{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,31]],"date-time":"2026-03-31T22:36:29Z","timestamp":1774996589073,"version":"3.50.1"},"reference-count":14,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2015,10,8]],"date-time":"2015-10-08T00:00:00Z","timestamp":1444262400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"name":"National Institute for Social Care and Health Research Clinical Research Centre"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Diabet. Med."],"published-print":{"date-parts":[[2016,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aims<\/jats:title><jats:p>A diagnosis of Type 1 diabetes in childhood can be a difficult life event for children and families. For children who are not severely ill, initial home rather than hospital\u2010based care at diagnosis is an option although there is little research on which is preferable. Practice varies widely, with long hospital stays in some countries and predominantly home\u2010based care in others. This article reports on the comparative acceptability and experience of children with Type 1 diabetes and their parents taking part in the <jats:styled-content style=\"fixed-case\">DECIDE<\/jats:styled-content> study evaluating outcomes of home or hospital\u2010based treatment from diagnosis in the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Semi\u2010structured interviews with 11 (pairs of) parents and seven children were conducted between 15 and 20 months post diagnosis. Interviewees were asked about adaptation to, management and impact of the diabetes diagnosis, and their experience of initial post\u2010diagnosis treatment.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>There were no differences between trial arms in adaptation to, management of or impact of diabetes. Most interviewees wanted to be randomized to the \u2018home\u2019 arm initially but expressed a retrospective preference for whichever trial arm they had been in, and cited benefits relating to learning about diabetes management.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The setting for early treatment did not appear to have a differential impact on families in the long term. However, the data presented here describe different experiences of early treatment settings from the perspective of children and their families, and factors that influenced how families felt initially about treatment setting. Further research could investigate the short\u2010term benefits of both settings.<\/jats:p><\/jats:sec>","DOI":"10.1111\/dme.12891","type":"journal-article","created":{"date-parts":[[2015,8,19]],"date-time":"2015-08-19T15:20:41Z","timestamp":1439997641000},"page":"119-124","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Family preferences for home or hospital care at diagnosis for children with diabetes in the DECIDE study"],"prefix":"10.1111","volume":"33","author":[{"given":"S.","family":"Morgan\u2010Trimmer","sequence":"first","affiliation":[{"name":"Psychology Applied to Health (PAtH) Group University of Exeter Medical School Exeter UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"Channon","sequence":"additional","affiliation":[{"name":"Institute of Primary Care &amp; Public Health Cardiff University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J. W.","family":"Gregory","sequence":"additional","affiliation":[{"name":"Institute of Molecular &amp; Experimental Medicine Cardiff University School of Medicine Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Townson","sequence":"additional","affiliation":[{"name":"South East Wales Trials Unit (SEWTU) Cardiff University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.","family":"Lowes","sequence":"additional","affiliation":[{"name":"School of Healthcare Sciences Cardiff University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2015,10,8]]},"reference":[{"key":"e_1_2_9_2_1","volume-title":"National Paediatric Diabetes Audit Report 2011\u20132012","author":"National Paediatric Diabetes Audit Project Board, Royal College of Paediatrics and Child Health","year":"2013"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2009.04963.x"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/dme.12021"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2005.03388.x"},{"key":"e_1_2_9_6_1","first-page":"CD004099","article-title":"Routine Hospital Admission Versus Out\u2010Patient or Home Care in Children at Diagnosis of Type 1 Diabetes Mellitus (Review)","author":"Clar C","year":"2007","journal-title":"Cochrane Database Syst Rev"},{"issue":"55","key":"e_1_2_9_7_1","article-title":"Healthcare cost of type 1 diabetes mellitus in new\u2010onset children in a hospital compared to an outpatient setting","volume":"13","author":"Jasinski CF","year":"2013","journal-title":"BMC Pediatr"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.103.1.122"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2003.035949"},{"key":"e_1_2_9_10_1","first-page":"547","article-title":"Home management versus inpatient care of adolescents with newly diagnosed type 1 diabetes mellitus: a survey of current practice","volume":"90","author":"Agwu JC","year":"2005","journal-title":"Arch Dis Child"},{"issue":"7","key":"e_1_2_9_11_1","article-title":"Delivering early care in diabetes evaluation (DECIDE): a protocol for a randomised controlled trial to assess hospital versus home management at diagnosis in childhood diabetes","volume":"11","author":"Townson JK","year":"2011","journal-title":"BMC Pediatr"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732313485161"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2011.00291"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2005.03388.x"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.2337\/diacare.28.1.186"}],"container-title":["Diabetic Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fdme.12891","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/dme.12891","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,3]],"date-time":"2023-10-03T11:09:18Z","timestamp":1696331358000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/dme.12891"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,10,8]]},"references-count":14,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2016,1]]}},"alternative-id":["10.1111\/dme.12891"],"URL":"https:\/\/doi.org\/10.1111\/dme.12891","archive":["Portico"],"relation":{},"ISSN":["0742-3071","1464-5491"],"issn-type":[{"value":"0742-3071","type":"print"},{"value":"1464-5491","type":"electronic"}],"subject":[],"published":{"date-parts":[[2015,10,8]]},"assertion":[{"value":"2015-08-14","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2015-10-08","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}