{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,23]],"date-time":"2026-06-23T23:02:04Z","timestamp":1782255724659,"version":"3.54.5"},"reference-count":34,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2024,7,19]],"date-time":"2024-07-19T00:00:00Z","timestamp":1721347200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2025,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To explore the experiences of health services among adults with cerebral palsy (CP) in Ireland, from the perspectives of adults with CP, their support people, and service providers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A qualitative descriptive study design was used. In\u2010depth semi\u2010structured interviews were conducted between March and August 2021 with adults with CP, people who supported them, and health professionals. Thematic analysis was used to evaluate the data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Twenty\u2010one adults with CP, seven support people (family carer[s], spouse or partner, or friend), and 15 service providers participated in the study. Adults had a mean age of 38\u2009years 5\u2009months (range 22\u201358\u2009years) and were classified in Gross Motor Function Classification System levels I to V. Five themes were identified from the data: (1) access challenges in adult services; (2) knowledge and understanding of CP; (3) support people's role and care burden; (4) communication and interaction in adult services; and (5) health system challenges.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Adults with CP in Ireland face multiple challenges accessing the health services they need. Services were reported to be inadequate, with limited resources and understanding of CP. Participants highlighted a need for system\u2010level interventions, including enhanced training for health professionals to effectively meet the needs of adults with CP.<\/jats:p><\/jats:sec>","DOI":"10.1111\/dmcn.16037","type":"journal-article","created":{"date-parts":[[2024,7,20]],"date-time":"2024-07-20T06:24:27Z","timestamp":1721456667000},"page":"235-244","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Experiences of health services for adults with cerebral palsy, their support people, and service providers"],"prefix":"10.1111","volume":"67","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2631-8482","authenticated-orcid":false,"given":"Manjula","family":"Manikandan","sequence":"first","affiliation":[{"name":"School of Physiotherapy, RCSI University of Medicine and Health Sciences  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2067-5091","authenticated-orcid":false,"given":"Claire","family":"Kerr","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery Queen's University Belfast  UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8971-1236","authenticated-orcid":false,"given":"Jennifer","family":"Fortune","sequence":"additional","affiliation":[{"name":"School of Physiotherapy, RCSI University of Medicine and Health Sciences  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Walsh","sequence":"additional","affiliation":[{"name":"Central Remedial Clinic  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3768-2132","authenticated-orcid":false,"given":"Jennifer","family":"Ryan","sequence":"additional","affiliation":[{"name":"School of Physiotherapy, RCSI University of Medicine and Health Sciences  Dublin Ireland"},{"name":"College of Health and Life Sciences Brunel University  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5312-5101","authenticated-orcid":false,"given":"Aisling","family":"Walsh","sequence":"additional","affiliation":[{"name":"Department of Public Health and Epidemiology, School of Population Health, RCSI University of Medicine and Health Sciences  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,7,19]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2020-044614"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2020.01.009"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.13737"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamaneurol.2018.4147"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15526"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15097"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15233"},{"key":"e_1_2_9_9_1","first-page":"1","article-title":"Access, use and satisfaction with physiotherapy services among adults with cerebral palsy living in the United Kingdom and Ireland","volume":"4","author":"Manikandan M","year":"2022","journal-title":"Disability and Rehabilitation."},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/13668250802082898"},{"issue":"1","key":"e_1_2_9_11_1","article-title":"Accessing primary health care services for transition\u2010aged young adults with cerebral palsy; perspectives of young adults, parents, and physicians","volume":"1","author":"Brandon E","year":"2019","journal-title":"Journal of Transition Medicine [Internet]."},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.21768"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.4770180211"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"issue":"7227","key":"e_1_2_9_16_1","first-page":"114","article-title":"Qualitative research in health care","volume":"320","author":"Pope C","year":"2000","journal-title":"Analysing qualitative data. 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