of their child's CP was important, uncertainty about the cause was expressed by 13%. The most frequently endorsed causal factors, in general and in their own child respectively, were intrapartum hypoxia (81%, 36%) or brain damage (69%, 22%), brain damage during pregnancy (73%, 28%), and preterm birth (66%, 28%). Genetic causes were deemed relevant by 13% of participants and hospital or professional error by 16%. Parents shared related feelings of anger (59%), sadness (80%), guilt (61%), and confusion (53%); parental anger was more likely when their child's CP was attributed to intrapartum events.<\/jats:p><\/jats:sec><jats:sec><jats:title>Interpretation<\/jats:title><jats:p>Substantial parental interest in understanding the causes of CP, together with uncertainty about the causes, parents' causal attributions, and significant emotional sequelae, highlight a strong need for provision of information and support for families of children recently diagnosed with CP.<\/jats:p><\/jats:sec><jats:sec><jats:title>What this paper adds<\/jats:title><jats:p>\n<jats:list list-type=\"bullet\">\n<jats:list-item><jats:p>Understanding the causes of their child's cerebral palsy (CP) was important to parents.<\/jats:p><\/jats:list-item>\n<jats:list-item><jats:p>Parents most often endorsed intrapartum factors as a cause of CP.<\/jats:p><\/jats:list-item>\n<jats:list-item><jats:p>Parents reported experiencing strong emotions about the causes of their child's CP.<\/jats:p><\/jats:list-item>\n<\/jats:list><\/jats:p><\/jats:sec>","DOI":"10.1111\/dmcn.15708","type":"journal-article","created":{"date-parts":[[2023,7,7]],"date-time":"2023-07-07T05:42:30Z","timestamp":1688708550000},"page":"258-266","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Causation in cerebral palsy: Parental beliefs and associated emotions"],"prefix":"10.1111","volume":"66","author":[{"given":"Ren\u00e9e","family":"Smyth","sequence":"first","affiliation":[{"name":"Department of Paediatrics, Royal Children's Hospital University of Melbourne  Melbourne Victoria Australia"},{"name":"Clinical Genomics St Vincent's Health Service  Sydney New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9415-5246","authenticated-orcid":false,"given":"Susan M.","family":"Reid","sequence":"additional","affiliation":[{"name":"Department of Paediatrics, Royal Children's Hospital University of Melbourne  Melbourne Victoria Australia"},{"name":"Murdoch Children's Research Institute, Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kate","family":"Paton","sequence":"additional","affiliation":[{"name":"Murdoch Children's Research Institute, Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Angela T.","family":"Guzys","sequence":"additional","affiliation":[{"name":"Murdoch Children's Research Institute, Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Claire E.","family":"Wakefield","sequence":"additional","affiliation":[{"name":"School of Clinical Medicine, Medicine and Health University of New South Wales  Sydney New South Wales Australia"},{"name":"Behavioural Sciences Unit Kids Cancer Centre, Sydney Children's Hospital  Randwick New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7191-8511","authenticated-orcid":false,"given":"David J.","family":"Amor","sequence":"additional","affiliation":[{"name":"Department of Paediatrics, Royal Children's Hospital University of Melbourne  Melbourne Victoria Australia"},{"name":"Murdoch Children's Research Institute, Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,7,6]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rehab.2019.09.008"},{"key":"e_1_2_7_3_1","first-page":"8","article-title":"A report: the definition and classification of cerebral palsy April 2006","volume":"109","author":"Rosenbaum P","year":"2007","journal-title":"Developmental Medicine and Child Neurology. 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