{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,20]],"date-time":"2026-08-20T12:21:25Z","timestamp":1787228485660,"version":"build-2736575974"},"reference-count":28,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2017,12,22]],"date-time":"2017-12-22T00:00:00Z","timestamp":1513900800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000921","name":"European Cooperation in Science and Technology","doi-asserted-by":"publisher","award":["BM1101"],"award-info":[{"award-number":["BM1101"]}],"id":[{"id":"10.13039\/501100000921","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Euro J of Neurology"],"published-print":{"date-parts":[[2018,2]]},"abstract":"<jats:sec><jats:title>Background and purpose<\/jats:title><jats:p>The quality of clinical practice guidelines on dystonia has not yet been assessed. Our aim was to appraise the methodological quality of guidelines worldwide and to analyze the consistency of their recommendations.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We searched for clinical practice guidelines on dystonia diagnosis\/treatment in the National Guideline Clearinghouse, PubMed, National Institute for Health and Care Excellence, Guidelines International Network and Web of Science databases. We also searched for guidelines on homepages of international neurological societies. We asked for guidelines from every Management Committee member of the <jats:styled-content style=\"fixed-case\">BM<\/jats:styled-content>1101 Action of the Cooperation between Science and Technology European framework and every member of the International Parkinson and Movement Disorders Society with special interest in dystonia.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Fifteen guidelines were evaluated. Among guidelines on treatment, only one from the American Academy of Neurology could be considered as high quality. Among guidelines on diagnosis and therapy, the guideline from the European Federation of Neurological Societies was recommended by the appraisers. Clinical applicability and reports of editorial independence were the greatest shortcomings. The rigor of development was poor and stakeholder involvement was also incomplete in most guidelines. Discrepancies among recommendations may result from the weight given to consensus statements and expert opinions due to the lack of evidence, as well as inaccuracy of disease classification.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The quality of appraised guidelines was low. It is necessary to improve the quality of guidelines on dystonia, and the applied terminology of dystonia also needs to be standardized.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ene.13488","type":"journal-article","created":{"date-parts":[[2017,10,20]],"date-time":"2017-10-20T20:07:03Z","timestamp":1508530023000},"page":"275-283","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Quality and reporting of guidelines on the diagnosis and management of dystonia"],"prefix":"10.1111","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8054-3678","authenticated-orcid":false,"given":"G.","family":"Tam\u00e1s","sequence":"first","affiliation":[{"name":"Department of Neurology Semmelweis University Budapest Hungary"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Abrantes","sequence":"additional","affiliation":[{"name":"Laboratory of Clinical Pharmacology and Therapeutics Faculty of Medicine University of Lisbon Lisbon"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Valadas","sequence":"additional","affiliation":[{"name":"Instituto de Medicina Molecular Faculty of Medicine University of Lisbon Lisbon"},{"name":"Neurology Service Hospital de S\u00e3o Bernardo Centro Hospitalar de Set\u00fabal Set\u00fabal Portugal"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"P.","family":"Radics","sequence":"additional","affiliation":[{"name":"Department of Neurology Semmelweis University Budapest Hungary"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5864-0006","authenticated-orcid":false,"given":"A.","family":"Albanese","sequence":"additional","affiliation":[{"name":"Istituto Clinico Humanitas and Universita Cattolica del Sacro Cuore Milan, Rozzano Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5783-571X","authenticated-orcid":false,"given":"M. A. J.","family":"Tijssen","sequence":"additional","affiliation":[{"name":"Department of Neurology University of Groningen Groningen the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3950-5113","authenticated-orcid":false,"given":"J. J.","family":"Ferreira","sequence":"additional","affiliation":[{"name":"Laboratory of Clinical Pharmacology and Therapeutics Faculty of Medicine University of Lisbon Lisbon"},{"name":"Instituto de Medicina Molecular Faculty of Medicine University of Lisbon Lisbon"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,12,22]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.090449"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0095369"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/mds.25475"},{"key":"e_1_2_7_5_1","volume-title":"The International Source of the Best Available Evidence for Effective Health Care","author":"BMJ Clinical Evidence Handbook","year":"2007"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2004.00867.x"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.WNL.0000033622.27961.B6"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2010.03042.x"},{"key":"e_1_2_7_9_1","unstructured":"Ministry of Health Hungary.Clinical Guideline for the use of Botulinum Toxin\u2010A in Neurological Disorders 2009."},{"key":"e_1_2_7_10_1","unstructured":"Catalan Society for Fighting against Dystonia (ALDEC) and Catalan Society of Neurology. Dystonia.Practical Guide for Professionals 2013."},{"key":"e_1_2_7_11_1","unstructured":"Ministry of Health Romania.Guide for Diagnosis and Treatment of Primary Dystonia and Dystonia\u2010Plus Syndromes 2010."},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2006.01537.x"},{"key":"e_1_2_7_13_1","unstructured":"Ministry of Health Brazil.Clinical Protocol and Therapeutic Guideline. Focal Dystonias and Hemifacial Spasm 2009.http:\/\/bvsms.saude.gov.br\/bvs\/publicacoes\/protocolos_clinicos_diretrizes_terapeuticas_v1.pdf(accessed 10\/09\/2017)."},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000311389.26145.95"},{"key":"e_1_2_7_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/1741-7015-10-143"},{"key":"e_1_2_7_16_1","unstructured":"Spanish Neurological Society.Official Guideline for the Diagnosis and Treatment of Dystonia 2012.http:\/\/getm.sen.es\/wp-content\/uploads\/2012\/02\/GUIA_SEN_distonias.pdf(accessed 10\/09\/2017)."},{"key":"e_1_2_7_17_1","unstructured":"German Society of Neurology.Dystonia 2012.http:\/\/www.dgn.org\/images\/red_leitlinien\/LL_2012\/pdf\/ll_11_2012_dystonie.pdf(accessed 10\/09\/2017)."},{"key":"e_1_2_7_18_1","unstructured":"Austrian Society of Parkinson's Disease.Consensus on Dystonia 2006."},{"key":"e_1_2_7_19_1","doi-asserted-by":"publisher","DOI":"10.4067\/S0717-92272013000200005"},{"key":"e_1_2_7_20_1","first-page":"570","article-title":"Guidelines for the diagnosis and treatment of dystonia","volume":"41","author":"Chinese Medical Association","year":"2008","journal-title":"Chin J Neurol"},{"key":"e_1_2_7_21_1","unstructured":"The Dystonia Society.Dystonia: A Guide to Best Practice. 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