{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,12]],"date-time":"2026-03-12T02:03:42Z","timestamp":1773281022816,"version":"3.50.1"},"reference-count":60,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2015,10,27]],"date-time":"2015-10-27T00:00:00Z","timestamp":1445904000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000072","name":"National Institute of Dental and Craniofacial Research","doi-asserted-by":"publisher","award":["R34DE02273"],"award-info":[{"award-number":["R34DE02273"]}],"id":[{"id":"10.13039\/100000072","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["European J Cancer Care"],"published-print":{"date-parts":[[2016,9]]},"abstract":"<jats:p>Oral cancer (<jats:styled-content style=\"fixed-case\">OC<\/jats:styled-content>) survivors experience debilitating side effects that affect their quality of life (<jats:styled-content style=\"fixed-case\">QOL<\/jats:styled-content>) and that of their caregivers. This study aimed to develop and evaluate a dyadic, web\u2010based intervention to improve survivor self\u2010management and survivor\/caregiver <jats:styled-content style=\"fixed-case\">QOL<\/jats:styled-content>. A qualitative needs assessment (semi\u2010structured interviews) with 13 <jats:styled-content style=\"fixed-case\">OC<\/jats:styled-content> survivors and 12 caregivers was conducted to discern information and support needs as well as preferences regarding website features and tools. Results using Grounded Theory analysis showed that <jats:styled-content style=\"fixed-case\">OC<\/jats:styled-content> survivors and caregivers: (1) want and need practical advice about managing side effects; (2) want to reach out to other survivors\/caregivers for information and support; and (3) have both overlapping and unique needs and preferences regarding website features. Usability testing (<jats:italic>N<\/jats:italic>\u00a0=\u00a06 survivors; 5 caregivers) uncovered problems with the intuitiveness, navigation and design of the website that were subsequently addressed. Users rated the website favourably on the dimensions of attractiveness, controllability, efficiency, intuitiveness and learnability, and gave it a total usability score of 80\/100. Overall, this study demonstrates that <jats:styled-content style=\"fixed-case\">OC<\/jats:styled-content> survivors and caregivers are interested in using an online programme to improve <jats:styled-content style=\"fixed-case\">QOL<\/jats:styled-content>, and that providing tailored website content and features based on the person's role as survivor or caregiver is important in this population.<\/jats:p>","DOI":"10.1111\/ecc.12396","type":"journal-article","created":{"date-parts":[[2015,10,28]],"date-time":"2015-10-28T07:29:50Z","timestamp":1446017390000},"page":"806-821","source":"Crossref","is-referenced-by-count":41,"title":["Development and usability testing of a web\u2010based self\u2010management intervention for oral cancer survivors and their family caregivers"],"prefix":"10.1155","volume":"25","author":[{"given":"H.","family":"Badr","sequence":"first","affiliation":[{"name":"Department of Oncological Sciences Icahn School of Medicine at Mount Sinai New York City NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"D.","family":"Lipnick","sequence":"additional","affiliation":[{"name":"Department of Oncological Sciences Icahn School of Medicine at Mount Sinai New York City NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.A.","family":"Diefenbach","sequence":"additional","affiliation":[{"name":"Departments of Medicine and Urology North Shore \u2013 Long Island Jewish Health Systems New York City NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Posner","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology Icahn School of Medicine at Mount Sinai New York City NY USA"},{"name":"Department of Hematology and Medical Oncology Icahn School of Medicine at Mount Sinai New York City NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"T.","family":"Kotz","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology Icahn School of Medicine at Mount Sinai New York City NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"B.","family":"Miles","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology Icahn School of Medicine at Mount Sinai New York City NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Genden","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology Icahn School of Medicine at Mount Sinai New York City NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2015,10,27]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.chb.2005.08.008"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.3200"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730.2014.965369"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2014.994633"},{"key":"e_1_2_8_6_1","volume-title":"Best Practice Guidelines for the Management of Oral Complications from Cancer Therapy","author":"Broadfield L.","year":"2006"},{"key":"e_1_2_8_7_1","volume-title":"Usability Evaluation in Industry","author":"Brooke J","year":"1996"},{"key":"e_1_2_8_8_1","volume-title":"Simply Put: A Guide for Creating Easy\u2010to\u2010Understand Materials","author":"Centers for Disease Control and Prevention","year":"2009"},{"key":"e_1_2_8_9_1","doi-asserted-by":"crossref","unstructured":"ChinJ. DiehlV.&NormanK. (1988)Development of an instrument measuring user satisfaction of the human\u2010computer interface. Proceedings of ACM CHI \u201888 Washington DC USA pp.213\u2013218.","DOI":"10.1145\/57167.57203"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/0115426506021006576"},{"key":"e_1_2_8_11_1","first-page":"416","article-title":"Self\u2010determination theory","volume":"1","author":"Deci E.L.","year":"2011","journal-title":"Handbook of Theories of Social Psychology"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1037\/0278-6133.23.2.207"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X10386382"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1083-6101.2007.00367.x"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-006-0160-4"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.328.7449.1166"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1525-1497.2001.016007435.x"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/08838150802643787"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2013.48.8932"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2005.05.005"},{"key":"e_1_2_8_21_1","doi-asserted-by":"crossref","first-page":"345","DOI":"10.1007\/978-4-431-54938-3_15","volume-title":"Oral Cancer","author":"Katsura K.","year":"2015"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1197\/jamia.M0822"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2007.14.6647"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOO.0b013e32832af12f"},{"key":"e_1_2_8_25_1","doi-asserted-by":"publisher","DOI":"10.1080\/10447319509526110"},{"key":"e_1_2_8_26_1","doi-asserted-by":"publisher","DOI":"10.1097\/00024665-200303000-00010"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.1006\/ijhc.2001.0503"},{"key":"e_1_2_8_28_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-003-0466-4"},{"key":"e_1_2_8_29_1","doi-asserted-by":"publisher","DOI":"10.1037\/0090-5550.47.1.31"},{"key":"e_1_2_8_30_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2008.20.0295"},{"key":"e_1_2_8_31_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0360-3016(03)01454-8"},{"key":"e_1_2_8_32_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijmedinf.2004.08.003"},{"key":"e_1_2_8_33_1","unstructured":"National Institute of Dental and Craniofacial Research(2013)Oral cancer. Available at:http:\/\/www.nidcr.nih.gov\/oralhealth\/topics\/oralcancer\/(accessed August 5 2015)."},{"key":"e_1_2_8_34_1","volume-title":"Making Health Communication Programs Work: A Planner's Guide","author":"National Institutes of Health","year":"2002"},{"key":"e_1_2_8_35_1","doi-asserted-by":"publisher","DOI":"10.3322\/canjclin.52.4.195"},{"key":"e_1_2_8_36_1","doi-asserted-by":"publisher","DOI":"10.1177\/1745691612447309"},{"key":"e_1_2_8_37_1","doi-asserted-by":"publisher","DOI":"10.1080\/07347332.2014.936649"},{"key":"e_1_2_8_38_1","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1007\/978-4-431-54938-3_14","volume-title":"Oral Cancer","author":"Ozeki S","year":"2015"},{"key":"e_1_2_8_39_1","doi-asserted-by":"publisher","DOI":"10.1186\/1479-5868-9-18"},{"key":"e_1_2_8_40_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(94)00136-H"},{"key":"e_1_2_8_41_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0749-3797(00)00187-2"},{"key":"e_1_2_8_42_1","unstructured":"RankinK. JonesD.&ReddingS. (2008)Oral health in cancer therapy: a guide for health care professionals. Dental Oncology Education Program cosponsored by the Texas Cancer Council and the Oral Health Education Foundation 3rd edn. (eds.Rankin Jones & Redding). Available athttp:\/\/www.exodontia.info\/files\/Oral_Health_in_Cancer_Therapy_-_A_Guide_for_Health_Care_Professionals_3rd_edition.pdf."},{"key":"e_1_2_8_43_1","doi-asserted-by":"publisher","DOI":"10.3322\/caac.21142"},{"key":"e_1_2_8_44_1","first-page":"2","article-title":"Facilitating health behaviour change and its maintenance: interventions based on self\u2010determination theory","volume":"10","author":"Ryan R.M.","year":"2008","journal-title":"European Health Psychologist"},{"key":"e_1_2_8_45_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315800820"},{"key":"e_1_2_8_46_1","doi-asserted-by":"publisher","DOI":"10.1002\/hed.23255"},{"key":"e_1_2_8_47_1","volume-title":"Oral Cancer","author":"Silverman S","year":"2003"},{"key":"e_1_2_8_48_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291706008944"},{"key":"e_1_2_8_49_1","unstructured":"SterbaK.R. ZapkaJ. CranosC. LaursenA.&DayB.T.A. (2015)Quality of life in head and neck cancer patient\u2010caregiver dyads.Cancer Nursing June 26 2015 (epub ahead of print)"},{"key":"e_1_2_8_50_1","volume-title":"Basics of Qualitative Research: Grounded Theory Procedures and Techniques","author":"Strauss A.","year":"1990"},{"key":"e_1_2_8_51_1","doi-asserted-by":"publisher","DOI":"10.1093\/sw\/46.2.125"},{"key":"e_1_2_8_52_1","doi-asserted-by":"publisher","DOI":"10.1093\/jn\/137.1.243S"},{"key":"e_1_2_8_53_1","doi-asserted-by":"publisher","DOI":"10.1001\/archotol.130.4.401"},{"key":"e_1_2_8_54_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-011-1279-5"},{"key":"e_1_2_8_55_1","volume-title":"The Research\u2010Based Web Design & Usability Guidelines","author":"U.S. Department of Health and Human Services","year":"2006"},{"key":"e_1_2_8_56_1","volume-title":"Health Literacy Online: A Guide to Writing and Designing Easy\u2010to\u2010Use Health Web Sites","author":"U.S. Department of Health and Human Services Office of Disease Prevention and Health Promotion","year":"2010"},{"key":"e_1_2_8_57_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.mlg.0000250169.10241.58"},{"key":"e_1_2_8_58_1","first-page":"153","volume-title":"Communication Technology and Society: Audience Adoption and Uses","author":"Walther J.B.","year":"2002"},{"key":"e_1_2_8_59_1","doi-asserted-by":"publisher","DOI":"10.1037\/0278-6133.25.1.91"},{"key":"e_1_2_8_60_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.296.14.1716"},{"key":"e_1_2_8_61_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1900"}],"container-title":["European Journal of Cancer Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fecc.12396","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ecc.12396","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,7]],"date-time":"2025-05-07T14:31:46Z","timestamp":1746628306000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/ecc.12396"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,10,27]]},"references-count":60,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2016,9]]}},"alternative-id":["10.1111\/ecc.12396"],"URL":"https:\/\/doi.org\/10.1111\/ecc.12396","archive":["Portico"],"relation":{},"ISSN":["0961-5423"],"issn-type":[{"value":"0961-5423","type":"print"}],"subject":[],"published":{"date-parts":[[2015,10,27]]}}}