{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T20:36:29Z","timestamp":1761510989324,"version":"3.37.3"},"reference-count":14,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2014,8,7]],"date-time":"2014-08-07T00:00:00Z","timestamp":1407369600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100004326","name":"Bayer","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100004326","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Euro J of Neurology"],"published-print":{"date-parts":[[2015,1]]},"abstract":"<jats:sec><jats:title>Background and purpose<\/jats:title><jats:p>To investigate resource use and burden associated with spina bifida (<jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content>) in Germany.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A questionnaire was used to obtain information on <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content>\u2010related healthcare resource use and assistive technologies used for the last 1 and 10\u00a0years. Individuals with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> were recruited at a tertiary specialist clinic. To participate, persons with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> required the cognitive ability to respond or a caregiver to answer questions on their behalf. They could use personal medical charts or other records to answer. The analyses included assessment of frequency and extent of resource use for both time frames.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Data on 88 persons with a diagnosis of <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> were collected (44% female). During the last year, 88.6% (<jats:italic>N<\/jats:italic>\u00a0=\u00a078) reported at least one visit to a general practitioner's (<jats:styled-content style=\"fixed-case\">GP<\/jats:styled-content>'s) office, 77.3% (<jats:italic>N<\/jats:italic>\u00a0=\u00a068) to a urologist and 69.3% (<jats:italic>N<\/jats:italic>\u00a0=\u00a061) to a physiotherapist. The annual average number of visits was 7.6 <jats:styled-content style=\"fixed-case\">GP<\/jats:styled-content>, 3.6 urologist and 65.3 physiotherapist visits. Amongst those hospitalized, a single hospitalization lasted 7.3\u00a0days on average, whereas the average annual number of hospital days was 14.8\u00a0days. During the previous 10\u00a0years, 67.0% (<jats:italic>N<\/jats:italic>\u00a0=\u00a059) of responders used a wheelchair, 64.7% (<jats:italic>N<\/jats:italic>\u00a0=\u00a057) used glasses and 59.1% (<jats:italic>N<\/jats:italic>\u00a0=\u00a052) used orthopaedic shoes, with an average of 2.5, 2.8 and 6.1 new items used, respectively.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The results indicate that persons with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> require a substantial amount of interaction with healthcare providers, as well as other healthcare\u2010related resource use, both in the shorter and longer terms.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ene.12524","type":"journal-article","created":{"date-parts":[[2014,8,7]],"date-time":"2014-08-07T14:07:46Z","timestamp":1407420466000},"page":"53-58","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Resource utilization and productivity loss in persons with spina bifida \u2212 an observational study of patients in a tertiary urology clinic in <scp>G<\/scp>ermany"],"prefix":"10.1111","volume":"22","author":[{"given":"F. 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