{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,26]],"date-time":"2026-02-26T00:28:00Z","timestamp":1772065680720,"version":"3.50.1"},"reference-count":28,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2024,10,26]],"date-time":"2024-10-26T00:00:00Z","timestamp":1729900800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","award":["NIHR202478"],"award-info":[{"award-number":["NIHR202478"]}],"id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2025,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To seek consensus on recommendations for the delivery of services to disabled children in England during future emergencies.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Candidate recommendations were drafted based on our related mapping review and qualitative research related to experiences during the COVID\u201019 pandemic. Iterative workshops with professionals and parent carers helped to refine the recommendations. A Delphi survey, rating the importance of each recommendation, was conducted with (1) parent carers of disabled children, (2) disabled young people aged 8 to 19\u2009years, and (3) health, education, and social care professionals. A consensus meeting was convened online to discuss the findings and ratify the recommendations.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Twenty\u2010eight recommendations were included in the Delphi survey. There were 141 participants in round 1 and 91 in round 2. Seven recommendations reached the agreed consensus criteria for being critical across all stakeholder groups, while 21 recommendations did not reach consensus across all groups. Fourteen participants ratified 23 recommendations, which when aggregated and refined further produced our final 19 recommendations.<\/jats:p><\/jats:sec><jats:sec><jats:title>Interpretation<\/jats:title><jats:p>Reductions in services for disabled children and their families during the COVID\u201019 pandemic had serious and lasting consequences. This study enabled parent carers, disabled young people, and health, education, and social care professionals to agree recommendations on services for disabled children during future emergencies.<\/jats:p><\/jats:sec>","DOI":"10.1111\/dmcn.16126","type":"journal-article","created":{"date-parts":[[2024,10,26]],"date-time":"2024-10-26T11:25:34Z","timestamp":1729941934000},"page":"676-687","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Policy and practice recommendations for services for disabled children during emergencies: Learning from <scp>COVID<\/scp>\u201019"],"prefix":"10.1111","volume":"67","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2714-0129","authenticated-orcid":false,"given":"Hannah","family":"Merrick","sequence":"first","affiliation":[{"name":"Population Health Sciences Institute Newcastle University  Newcastle upon Tyne UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9916-507X","authenticated-orcid":false,"given":"Christopher","family":"Morris","sequence":"additional","affiliation":[{"name":"Peninsula Childhood Disability Research Unit University of Exeter Medical School, University of Exeter  Exeter UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amanda","family":"Allard","sequence":"additional","affiliation":[{"name":"National Children's Bureau  London UK"},{"name":"Council for Disabled Children  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2507-7878","authenticated-orcid":false,"given":"Jeremy R.","family":"Parr","sequence":"additional","affiliation":[{"name":"Population Health Sciences Institute Newcastle University  Newcastle upon Tyne UK"},{"name":"Cumbria, Northumberland Tyne and Wear NHS Foundation Trust  Newcastle upon Tyne UK"},{"name":"Great North Children's Hospital Newcastle upon Tyne Hospitals NHS Foundation Trust  Newcastle upon Tyne UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4540-2586","authenticated-orcid":false,"given":"Lindsay","family":"Pennington","sequence":"additional","affiliation":[{"name":"Population Health Sciences Institute Newcastle University  Newcastle upon Tyne UK"},{"name":"Great North Children's Hospital Newcastle upon Tyne Hospitals NHS Foundation Trust  Newcastle upon Tyne UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"the Resetting Services to Disabled Children team","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,10,26]]},"reference":[{"key":"e_1_2_7_2_1","volume-title":"Family Resources Survey: financial year 2021 to 2022","author":"Department for Work and Pensions","year":"2023"},{"key":"e_1_2_7_3_1","unstructured":"Department for Education and Department for Health.Special educational needs and disability code of practice: 0 to 25years. In:Health DfEaDf editor.2015."},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.15503"},{"key":"e_1_2_7_5_1","unstructured":"Department for Education.Special Educational Needs and Disabilities (SEND) and Alternative Provision (AP) Improvement Plan: Right Support Right Place Right Time. In:Education Df editor.2023."},{"key":"e_1_2_7_6_1","article-title":"Clinical characteristics of children and young people admitted to hospital with covid\u201019 in United Kingdom: prospective multicentre observational cohort study","volume":"370","author":"Swann OV","year":"2020","journal-title":"BMJ"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-020-04577-2"},{"key":"e_1_2_7_8_1","unstructured":"Disabled Children's Partnership.Failed and Forgotten. Disabled Children's Partnership2022."},{"key":"e_1_2_7_9_1","unstructured":"Royal College of Paediatrics and Child Health.Reser Restore Recover \u2010 RCPCH principles for recovery. London;2020."},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2024-085143"},{"key":"e_1_2_7_11_1","volume-title":"CDC's National Virtual Event","author":"Council for Disabled Children","year":"2020"},{"key":"e_1_2_7_12_1","article-title":"Parent carer and disabled young people's perspectives on the impacts of changes to service provision for children and young people in England during the COVID\u201019 pandemic: a qualitative study","author":"Merrick H","journal-title":"BMJ Openunder review."},{"key":"e_1_2_7_13_1","unstructured":"NHS England.Emergency Preparedness Resilience and Response (EPRR). Available from:https:\/\/www.england.nhs.uk\/ourwork\/eprr\/."},{"key":"e_1_2_7_14_1","unstructured":"World Health Organisation.Health emergencies: World Health Organization. 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