{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T22:04:48Z","timestamp":1790719488828,"version":"4.1.0"},"reference-count":16,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2018,7,17]],"date-time":"2018-07-17T00:00:00Z","timestamp":1531785600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"},{"start":{"date-parts":[[2018,7,17]],"date-time":"2018-07-17T00:00:00Z","timestamp":1531785600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100003035","name":"Aase og Ejnar Danielsens Fond","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003035","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010733","name":"B\u00f8rnecancerfonden","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010733","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100010339","name":"Ingeni\u00f8r Otto Christensens Fond","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100010339","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Capitol Region of Denmark"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Eur J Cancer Care"],"published-print":{"date-parts":[[2018,11]]},"DOI":"10.1111\/ecc.12877","type":"journal-article","created":{"date-parts":[[2018,7,17]],"date-time":"2018-07-17T13:26:29Z","timestamp":1531833989000},"page":"e12877","source":"Crossref","is-referenced-by-count":24,"title":["Pediatric cancer families\u2019 participation in whole-genome sequencing research in Denmark: Parent perspectives"],"prefix":"10.1155","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3470-5995","authenticated-orcid":false,"given":"Anna","family":"Byrjalsen","sequence":"first","affiliation":[{"name":"Department of Clinical Genetics; Rigshospitalet; Copenhagen Denmark"},{"name":"Department of Paediatrics and Adolescent Medicine; Rigshospitalet; Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ulrik","family":"Stoltze","sequence":"additional","affiliation":[{"name":"Department of Paediatrics and Adolescent Medicine; Rigshospitalet; Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karin","family":"Wadt","sequence":"additional","affiliation":[{"name":"Department of Clinical Genetics; Rigshospitalet; Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa Lyngsie","family":"Hjalgrim","sequence":"additional","affiliation":[{"name":"Department of Paediatrics and Adolescent Medicine; Rigshospitalet; Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne-Marie","family":"Gerdes","sequence":"additional","affiliation":[{"name":"Department of Clinical Genetics; Rigshospitalet; Copenhagen Denmark"},{"name":"Department of Clinical Medicine; University of Copenhagen; Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kjeld","family":"Schmiegelow","sequence":"additional","affiliation":[{"name":"Department of Paediatrics and Adolescent Medicine; Rigshospitalet; Copenhagen Denmark"},{"name":"Department of Clinical Medicine; University of Copenhagen; Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ayo","family":"Wahlberg","sequence":"additional","affiliation":[{"name":"Department of Anthropology; University of Copenhagen; Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,7,17]]},"reference":[{"issue":"8","key":"10.1111\/ecc.12877-BIB0001|ecc12877-cit-0001","doi-asserted-by":"crossref","first-page":"535","DOI":"10.1136\/medethics-2016-103564","article-title":"Parents perspectives on whole genome sequencing for their children: Qualified enthusiasm?","volume":"43","author":"Anderson","year":"2017","journal-title":"Journal of Medical Ethics"},{"key":"10.1111\/ecc.12877-BIB0002|ecc12877-cit-0002","volume-title":"Transforming qualitative information: Thematic analysis and code development","author":"Boyatzis","year":"1998"},{"issue":"5","key":"10.1111\/ecc.12877-BIB0003|ecc12877-cit-0003","doi-asserted-by":"crossref","first-page":"816","DOI":"10.1002\/pbc.25444","article-title":"Balancing research interests and patient interests: A qualitative study into the intertwinement of care and research in paediatric oncology","volume":"62","author":"Dekking","year":"2015","journal-title":"Pediatric Blood & Cancer"},{"issue":"1","key":"10.1111\/ecc.12877-BIB0004|ecc12877-cit-0004","doi-asserted-by":"crossref","first-page":"80","DOI":"10.1177\/160940690600500107","article-title":"Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development","volume":"5","author":"Fereday","year":"2006","journal-title":"International Journal of Qualitative Methods"},{"key":"10.1111\/ecc.12877-BIB0005|ecc12877-cit-0005","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1111\/jan.13407","article-title":"A qualitative study of decision-making on phase III randomized clinical trial participation in pediatric oncology: Adolescents\u2019 and parents\u2019 perspectives and preferences","volume":"74","author":"Ingersgaard","year":"2017","journal-title":"Journal of Advanced Nursing"},{"issue":"5","key":"10.1111\/ecc.12877-BIB0006|ecc12877-cit-0006","doi-asserted-by":"crossref","first-page":"523","DOI":"10.1080\/14737159.2017.1316665","article-title":"Ethical considerations surrounding germline next-generation sequencing of children with cancer","volume":"17","author":"Johnson","year":"2017","journal-title":"Expert Review of Molecular Diagnostics"},{"issue":"10","key":"10.1111\/ecc.12877-BIB0007|ecc12877-cit-0007","doi-asserted-by":"crossref","first-page":"787","DOI":"10.1097\/00043426-200310000-00009","article-title":"Clinical trials in pediatric cancer: Parental perspectives on informed consent","volume":"25","author":"Kupst","year":"2003","journal-title":"Journal of Pediatric Hematology\/Oncology"},{"issue":"4","key":"10.1111\/ecc.12877-BIB0008|ecc12877-cit-0008","doi-asserted-by":"crossref","first-page":"552","DOI":"10.1007\/s10897-013-9626-y","article-title":"Stakeholders\u2019 opinions on the implementation of pediatric whole exome sequencing: Implications for informed consent","volume":"23","author":"Levenseller","year":"2014","journal-title":"Journal of Genetic Counseling"},{"issue":"1","key":"10.1111\/ecc.12877-BIB0009|ecc12877-cit-0009","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1177\/107484070100700105","article-title":"Children in research: Fathers in cancer research - Meanings and reasons for participation","volume":"7","author":"Liaschenko","year":"2001","journal-title":"Journal of Family Nursing"},{"issue":"3","key":"10.1111\/ecc.12877-BIB0010|ecc12877-cit-0010","doi-asserted-by":"crossref","first-page":"511","DOI":"10.1002\/pbc.25815","article-title":"Is whole-exome sequencing an ethically disruptive technology? Perspectives of pediatric oncologists and parents of pediatric patients with solid tumors","volume":"63","author":"McCullough","year":"2016","journal-title":"Pediatric Blood & Cancer"},{"issue":"8","key":"10.1111\/ecc.12877-BIB0011|ecc12877-cit-0011","doi-asserted-by":"crossref","first-page":"1374","DOI":"10.1002\/pbc.25520","article-title":"Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research","volume":"62","author":"Oberg","year":"2015","journal-title":"Pediatric Blood & Cancer"},{"issue":"5","key":"10.1111\/ecc.12877-BIB0012|ecc12877-cit-0012","doi-asserted-by":"crossref","first-page":"616","DOI":"10.1001\/jamaoncol.2015.5699","article-title":"Diagnostic yield of clinical tumor and germline whole-exome sequencing for children with solid tumors","volume":"2","author":"Parsons","year":"2016","journal-title":"JAMA Oncology"},{"issue":"2","key":"10.1111\/ecc.12877-BIB0013|ecc12877-cit-0013","doi-asserted-by":"crossref","first-page":"120","DOI":"10.1111\/cge.12254","article-title":"Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children","volume":"85","author":"Sapp","year":"2014","journal-title":"Clinical Genetics"},{"issue":"9","key":"10.1111\/ecc.12877-BIB0014|ecc12877-cit-0014","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1186\/s13073-014-0069-3","article-title":"Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients","volume":"6","author":"Scollon","year":"2014","journal-title":"Genome Medicine"},{"issue":"1","key":"10.1111\/ecc.12877-BIB0015|ecc12877-cit-0015","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1097\/NCC.0b013e3181b43389","article-title":"Parents\u2019 experiences in decision making with childhood cancer clinical trials","volume":"33","author":"Woodgate","year":"2010","journal-title":"Cancer Nursing"},{"key":"10.1111\/ecc.12877-BIB0016|ecc12877-cit-0016","doi-asserted-by":"crossref","first-page":"2336","DOI":"10.1056\/NEJMoa1508054","article-title":"Germline mutations in predisposition genes in pediatric cancer","volume":"373","author":"Zhang","year":"2015","journal-title":"New England Journal of Medicine"}],"container-title":["European Journal of Cancer Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fecc.12877","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/onlinelibrary.wiley.com\/wol1\/doi\/10.1111\/ecc.12877\/fullpdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,12,20]],"date-time":"2022-12-20T13:11:38Z","timestamp":1671541898000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/ecc.12877"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,7,17]]},"references-count":16,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2018,11]]}},"URL":"https:\/\/doi.org\/10.1111\/ecc.12877","archive":["Portico"],"relation":{},"ISSN":["0961-5423"],"issn-type":[{"value":"0961-5423","type":"print"}],"subject":[],"published":{"date-parts":[[2018,7,17]]}}}