{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,26]],"date-time":"2026-09-26T00:40:47Z","timestamp":1790383247831,"version":"4.1.0"},"reference-count":9,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2026,1,29]],"date-time":"2026-01-29T00:00:00Z","timestamp":1769644800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,1,29]],"date-time":"2026-01-29T00:00:00Z","timestamp":1769644800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","award":["#6NU38OT000280\u201004\u201001"],"award-info":[{"award-number":["#6NU38OT000280\u201004\u201001"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100031720","name":"Association of University Centers on Disabilities","doi-asserted-by":"publisher","award":["#04\u20108813\u201023"],"award-info":[{"award-number":["#04\u20108813\u201023"]}],"id":[{"id":"10.13039\/100031720","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Develop Med Child Neuro"],"published-print":{"date-parts":[[2026,9]]},"abstract":"Abstract<\/jats:title>\n \n Aim<\/jats:title>\n To estimate the prevalence of spina bifida across the lifespan, the number of people with spina bifida by state, and variations in spina bifida prevalence by insurance type, state, and selected demographics.<\/jats:p>\n <\/jats:sec>\n \n Method<\/jats:title>\n This was an observational study that used administrative insurance data. We used three public\u2010payer data sets (Medicaid Fee for Service, Medicare, and Medicare Advantage) and one large employer\u2010sponsored insurance database (Health Care Cost Institute [HCCI]) to estimate all\u2010age prevalence of spina bifida in the USA. Claims data from 2017 to 2019 were used to identify spina bifida based on International Classification of Diseases, 10th Revision codes.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n The overall prevalence estimate of spina bifida was 3.20 per 10 000 (7.03 for Medicaid, 5.03 for Medicare, 1.72 for HCCI) and varied by demographics. We estimate at least 92 551 people in the USA live with spina bifida.<\/jats:p>\n <\/jats:sec>\n \n Interpretation<\/jats:title>\n Most spina bifida prevalence estimates focus on birth prevalence. This study demonstrates that prevalence estimates across all ages throughout the lifespan can be generated using multiple insurance data sources.<\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/dmcn.70161","type":"journal-article","created":{"date-parts":[[2026,1,30]],"date-time":"2026-01-30T05:16:01Z","timestamp":1769750161000},"page":"1246-1252","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Prevalence of spina bifida across the lifespan in the\n USA<\/scp>"],"prefix":"10.1111","volume":"68","author":[{"ORCID":"https:\/\/orcid.org\/0009-0000-9885-7296","authenticated-orcid":false,"given":"Julie","family":"Bershadsky","sequence":"first","affiliation":[{"name":"Institute on Community Integration University of Minnesota Minneapolis MN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catharine","family":"Riley","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention Atlanta GA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sandra L.","family":"Pettingell","sequence":"additional","affiliation":[{"name":"Institute on Community Integration University of Minnesota Minneapolis MN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sheryl A.","family":"Larson","sequence":"additional","affiliation":[{"name":"Institute on Community Integration University of Minnesota Minneapolis MN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Hall\u2010Lande","sequence":"additional","affiliation":[{"name":"Institute on Community Integration University of Minnesota Minneapolis MN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Libby","family":"Hallas","sequence":"additional","affiliation":[{"name":"Institute on Community Integration University of Minnesota Minneapolis MN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9456-061X","authenticated-orcid":false,"given":"Tiebin","family":"Liu","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention Atlanta GA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennita","family":"Reefhuis","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention Atlanta GA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,1,29]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2015.302902"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdr2.1589"},{"issue":"1","key":"e_1_2_8_4_1","first-page":"1","article-title":"Updated estimates of neural tube defects prevented by mandatory folic acid fortification \u2010 United States, 1995\u20102011","volume":"64","author":"Williams J","year":"2015","journal-title":"MMWR Morb Mortal Wkly Rep."},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2009.02.001"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.20360"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1097\/PHM.0000000000001787"},{"key":"e_1_2_8_8_1","volume-title":"Centers for Medicare & Medicaid Services (CMS). The 2023 Data Book: Beneficiaries Dually Eligible for Medicare and Medicaid","year":"2023"},{"key":"e_1_2_8_9_1","first-page":"2020","volume-title":"Washington","author":"United States Census. Health Insurance Coverage in the United States","year":"2019"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606\u2010014\u20102925\u20107\u200c"}],"container-title":["Developmental Medicine & Child Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/dmcn.70161","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/dmcn.70161","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/dmcn.70161","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,6]],"date-time":"2026-08-06T15:12:06Z","timestamp":1786029126000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/dmcn.70161"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,29]]},"references-count":9,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/dmcn.70161"],"URL":"https:\/\/doi.org\/10.1111\/dmcn.70161","archive":["Portico"],"relation":{},"ISSN":["0012-1622","1469-8749"],"issn-type":[{"value":"0012-1622","type":"print"},{"value":"1469-8749","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,29]]},"assertion":[{"value":"2025-05-08","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-12-15","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-01-29","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}